Experiences of Patients and Families Living with Krabbe Disease
The challenges faced by patients with Krabbe disease remain unelucidated. This study aimed to identify these challenges and facilitate the development of methods for assessing the quality of life. This qualitative descriptive study used in-person or online semistructured interviews from March to Dec...
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| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
| Published: |
SAGE Publishing
2025-01-01
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| Series: | Journal of Patient Experience |
| Online Access: | https://doi.org/10.1177/23743735241309470 |
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