Patient-Generated Data as Indicators of Impact of Multidisciplinary and Multi-stakeholder Health Care Systems, in the Age of Personalised Medicine
Abstract Using the case study of the Multiple Sclerosis Care Unit Initiative launched by the European Charcot Foundation, we discuss the need to evaluate the impact of multidisciplinary and multi-stakeholder healthcare systems on patient-reported experience and outcomes for the programming and monit...
Saved in:
| Main Authors: | , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Adis, Springer Healthcare
2025-02-01
|
| Series: | Neurology and Therapy |
| Online Access: | https://doi.org/10.1007/s40120-024-00706-6 |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1849772476357148672 |
|---|---|
| author | Paola Zaratin Per Soelberg Sørensen Óscar Fernández Giancarlo Comi |
| author_facet | Paola Zaratin Per Soelberg Sørensen Óscar Fernández Giancarlo Comi |
| author_sort | Paola Zaratin |
| collection | DOAJ |
| description | Abstract Using the case study of the Multiple Sclerosis Care Unit Initiative launched by the European Charcot Foundation, we discuss the need to evaluate the impact of multidisciplinary and multi-stakeholder healthcare systems on patient-reported experience and outcomes for the programming and monitoring of brain and neurodegenerative diseases in Europe and beyond. The multiple sclerosis (MS) case study presented in this paper highlights the role of patient-generated data as indicators of the impact of value-based healthcare (VBHC) for all the different neurological diseases whose prodromal symptoms are the first signs of disease progression and therefore instrumental markers for preventive treatments to preserve brain health. A holistic approach to the treatment of MS plays a crucial role in the inclusion and scientific meaning of the patient’s perspective in terms of patient-reported dimension and patient-generated health data (PGHD). |
| format | Article |
| id | doaj-art-e9644ed6880c4bad8252b8550cc4e138 |
| institution | DOAJ |
| issn | 2193-8253 2193-6536 |
| language | English |
| publishDate | 2025-02-01 |
| publisher | Adis, Springer Healthcare |
| record_format | Article |
| series | Neurology and Therapy |
| spelling | doaj-art-e9644ed6880c4bad8252b8550cc4e1382025-08-20T03:02:19ZengAdis, Springer HealthcareNeurology and Therapy2193-82532193-65362025-02-0114243744610.1007/s40120-024-00706-6Patient-Generated Data as Indicators of Impact of Multidisciplinary and Multi-stakeholder Health Care Systems, in the Age of Personalised MedicinePaola Zaratin0Per Soelberg Sørensen1Óscar Fernández2Giancarlo Comi3Scientific Research Department, Italian Multiple Sclerosis Society FoundationDanish Multiple Sclerosis Center, Department Of Neurology, Copenhagen University HospitalDepartment Of Pharmacology And Pediatry, Faculty Of Medicine, University Of Malaga And Biomedical Research Institute Of Malaga (Ibima)Department of Neurorehabilitation Sciences, Casa di Cura IgeaAbstract Using the case study of the Multiple Sclerosis Care Unit Initiative launched by the European Charcot Foundation, we discuss the need to evaluate the impact of multidisciplinary and multi-stakeholder healthcare systems on patient-reported experience and outcomes for the programming and monitoring of brain and neurodegenerative diseases in Europe and beyond. The multiple sclerosis (MS) case study presented in this paper highlights the role of patient-generated data as indicators of the impact of value-based healthcare (VBHC) for all the different neurological diseases whose prodromal symptoms are the first signs of disease progression and therefore instrumental markers for preventive treatments to preserve brain health. A holistic approach to the treatment of MS plays a crucial role in the inclusion and scientific meaning of the patient’s perspective in terms of patient-reported dimension and patient-generated health data (PGHD).https://doi.org/10.1007/s40120-024-00706-6 |
| spellingShingle | Paola Zaratin Per Soelberg Sørensen Óscar Fernández Giancarlo Comi Patient-Generated Data as Indicators of Impact of Multidisciplinary and Multi-stakeholder Health Care Systems, in the Age of Personalised Medicine Neurology and Therapy |
| title | Patient-Generated Data as Indicators of Impact of Multidisciplinary and Multi-stakeholder Health Care Systems, in the Age of Personalised Medicine |
| title_full | Patient-Generated Data as Indicators of Impact of Multidisciplinary and Multi-stakeholder Health Care Systems, in the Age of Personalised Medicine |
| title_fullStr | Patient-Generated Data as Indicators of Impact of Multidisciplinary and Multi-stakeholder Health Care Systems, in the Age of Personalised Medicine |
| title_full_unstemmed | Patient-Generated Data as Indicators of Impact of Multidisciplinary and Multi-stakeholder Health Care Systems, in the Age of Personalised Medicine |
| title_short | Patient-Generated Data as Indicators of Impact of Multidisciplinary and Multi-stakeholder Health Care Systems, in the Age of Personalised Medicine |
| title_sort | patient generated data as indicators of impact of multidisciplinary and multi stakeholder health care systems in the age of personalised medicine |
| url | https://doi.org/10.1007/s40120-024-00706-6 |
| work_keys_str_mv | AT paolazaratin patientgenerateddataasindicatorsofimpactofmultidisciplinaryandmultistakeholderhealthcaresystemsintheageofpersonalisedmedicine AT persoelbergsørensen patientgenerateddataasindicatorsofimpactofmultidisciplinaryandmultistakeholderhealthcaresystemsintheageofpersonalisedmedicine AT oscarfernandez patientgenerateddataasindicatorsofimpactofmultidisciplinaryandmultistakeholderhealthcaresystemsintheageofpersonalisedmedicine AT giancarlocomi patientgenerateddataasindicatorsofimpactofmultidisciplinaryandmultistakeholderhealthcaresystemsintheageofpersonalisedmedicine |