The right to information for epilepsy patients in Brazil

Epilepsy is one of the most common neurological conditions, affecting around 50 million people worldwide. It is characterized by a lifelong predisposition to recurrent epileptic seizures. In addition to the neurological and cognitive impacts, patients face social challenges such as discrimination, i...

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Main Authors: Francisca Valéria Bezerra Sampaio Marques, Márcia Renata Mortari, Aline Alburquerque
Format: Article
Language:English
Published: Elsevier 2025-03-01
Series:Heliyon
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Online Access:http://www.sciencedirect.com/science/article/pii/S2405844025014835
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author Francisca Valéria Bezerra Sampaio Marques
Márcia Renata Mortari
Aline Alburquerque
author_facet Francisca Valéria Bezerra Sampaio Marques
Márcia Renata Mortari
Aline Alburquerque
author_sort Francisca Valéria Bezerra Sampaio Marques
collection DOAJ
description Epilepsy is one of the most common neurological conditions, affecting around 50 million people worldwide. It is characterized by a lifelong predisposition to recurrent epileptic seizures. In addition to the neurological and cognitive impacts, patients face social challenges such as discrimination, isolation and difficulties in accessing information. These factors affect their social inclusion and quality of life. In light of this, this article analyzes the importance of public policies that guarantee the right to information for people with epilepsy in Brazil. To this end, a bibliographical review of academic articles and legal documents related to the topic was carried out. The research sought to identify gaps in Brazilian legislation and highlight the need for new policies to ensure access to information. The results show that the lack of specific laws compromises this right, making it difficult to access adequate resources and support. This reinforces the need for new legislation and programs to ensure greater dignity and inclusion for these patients.
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publishDate 2025-03-01
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spelling doaj-art-e94af266850248588c0acf64af2be88b2025-08-20T02:56:06ZengElsevierHeliyon2405-84402025-03-01116e4310210.1016/j.heliyon.2025.e43102The right to information for epilepsy patients in BrazilFrancisca Valéria Bezerra Sampaio Marques0Márcia Renata Mortari1Aline Alburquerque2Neuropharmacology Laboratory, Institute of Biological Sciences, Department of Physiological Sciences, University of Brasília, BrazilNeuropharmacology Laboratory, Institute of Biological Sciences, Department of Physiological Sciences, University of Brasília, Brazil; Corresponding author. Laboratory of Neuropharmacology, Department of Physiological Sciences, Institute of Biological Sciences, University of Brasilia, Asa Norte, Brasilia, Brazil.Centro Internacional de Bioética e Humanidades, Cátedra Unesco de Bioética, Programa de Pós-Graduação em Bioética, University of Brasília, BrazilEpilepsy is one of the most common neurological conditions, affecting around 50 million people worldwide. It is characterized by a lifelong predisposition to recurrent epileptic seizures. In addition to the neurological and cognitive impacts, patients face social challenges such as discrimination, isolation and difficulties in accessing information. These factors affect their social inclusion and quality of life. In light of this, this article analyzes the importance of public policies that guarantee the right to information for people with epilepsy in Brazil. To this end, a bibliographical review of academic articles and legal documents related to the topic was carried out. The research sought to identify gaps in Brazilian legislation and highlight the need for new policies to ensure access to information. The results show that the lack of specific laws compromises this right, making it difficult to access adequate resources and support. This reinforces the need for new legislation and programs to ensure greater dignity and inclusion for these patients.http://www.sciencedirect.com/science/article/pii/S2405844025014835EpilepsyPatientsRight to informationLegal protection
spellingShingle Francisca Valéria Bezerra Sampaio Marques
Márcia Renata Mortari
Aline Alburquerque
The right to information for epilepsy patients in Brazil
Heliyon
Epilepsy
Patients
Right to information
Legal protection
title The right to information for epilepsy patients in Brazil
title_full The right to information for epilepsy patients in Brazil
title_fullStr The right to information for epilepsy patients in Brazil
title_full_unstemmed The right to information for epilepsy patients in Brazil
title_short The right to information for epilepsy patients in Brazil
title_sort right to information for epilepsy patients in brazil
topic Epilepsy
Patients
Right to information
Legal protection
url http://www.sciencedirect.com/science/article/pii/S2405844025014835
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