Piloting of a minimum data set for older people living in care homes in England: protocol for a longitudinal, mixed-methods study
Introduction Health and care data are routinely collected about care home residents in England, yet there is no way to collate these data to inform benchmarking and improvement. The Developing research resources And minimum data set for Care Homes’ Adoption and use study has developed a prototype mi...
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BMJ Publishing Group
2023-02-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/13/2/e071686.full |
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| author | Claire Goodman Julienne Meyer Barbara Hanratty Lisa Irvine Arne Timon Wolters Richard James Brine Elizabeth Crellin Gizdem Akdur Adam Gordon Anne Killett Jennifer Burton Ann-Marie Towers Stacey Rand Stephen Allan Lucy Anne Webster Kaat De Corte Liz Jones |
| author_facet | Claire Goodman Julienne Meyer Barbara Hanratty Lisa Irvine Arne Timon Wolters Richard James Brine Elizabeth Crellin Gizdem Akdur Adam Gordon Anne Killett Jennifer Burton Ann-Marie Towers Stacey Rand Stephen Allan Lucy Anne Webster Kaat De Corte Liz Jones |
| author_sort | Claire Goodman |
| collection | DOAJ |
| description | Introduction Health and care data are routinely collected about care home residents in England, yet there is no way to collate these data to inform benchmarking and improvement. The Developing research resources And minimum data set for Care Homes’ Adoption and use study has developed a prototype minimum data set (MDS) for piloting.Methods and analysis A mixed-methods longitudinal pilot study will be conducted in 60 care homes (approximately 960 residents) in 3 regions of England, using resident data from cloud-based digital care home records at two-time points. These will be linked to resident and care home level data held within routine National Health Service and social care data sets. Two rounds of focus groups with care home staff (n=8–10 per region) and additional interviews with external stakeholders (n=3 per region) will explore implementation and the perceived utility of the MDS. Data will be assessed for completeness and timeliness of completion. Descriptive statistics, including percentage floor and ceiling effects, will establish data quality. For validated scales, construct validity will be assessed by hypothesis testing and exploratory factor analysis will establish structural validity. Internal consistency will be established using Cronbach’s alpha. Longitudinal analysis of the pilot data will demonstrate the value of the MDS to each region. Qualitative data will be analysed inductively using thematic analysis to understand the complexities of implementing an MDS in care homes for older people.Ethics and dissemination The study has received ethical approval from the London Queen’s Square Research Ethics Committee (22/LO/0250). Informed consent is required for participation. Findings will be disseminated to: academics working on data use and integration in social care, care sector organisations, policy makers and commissioners. Findings will be published in peer-reviewed journals. Partner NIHR Applied Research Collaborations, the National Care Forum and the British Geriatrics Society will disseminate policy briefs. |
| format | Article |
| id | doaj-art-e915e5087e8545b9a7e35395b644fa2d |
| institution | OA Journals |
| issn | 2044-6055 |
| language | English |
| publishDate | 2023-02-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-e915e5087e8545b9a7e35395b644fa2d2025-08-20T02:02:44ZengBMJ Publishing GroupBMJ Open2044-60552023-02-0113210.1136/bmjopen-2023-071686Piloting of a minimum data set for older people living in care homes in England: protocol for a longitudinal, mixed-methods studyClaire Goodman0Julienne Meyer1Barbara Hanratty2Lisa Irvine3Arne Timon Wolters4Richard James Brine5Elizabeth Crellin6Gizdem Akdur7Adam Gordon8Anne Killett9Jennifer Burton10Ann-Marie Towers11Stacey Rand12Stephen Allan13Lucy Anne Webster14Kaat De Corte15Liz Jones16Centre for Research in Public Health and Community Care, University of Hertfordshire, Hatfield, UKCity University of London, London, UKPopulation Health Sciences Institute, Faculty of Medicine, Newcastle University, Newcastle upon Tyne, NE4 5PL, UKCentre for Research in Public Health and Community Care, University of Hertfordshire, Hatfield, UKImprovement Analytics Unit, The Health Foundation, London, UKImprovement Analytics Unit, The Health Foundation, London, UKData Analytics, The Health Foundation, London EC4Y 8AP, UKCentre for Research in Public health and Community Care (CRIPACC), University of Hertfordshire, Hatfield, UK1University of NottinghamSchool of Health Sciences, University of East Anglia, Norwich, UKSchool of Cardiovascular and Metabolic Health, University of Glasgow, Glasgow, UKCentre for Health Services Studies, University of Kent, Canterbury, UKPersonal Social Services Research Unit, University of Kent, Canterbury, UKPersonal Social Services Research Unit, University of Kent, Canterbury, UKCentre for Health Services Studies, University of Kent, Canterbury, UKImprovement Analytics Unit, The Health Foundation, London, UKNational Care Forum, Coventry, UKIntroduction Health and care data are routinely collected about care home residents in England, yet there is no way to collate these data to inform benchmarking and improvement. The Developing research resources And minimum data set for Care Homes’ Adoption and use study has developed a prototype minimum data set (MDS) for piloting.Methods and analysis A mixed-methods longitudinal pilot study will be conducted in 60 care homes (approximately 960 residents) in 3 regions of England, using resident data from cloud-based digital care home records at two-time points. These will be linked to resident and care home level data held within routine National Health Service and social care data sets. Two rounds of focus groups with care home staff (n=8–10 per region) and additional interviews with external stakeholders (n=3 per region) will explore implementation and the perceived utility of the MDS. Data will be assessed for completeness and timeliness of completion. Descriptive statistics, including percentage floor and ceiling effects, will establish data quality. For validated scales, construct validity will be assessed by hypothesis testing and exploratory factor analysis will establish structural validity. Internal consistency will be established using Cronbach’s alpha. Longitudinal analysis of the pilot data will demonstrate the value of the MDS to each region. Qualitative data will be analysed inductively using thematic analysis to understand the complexities of implementing an MDS in care homes for older people.Ethics and dissemination The study has received ethical approval from the London Queen’s Square Research Ethics Committee (22/LO/0250). Informed consent is required for participation. Findings will be disseminated to: academics working on data use and integration in social care, care sector organisations, policy makers and commissioners. Findings will be published in peer-reviewed journals. Partner NIHR Applied Research Collaborations, the National Care Forum and the British Geriatrics Society will disseminate policy briefs.https://bmjopen.bmj.com/content/13/2/e071686.full |
| spellingShingle | Claire Goodman Julienne Meyer Barbara Hanratty Lisa Irvine Arne Timon Wolters Richard James Brine Elizabeth Crellin Gizdem Akdur Adam Gordon Anne Killett Jennifer Burton Ann-Marie Towers Stacey Rand Stephen Allan Lucy Anne Webster Kaat De Corte Liz Jones Piloting of a minimum data set for older people living in care homes in England: protocol for a longitudinal, mixed-methods study BMJ Open |
| title | Piloting of a minimum data set for older people living in care homes in England: protocol for a longitudinal, mixed-methods study |
| title_full | Piloting of a minimum data set for older people living in care homes in England: protocol for a longitudinal, mixed-methods study |
| title_fullStr | Piloting of a minimum data set for older people living in care homes in England: protocol for a longitudinal, mixed-methods study |
| title_full_unstemmed | Piloting of a minimum data set for older people living in care homes in England: protocol for a longitudinal, mixed-methods study |
| title_short | Piloting of a minimum data set for older people living in care homes in England: protocol for a longitudinal, mixed-methods study |
| title_sort | piloting of a minimum data set for older people living in care homes in england protocol for a longitudinal mixed methods study |
| url | https://bmjopen.bmj.com/content/13/2/e071686.full |
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