Pregnancy-related issues in rare and low-prevalence diseases: results of ERN transversal working group on pregnancy and family planning survey

Pregnancy-related issues in rare and low-prevalence diseases: results of ERN transversal working group on pregnancy and family planning survey

Abstract Background Rare and complex diseases can have a significant impact on family life, and managing the reproductive aspects of patients of childbearing age with rare diseases is often difficult and complex. A European Reference Network (ERN) Transversal Working Group (WG) on Pregnancy and Fami...

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Main Authors: Dina Zucchi, Diana Marinello, Chiara Tani, Giovanni Fulvio, Silvia Aguilera, Alexandra Benachi, Ruth Biller, Ignacio Blanco, Petra Borgards, Marie-Claude Boiteux, Maria Luisa Brandi, Ester Costafreda, Joao E. Fonseca, Micaela Fredi, Violeta Iotova, Simone Louisse, Cecilia Nalli, Michela Onali, Beverley Power, Christine Rousset-Jablonski, Dominique Sturz, Angela Tincani, Ana Vieira, Susana Capela, Dorica Dan, Julie De Backer, Christine de Die-Smulders, Andreas Dufke, Estelle Lecointe Artzner, Giuseppe Limongelli, Birgit Lorenz, Wiebke Papenthin, María Jesús Pascau, Johanna Raidt, Isabelle Ray-Coquard, Rachel Rimmer, Claas Röhl, Holm Schneider, Tet Yap, Rosaria Talarico, Marta Mosca
Format: Article
Language:English
Published: BMC 2025-03-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Rare diseases
Pregnancy-related issues
Unmet needs
Online Access:https://doi.org/10.1186/s13023-024-03435-z
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