Understanding symptoms in the lives of adult patients with acute or chronic illness: a phenomenological study of patient experiences

Purpose Exploring how patients with acute and/or chronic illnesses experience symptoms. Methods Using a phenomenological approach, interviews were conducted with patients to gain insights into their lived experiences and the meanings they attribute to symptoms. Phenomenological concepts of lifeworld...

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Main Authors: Malene Missel, Linda Kahr Andersen, Camilla Corvinius, Maria Camilla Mathiasen, Pernille Orloff Donsel, Mai Nanna Schønau, Helle Pappot, Nanna Witting, Melissa Culligan, Giulia Locatelli, Mary Jarden, Karin Piil
Format: Article
Language:English
Published: Taylor & Francis Group 2025-12-01
Series:International Journal of Qualitative Studies on Health & Well-Being
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Online Access:http://dx.doi.org/10.1080/17482631.2025.2534871
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author Malene Missel
Linda Kahr Andersen
Camilla Corvinius
Maria Camilla Mathiasen
Pernille Orloff Donsel
Mai Nanna Schønau
Helle Pappot
Nanna Witting
Melissa Culligan
Giulia Locatelli
Mary Jarden
Karin Piil
author_facet Malene Missel
Linda Kahr Andersen
Camilla Corvinius
Maria Camilla Mathiasen
Pernille Orloff Donsel
Mai Nanna Schønau
Helle Pappot
Nanna Witting
Melissa Culligan
Giulia Locatelli
Mary Jarden
Karin Piil
author_sort Malene Missel
collection DOAJ
description Purpose Exploring how patients with acute and/or chronic illnesses experience symptoms. Methods Using a phenomenological approach, interviews were conducted with patients to gain insights into their lived experiences and the meanings they attribute to symptoms. Phenomenological concepts of lifeworld, body and embodiment, intentionality, and existential anxiety provide lenses for examining the realities of patients’ experiences. Results Three central themes emerged from the Ricoeur inspired analysis: Perception of an altered body presence, which highlights how illness transforms the perception of the body from a “silent” part of the self to an intrusive presence; Symptoms as a threat to existence, illuminating how symptoms confront patients with vulnerability, mortality, and existential uncertainty; and Loss and reclaiming of control, describing the ongoing struggle patients face between feelings of helplessness and efforts to regain autonomy in daily life.Symptoms are not merely indicators of illness but are intertwined with patients’ identities and their sense of meaning in life. Conclusion Insights emphasize the importance of addressing both the biological and existential dimensions of symptoms. Face-to-face clinical encounters offer a shared opportunity to create reflective spacesValidating coping strategies and supporting patients in reclaiming control, clinicians can nurture resilience, dignity, and a comprehensive approach to symptom (self)management.
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spelling doaj-art-e758a4cf16f44281b012df54ffc3e7f52025-08-20T03:40:30ZengTaylor & Francis GroupInternational Journal of Qualitative Studies on Health & Well-Being1748-26231748-26312025-12-0120110.1080/17482631.2025.25348712534871Understanding symptoms in the lives of adult patients with acute or chronic illness: a phenomenological study of patient experiencesMalene Missel0Linda Kahr Andersen1Camilla Corvinius2Maria Camilla Mathiasen3Pernille Orloff Donsel4Mai Nanna Schønau5Helle Pappot6Nanna Witting7Melissa Culligan8Giulia Locatelli9Mary Jarden10Karin Piil11Copenhagen University Hospital – RigshospitaletCopenhagen University Hospital – RigshospitaletCopenhagen University Hospital – RigshospitaletCopenhagen University Hospital – RigshospitaletCopenhagen University Hospital – RigshospitaletCopenhagen University Hospital – RigshospitaletUniversity of CopenhagenUniversity of CopenhagenTemple University Hospital PhiladelphiaUniversity of Milano-BicoccaUniversity of CopenhagenUniversity of CopenhagenPurpose Exploring how patients with acute and/or chronic illnesses experience symptoms. Methods Using a phenomenological approach, interviews were conducted with patients to gain insights into their lived experiences and the meanings they attribute to symptoms. Phenomenological concepts of lifeworld, body and embodiment, intentionality, and existential anxiety provide lenses for examining the realities of patients’ experiences. Results Three central themes emerged from the Ricoeur inspired analysis: Perception of an altered body presence, which highlights how illness transforms the perception of the body from a “silent” part of the self to an intrusive presence; Symptoms as a threat to existence, illuminating how symptoms confront patients with vulnerability, mortality, and existential uncertainty; and Loss and reclaiming of control, describing the ongoing struggle patients face between feelings of helplessness and efforts to regain autonomy in daily life.Symptoms are not merely indicators of illness but are intertwined with patients’ identities and their sense of meaning in life. Conclusion Insights emphasize the importance of addressing both the biological and existential dimensions of symptoms. Face-to-face clinical encounters offer a shared opportunity to create reflective spacesValidating coping strategies and supporting patients in reclaiming control, clinicians can nurture resilience, dignity, and a comprehensive approach to symptom (self)management.http://dx.doi.org/10.1080/17482631.2025.2534871symptom sciencephenomenologyricoeurqualitative studyacute and chronic illnesssymptom experiences
spellingShingle Malene Missel
Linda Kahr Andersen
Camilla Corvinius
Maria Camilla Mathiasen
Pernille Orloff Donsel
Mai Nanna Schønau
Helle Pappot
Nanna Witting
Melissa Culligan
Giulia Locatelli
Mary Jarden
Karin Piil
Understanding symptoms in the lives of adult patients with acute or chronic illness: a phenomenological study of patient experiences
International Journal of Qualitative Studies on Health & Well-Being
symptom science
phenomenology
ricoeur
qualitative study
acute and chronic illness
symptom experiences
title Understanding symptoms in the lives of adult patients with acute or chronic illness: a phenomenological study of patient experiences
title_full Understanding symptoms in the lives of adult patients with acute or chronic illness: a phenomenological study of patient experiences
title_fullStr Understanding symptoms in the lives of adult patients with acute or chronic illness: a phenomenological study of patient experiences
title_full_unstemmed Understanding symptoms in the lives of adult patients with acute or chronic illness: a phenomenological study of patient experiences
title_short Understanding symptoms in the lives of adult patients with acute or chronic illness: a phenomenological study of patient experiences
title_sort understanding symptoms in the lives of adult patients with acute or chronic illness a phenomenological study of patient experiences
topic symptom science
phenomenology
ricoeur
qualitative study
acute and chronic illness
symptom experiences
url http://dx.doi.org/10.1080/17482631.2025.2534871
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