With great (statistical) power comes great responsibility: A comment on the ethics of using administrative data to investigate marginalised populations
As health data infrastructure improves, we have the opportunity to link increasing volumes of data in order to investigate important health problems. This is perhaps most pertinent when looking at the experiences and outcomes of our most disadvantaged groups, who are often invisible in data obtained...
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| Main Authors: | , , , , , , , |
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| Format: | Article |
| Language: | English |
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SAGE Publishing
2024-12-01
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| Series: | Big Data & Society |
| Online Access: | https://doi.org/10.1177/20539517241296058 |
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| _version_ | 1850058076818767872 |
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| author | Louise Marryat Ruchika Gajwani Sharon Graham Marion Henderson Christine Puckering Lucy Thompson Philip Wilson Helen Minnis |
| author_facet | Louise Marryat Ruchika Gajwani Sharon Graham Marion Henderson Christine Puckering Lucy Thompson Philip Wilson Helen Minnis |
| author_sort | Louise Marryat |
| collection | DOAJ |
| description | As health data infrastructure improves, we have the opportunity to link increasing volumes of data in order to investigate important health problems. This is perhaps most pertinent when looking at the experiences and outcomes of our most disadvantaged groups, who are often invisible in data obtained through primary research. Whilst these data offer enormous opportunity, there are also ethical implications in their use, which are less frequently discussed than in relation to their qualitative counterparts. As a diverse group of clinicians and academics working across public health, we share our experience and understanding of how we can improve our reflexivity in health data science and ensure that research in this area is ethically conducted in co-production with the people whose data we are using. We discuss the potential opportunities, challenges and impacts of using administrative data to investigate marginalised populations. |
| format | Article |
| id | doaj-art-e5c5ac38a03b44da995c59dba2b6be57 |
| institution | DOAJ |
| issn | 2053-9517 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Big Data & Society |
| spelling | doaj-art-e5c5ac38a03b44da995c59dba2b6be572025-08-20T02:51:15ZengSAGE PublishingBig Data & Society2053-95172024-12-011110.1177/20539517241296058With great (statistical) power comes great responsibility: A comment on the ethics of using administrative data to investigate marginalised populationsLouise Marryat0Ruchika Gajwani1Sharon Graham2Marion Henderson3Christine Puckering4Lucy Thompson5Philip Wilson6Helen Minnis7 School of Health Sciences, , Dundee, UK School of Health and Wellbeing, , Glasgow, UK School of Health and Wellbeing, , Glasgow, UK School of Social Work and Social Policy, , Glasgow, UK PSPartnership (Scotland) Ltd, UK , Aberdeen, UK Centre for Research and Education in General Practice, University of Copenhagen, Copenhagen, Denmark School of Health and Wellbeing, , Glasgow, UKAs health data infrastructure improves, we have the opportunity to link increasing volumes of data in order to investigate important health problems. This is perhaps most pertinent when looking at the experiences and outcomes of our most disadvantaged groups, who are often invisible in data obtained through primary research. Whilst these data offer enormous opportunity, there are also ethical implications in their use, which are less frequently discussed than in relation to their qualitative counterparts. As a diverse group of clinicians and academics working across public health, we share our experience and understanding of how we can improve our reflexivity in health data science and ensure that research in this area is ethically conducted in co-production with the people whose data we are using. We discuss the potential opportunities, challenges and impacts of using administrative data to investigate marginalised populations.https://doi.org/10.1177/20539517241296058 |
| spellingShingle | Louise Marryat Ruchika Gajwani Sharon Graham Marion Henderson Christine Puckering Lucy Thompson Philip Wilson Helen Minnis With great (statistical) power comes great responsibility: A comment on the ethics of using administrative data to investigate marginalised populations Big Data & Society |
| title | With great (statistical) power comes
great responsibility: A comment on the ethics of using administrative data to investigate marginalised populations |
| title_full | With great (statistical) power comes
great responsibility: A comment on the ethics of using administrative data to investigate marginalised populations |
| title_fullStr | With great (statistical) power comes
great responsibility: A comment on the ethics of using administrative data to investigate marginalised populations |
| title_full_unstemmed | With great (statistical) power comes
great responsibility: A comment on the ethics of using administrative data to investigate marginalised populations |
| title_short | With great (statistical) power comes
great responsibility: A comment on the ethics of using administrative data to investigate marginalised populations |
| title_sort | with great statistical power comes great responsibility a comment on the ethics of using administrative data to investigate marginalised populations |
| url | https://doi.org/10.1177/20539517241296058 |
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