Fidelity of virtual self-management programs in pediatric autoimmune diseases: A scoping review protocol
Pediatric autoimmune disorders represent chronic conditions in which the immune system erroneously targets healthy tissues, affecting children and adolescents. Virtual self-management programs have emerged as complementary approaches to traditional healthcare modalities, aimed at improving patient e...
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Elsevier
2025-12-01
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| Series: | MethodsX |
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| Online Access: | http://www.sciencedirect.com/science/article/pii/S2215016125002924 |
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| author | Babatope O. Adebiyi Kathryn A. Birnie Jessica Booth Lily S. Lim Dax Rumsey Maria Santana Jennifer N. Stinson Heinrike Schmeling |
| author_facet | Babatope O. Adebiyi Kathryn A. Birnie Jessica Booth Lily S. Lim Dax Rumsey Maria Santana Jennifer N. Stinson Heinrike Schmeling |
| author_sort | Babatope O. Adebiyi |
| collection | DOAJ |
| description | Pediatric autoimmune disorders represent chronic conditions in which the immune system erroneously targets healthy tissues, affecting children and adolescents. Virtual self-management programs have emerged as complementary approaches to traditional healthcare modalities, aimed at improving patient engagement and optimizing outcomes. However, the fidelity of these programs—defined as their adherence to intended design and delivery—remains underexplored, particularly in pediatric populations. This scoping review aims to provide an overview of the fidelity of virtual self-management programs tailored for children with autoimmune diseases. It will systematically document methodologies used to assess fidelity, evaluate its impact on program execution, and analyze its influence on patient outcomes. The review follows the Joanna Briggs Institute guidelines and employs the PRISMA-ScR framework. Comprehensive searches will be conducted through PubMed, CINAHL, Embase, PsycINFO, Web of Science, and Education Resources Information Center (ERIC). Eligible studies will focus on pediatric patients, with data extraction encompassing population characteristics, program features, fidelity metrics, and implementation determinants. The review will synthesize current evidence on fidelity in virtual self-management programs for pediatric autoimmune diseases, identify research gaps, and propose directions for future studies. These findings aim to inform program development, enhance implementation fidelity, and improve therapeutic outcomes in pediatric autoimmune care. • Program Fidelity Assessment: This review aims to systematically document methodologies used to assess fidelity in virtual self-management programs, evaluating their impact on program execution and patient outcomes. • Implementation Strategies: It will analyze existing literature on implementation strategies for virtual programs, identifying factors that influence their delivery and effectiveness. • Future Directions: The review seeks to identify research gaps and propose directions for future studies, informing the development of more effective virtual self-management programs for children with autoimmune diseases. |
| format | Article |
| id | doaj-art-e5b1a5038cd84155a4aee84fa793c9cc |
| institution | DOAJ |
| issn | 2215-0161 |
| language | English |
| publishDate | 2025-12-01 |
| publisher | Elsevier |
| record_format | Article |
| series | MethodsX |
| spelling | doaj-art-e5b1a5038cd84155a4aee84fa793c9cc2025-08-20T03:24:04ZengElsevierMethodsX2215-01612025-12-011510344610.1016/j.mex.2025.103446Fidelity of virtual self-management programs in pediatric autoimmune diseases: A scoping review protocolBabatope O. Adebiyi0Kathryn A. Birnie1Jessica Booth2Lily S. Lim3Dax Rumsey4Maria Santana5Jennifer N. Stinson6Heinrike Schmeling7Department of Pediatrics, Cumming School of Medicine, University of Calgary, Calgary, Canada; Corresponding author.Department of Community Health Sciences, University of Calgary, Calgary, Canada; Department of Anesthesiology, Perioperative, and Pain Medicine, University of Calgary, Calgary, CanadaDepartment of Pediatrics, Cumming School of Medicine, University of Calgary, Calgary, CanadaChildren’s Hospital Research Institute of Manitoba, Department of Pediatrics, University of Manitoba, Winnipeg, CanadaSection of Rheumatology, Department of Pediatrics, University of Alberta, Edmonton, CanadaDepartment of Pediatrics, Cumming School of Medicine, University of Calgary, Calgary, Canada; Department of Community Health Sciences, University of Calgary, Calgary, CanadaResearch Institute, The Hospital for Sick Children and the Lawrence S, Bloomberg Faculty of Nursing, University of Toronto, Toronto, CanadaDepartment of Pediatrics, Cumming School of Medicine, University of Calgary, Calgary, Canada; Alberta Children's Hospital and McCaig Research Institutes, Cumming School of Medicine, University of Calgary, Calgary, CanadaPediatric autoimmune disorders represent chronic conditions in which the immune system erroneously targets healthy tissues, affecting children and adolescents. Virtual self-management programs have emerged as complementary approaches to traditional healthcare modalities, aimed at improving patient engagement and optimizing outcomes. However, the fidelity of these programs—defined as their adherence to intended design and delivery—remains underexplored, particularly in pediatric populations. This scoping review aims to provide an overview of the fidelity of virtual self-management programs tailored for children with autoimmune diseases. It will systematically document methodologies used to assess fidelity, evaluate its impact on program execution, and analyze its influence on patient outcomes. The review follows the Joanna Briggs Institute guidelines and employs the PRISMA-ScR framework. Comprehensive searches will be conducted through PubMed, CINAHL, Embase, PsycINFO, Web of Science, and Education Resources Information Center (ERIC). Eligible studies will focus on pediatric patients, with data extraction encompassing population characteristics, program features, fidelity metrics, and implementation determinants. The review will synthesize current evidence on fidelity in virtual self-management programs for pediatric autoimmune diseases, identify research gaps, and propose directions for future studies. These findings aim to inform program development, enhance implementation fidelity, and improve therapeutic outcomes in pediatric autoimmune care. • Program Fidelity Assessment: This review aims to systematically document methodologies used to assess fidelity in virtual self-management programs, evaluating their impact on program execution and patient outcomes. • Implementation Strategies: It will analyze existing literature on implementation strategies for virtual programs, identifying factors that influence their delivery and effectiveness. • Future Directions: The review seeks to identify research gaps and propose directions for future studies, informing the development of more effective virtual self-management programs for children with autoimmune diseases.http://www.sciencedirect.com/science/article/pii/S2215016125002924Fidelity of Virtual Self-Management Programs in Pediatric Autoimmune Diseases: A Scoping Review Protocol |
| spellingShingle | Babatope O. Adebiyi Kathryn A. Birnie Jessica Booth Lily S. Lim Dax Rumsey Maria Santana Jennifer N. Stinson Heinrike Schmeling Fidelity of virtual self-management programs in pediatric autoimmune diseases: A scoping review protocol MethodsX Fidelity of Virtual Self-Management Programs in Pediatric Autoimmune Diseases: A Scoping Review Protocol |
| title | Fidelity of virtual self-management programs in pediatric autoimmune diseases: A scoping review protocol |
| title_full | Fidelity of virtual self-management programs in pediatric autoimmune diseases: A scoping review protocol |
| title_fullStr | Fidelity of virtual self-management programs in pediatric autoimmune diseases: A scoping review protocol |
| title_full_unstemmed | Fidelity of virtual self-management programs in pediatric autoimmune diseases: A scoping review protocol |
| title_short | Fidelity of virtual self-management programs in pediatric autoimmune diseases: A scoping review protocol |
| title_sort | fidelity of virtual self management programs in pediatric autoimmune diseases a scoping review protocol |
| topic | Fidelity of Virtual Self-Management Programs in Pediatric Autoimmune Diseases: A Scoping Review Protocol |
| url | http://www.sciencedirect.com/science/article/pii/S2215016125002924 |
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