From Hospital to Home: Applying a Co‐Design Approach to Determine the Key Components of an Intervention to Support Transition‐To‐Home After Stroke

ABSTRACT Background People with stroke and their families face numerous challenges as they leave hospital to return home, often experiencing multifaceted unmet needs and feelings of abandonment. The essential elements of an intervention intended to support transition‐to‐home after stroke are unclear...

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Main Authors: Geraldine O'Callaghan, Martin Fahy, Patricia Hall, Deirdre McCartan, Peter Langhorne, Rose Galvin, Frances Horgan
Format: Article
Language:English
Published: Wiley 2024-10-01
Series:Health Expectations
Subjects:
Online Access:https://doi.org/10.1111/hex.70040
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author Geraldine O'Callaghan
Martin Fahy
Patricia Hall
Deirdre McCartan
Peter Langhorne
Rose Galvin
Frances Horgan
author_facet Geraldine O'Callaghan
Martin Fahy
Patricia Hall
Deirdre McCartan
Peter Langhorne
Rose Galvin
Frances Horgan
author_sort Geraldine O'Callaghan
collection DOAJ
description ABSTRACT Background People with stroke and their families face numerous challenges as they leave hospital to return home, often experiencing multifaceted unmet needs and feelings of abandonment. The essential elements of an intervention intended to support transition‐to‐home after stroke are unclear. Objective The aim of the project was to engage in a co‐design process to identify the key components of a pragmatic intervention to inform a transition‐to‐home support pathway following stroke. Materials and Methods The study was conducted using a co‐design process engaging multiple stakeholders, including 12 people with stroke, 6 caregivers, 26 healthcare professionals and 6 individuals from stroke organisations in a series of three workshops, facilitated by the primary researcher, a wider team of researchers and an individual with lived experience of stroke. World Café methodology and Liberating Structures facilitation techniques were adapted to meet the aim of the workshops. Data collection involved observations during workshops, followed by summarising of findings and reaching group consensus agreement on outputs. Facilitated consensus on a prioritisation task resulted in the final output. Results The co‐design group identified 10 key intervention components of a transition‐to‐home support pathway following stroke. These components focussed on enhancing collaboration, streamlining transition processes and facilitating post‐discharge support. While a stroke coordinator was considered a top priority, increased cross‐setting information sharing and community in‐reach, where community‐based healthcare staff extended their services into hospital settings to provide continuity care, were considered most feasible to implement. Conclusion The co‐design approach, involving a multi‐stakeholder group and strengthened by patient and public involvement, ensured that the identified transition‐to‐home intervention components are meaningful and relevant for people with stroke and their families. Further co‐design workshops are required to refine, and feasibility test the components for generalisability within the wider Irish healthcare setting. Patient or Public Contribution Individuals who have experienced a stroke actively contributed to shaping the methodological design of this study and the ethics process. They engaged in the analysis of co‐design outputs and provided input for the discussion and recommendations regarding future research. An individual who had experienced a stroke formed part of the research team, co‐facilitating the co‐design workshops and co‐authoring this article.
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spelling doaj-art-e5aab31c032340e7bee9d51c2e6b8d0e2025-08-20T02:11:28ZengWileyHealth Expectations1369-65131369-76252024-10-01275n/an/a10.1111/hex.70040From Hospital to Home: Applying a Co‐Design Approach to Determine the Key Components of an Intervention to Support Transition‐To‐Home After StrokeGeraldine O'Callaghan0Martin Fahy1Patricia Hall2Deirdre McCartan3Peter Langhorne4Rose Galvin5Frances Horgan6iPASTAR Collaborative Doctoral Award Programme, School of Population Health RCSI University of Medicine and Health Sciences Dublin IrelandiPASTAR Collaborative Doctoral Award Programme, School of Population Health RCSI University of Medicine and Health Sciences Dublin IrelandiPASTAR Collaborative Doctoral Award Programme, School of Population Health RCSI University of Medicine and Health Sciences Dublin IrelandiPASTAR Collaborative Doctoral Award Programme, School of Population Health RCSI University of Medicine and Health Sciences Dublin IrelandSchool of Cardiovascular and Metabolic Health (SCMH) University of Glasgow Glasgow UKSchool of Allied Health, Faculty of Education and Health Sciences, Ageing Research Centre, Health Research Institute University of Limerick Limerick IrelandiPASTAR Collaborative Doctoral Award Programme, School of Physiotherapy RCSI University of Medicine and Health Sciences Dublin IrelandABSTRACT Background People with stroke and their families face numerous challenges as they leave hospital to return home, often experiencing multifaceted unmet needs and feelings of abandonment. The essential elements of an intervention intended to support transition‐to‐home after stroke are unclear. Objective The aim of the project was to engage in a co‐design process to identify the key components of a pragmatic intervention to inform a transition‐to‐home support pathway following stroke. Materials and Methods The study was conducted using a co‐design process engaging multiple stakeholders, including 12 people with stroke, 6 caregivers, 26 healthcare professionals and 6 individuals from stroke organisations in a series of three workshops, facilitated by the primary researcher, a wider team of researchers and an individual with lived experience of stroke. World Café methodology and Liberating Structures facilitation techniques were adapted to meet the aim of the workshops. Data collection involved observations during workshops, followed by summarising of findings and reaching group consensus agreement on outputs. Facilitated consensus on a prioritisation task resulted in the final output. Results The co‐design group identified 10 key intervention components of a transition‐to‐home support pathway following stroke. These components focussed on enhancing collaboration, streamlining transition processes and facilitating post‐discharge support. While a stroke coordinator was considered a top priority, increased cross‐setting information sharing and community in‐reach, where community‐based healthcare staff extended their services into hospital settings to provide continuity care, were considered most feasible to implement. Conclusion The co‐design approach, involving a multi‐stakeholder group and strengthened by patient and public involvement, ensured that the identified transition‐to‐home intervention components are meaningful and relevant for people with stroke and their families. Further co‐design workshops are required to refine, and feasibility test the components for generalisability within the wider Irish healthcare setting. Patient or Public Contribution Individuals who have experienced a stroke actively contributed to shaping the methodological design of this study and the ethics process. They engaged in the analysis of co‐design outputs and provided input for the discussion and recommendations regarding future research. An individual who had experienced a stroke formed part of the research team, co‐facilitating the co‐design workshops and co‐authoring this article.https://doi.org/10.1111/hex.70040co‐design processhospital‐to‐homepatient and public involvement and engagementstroketransition
spellingShingle Geraldine O'Callaghan
Martin Fahy
Patricia Hall
Deirdre McCartan
Peter Langhorne
Rose Galvin
Frances Horgan
From Hospital to Home: Applying a Co‐Design Approach to Determine the Key Components of an Intervention to Support Transition‐To‐Home After Stroke
Health Expectations
co‐design process
hospital‐to‐home
patient and public involvement and engagement
stroke
transition
title From Hospital to Home: Applying a Co‐Design Approach to Determine the Key Components of an Intervention to Support Transition‐To‐Home After Stroke
title_full From Hospital to Home: Applying a Co‐Design Approach to Determine the Key Components of an Intervention to Support Transition‐To‐Home After Stroke
title_fullStr From Hospital to Home: Applying a Co‐Design Approach to Determine the Key Components of an Intervention to Support Transition‐To‐Home After Stroke
title_full_unstemmed From Hospital to Home: Applying a Co‐Design Approach to Determine the Key Components of an Intervention to Support Transition‐To‐Home After Stroke
title_short From Hospital to Home: Applying a Co‐Design Approach to Determine the Key Components of an Intervention to Support Transition‐To‐Home After Stroke
title_sort from hospital to home applying a co design approach to determine the key components of an intervention to support transition to home after stroke
topic co‐design process
hospital‐to‐home
patient and public involvement and engagement
stroke
transition
url https://doi.org/10.1111/hex.70040
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