The experience of seeking recovery interventions for spinal cord injury during the first year: barriers and facilitators
IntroductionSpinal cord injury (SCI) is life changing. Recovery is multi-faceted. Knowing that most injuries are incomplete with potential for meaningful recovery and that there is a limited time during which that recovery occurs, maximizing recovery potential early is essential. The objective of th...
Saved in:
| Main Authors: | , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Frontiers Media S.A.
2025-05-01
|
| Series: | Frontiers in Neurology |
| Subjects: | |
| Online Access: | https://www.frontiersin.org/articles/10.3389/fneur.2025.1541056/full |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1850142275229712384 |
|---|---|
| author | Kim D. Anderson Kim D. Anderson Anne M. Bryden Anne M. Bryden Brian K. Gran Brian K. Gran Brian K. Gran Susan W. Hinze Mary Ann Richmond |
| author_facet | Kim D. Anderson Kim D. Anderson Anne M. Bryden Anne M. Bryden Brian K. Gran Brian K. Gran Brian K. Gran Susan W. Hinze Mary Ann Richmond |
| author_sort | Kim D. Anderson |
| collection | DOAJ |
| description | IntroductionSpinal cord injury (SCI) is life changing. Recovery is multi-faceted. Knowing that most injuries are incomplete with potential for meaningful recovery and that there is a limited time during which that recovery occurs, maximizing recovery potential early is essential. The objective of this study was to investigate the experience of newly injured people with SCI and their support persons (SP) while they seek out recovery options during the first-year post injury.MethodsSemi-structured interviews were conducted at three intervals across the first year after having sustained SCI in both Veterans and civilians as well as their SP. Interviews were conducted utilizing an interview guide grounded in two frameworks. Interviews were recorded, transcribed, and deidentified. Codes were developed, revised, or added using a constructivist, grounded theory, analytic approach.ResultsThe main source of recovery options was the inpatient rehabilitation team, with delayed access to research teams and people living with SCI. Insurance and institutions are barriers or facilitators to accessing recovery interventions with clear differences between Veteran and civilian healthcare systems. People and knowledge are facilitators. Interest in clinical trials for recovery grows over time, but there are differences based on race. Finding clinical trials and determining eligibility are significant knowledge barriers to the community.DiscussionThis study has revealed knowledge and power imbalances that significantly impede access to recovery interventions sought by people living with SCI and their support persons during their first year after injury. There are clear differences in the experiences of Veterans and civilians. |
| format | Article |
| id | doaj-art-e431abcf07b54335945f854fe2db8d9b |
| institution | OA Journals |
| issn | 1664-2295 |
| language | English |
| publishDate | 2025-05-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Neurology |
| spelling | doaj-art-e431abcf07b54335945f854fe2db8d9b2025-08-20T02:29:08ZengFrontiers Media S.A.Frontiers in Neurology1664-22952025-05-011610.3389/fneur.2025.15410561541056The experience of seeking recovery interventions for spinal cord injury during the first year: barriers and facilitatorsKim D. Anderson0Kim D. Anderson1Anne M. Bryden2Anne M. Bryden3Brian K. Gran4Brian K. Gran5Brian K. Gran6Susan W. Hinze7Mary Ann Richmond8Department of Physical Medicine and Rehabilitation, Case Western Reserve University School of Medicine, Cleveland, OH, United StatesMetroHealth Center for Rehabilitation Research, The MetroHealth System, Cleveland, OH, United StatesDepartment of Physical Medicine and Rehabilitation, Case Western Reserve University School of Medicine, Cleveland, OH, United StatesMetroHealth Center for Rehabilitation Research, The MetroHealth System, Cleveland, OH, United StatesDepartment of Sociology, Case Western Reserve University College of Arts and Sciences, Cleveland, OH, United StatesSchool of Law, Case Western Reserve University, Cleveland, OH, United StatesJack, Joseph and Morton Mandel School of Applied Social Sciences, Case Western Reserve University, Cleveland, OH, United StatesDepartment of Sociology, Case Western Reserve University College of Arts and Sciences, Cleveland, OH, United StatesSpinal Cord Injury/Disorders Center, Veteran Affairs Northeast Ohio Healthcare System, Cleveland, OH, United StatesIntroductionSpinal cord injury (SCI) is life changing. Recovery is multi-faceted. Knowing that most injuries are incomplete with potential for meaningful recovery and that there is a limited time during which that recovery occurs, maximizing recovery potential early is essential. The objective of this study was to investigate the experience of newly injured people with SCI and their support persons (SP) while they seek out recovery options during the first-year post injury.MethodsSemi-structured interviews were conducted at three intervals across the first year after having sustained SCI in both Veterans and civilians as well as their SP. Interviews were conducted utilizing an interview guide grounded in two frameworks. Interviews were recorded, transcribed, and deidentified. Codes were developed, revised, or added using a constructivist, grounded theory, analytic approach.ResultsThe main source of recovery options was the inpatient rehabilitation team, with delayed access to research teams and people living with SCI. Insurance and institutions are barriers or facilitators to accessing recovery interventions with clear differences between Veteran and civilian healthcare systems. People and knowledge are facilitators. Interest in clinical trials for recovery grows over time, but there are differences based on race. Finding clinical trials and determining eligibility are significant knowledge barriers to the community.DiscussionThis study has revealed knowledge and power imbalances that significantly impede access to recovery interventions sought by people living with SCI and their support persons during their first year after injury. There are clear differences in the experiences of Veterans and civilians.https://www.frontiersin.org/articles/10.3389/fneur.2025.1541056/fullspinal cord injuryaccess to carerecovery interventionsclinical trialssupport personbarriers to care |
| spellingShingle | Kim D. Anderson Kim D. Anderson Anne M. Bryden Anne M. Bryden Brian K. Gran Brian K. Gran Brian K. Gran Susan W. Hinze Mary Ann Richmond The experience of seeking recovery interventions for spinal cord injury during the first year: barriers and facilitators Frontiers in Neurology spinal cord injury access to care recovery interventions clinical trials support person barriers to care |
| title | The experience of seeking recovery interventions for spinal cord injury during the first year: barriers and facilitators |
| title_full | The experience of seeking recovery interventions for spinal cord injury during the first year: barriers and facilitators |
| title_fullStr | The experience of seeking recovery interventions for spinal cord injury during the first year: barriers and facilitators |
| title_full_unstemmed | The experience of seeking recovery interventions for spinal cord injury during the first year: barriers and facilitators |
| title_short | The experience of seeking recovery interventions for spinal cord injury during the first year: barriers and facilitators |
| title_sort | experience of seeking recovery interventions for spinal cord injury during the first year barriers and facilitators |
| topic | spinal cord injury access to care recovery interventions clinical trials support person barriers to care |
| url | https://www.frontiersin.org/articles/10.3389/fneur.2025.1541056/full |
| work_keys_str_mv | AT kimdanderson theexperienceofseekingrecoveryinterventionsforspinalcordinjuryduringthefirstyearbarriersandfacilitators AT kimdanderson theexperienceofseekingrecoveryinterventionsforspinalcordinjuryduringthefirstyearbarriersandfacilitators AT annembryden theexperienceofseekingrecoveryinterventionsforspinalcordinjuryduringthefirstyearbarriersandfacilitators AT annembryden theexperienceofseekingrecoveryinterventionsforspinalcordinjuryduringthefirstyearbarriersandfacilitators AT briankgran theexperienceofseekingrecoveryinterventionsforspinalcordinjuryduringthefirstyearbarriersandfacilitators AT briankgran theexperienceofseekingrecoveryinterventionsforspinalcordinjuryduringthefirstyearbarriersandfacilitators AT briankgran theexperienceofseekingrecoveryinterventionsforspinalcordinjuryduringthefirstyearbarriersandfacilitators AT susanwhinze theexperienceofseekingrecoveryinterventionsforspinalcordinjuryduringthefirstyearbarriersandfacilitators AT maryannrichmond theexperienceofseekingrecoveryinterventionsforspinalcordinjuryduringthefirstyearbarriersandfacilitators AT kimdanderson experienceofseekingrecoveryinterventionsforspinalcordinjuryduringthefirstyearbarriersandfacilitators AT kimdanderson experienceofseekingrecoveryinterventionsforspinalcordinjuryduringthefirstyearbarriersandfacilitators AT annembryden experienceofseekingrecoveryinterventionsforspinalcordinjuryduringthefirstyearbarriersandfacilitators AT annembryden experienceofseekingrecoveryinterventionsforspinalcordinjuryduringthefirstyearbarriersandfacilitators AT briankgran experienceofseekingrecoveryinterventionsforspinalcordinjuryduringthefirstyearbarriersandfacilitators AT briankgran experienceofseekingrecoveryinterventionsforspinalcordinjuryduringthefirstyearbarriersandfacilitators AT briankgran experienceofseekingrecoveryinterventionsforspinalcordinjuryduringthefirstyearbarriersandfacilitators AT susanwhinze experienceofseekingrecoveryinterventionsforspinalcordinjuryduringthefirstyearbarriersandfacilitators AT maryannrichmond experienceofseekingrecoveryinterventionsforspinalcordinjuryduringthefirstyearbarriersandfacilitators |