Keep an Eye on Next Generation Sequencing (NGS) Technology: Secondary Findings and Differential Diagnosis in Inherited Retinal Dystrophies (IRDs)

<b>Background</b>: Next Generation Sequencing (NGS) Technology has represented a revolution in the molecular characterization of Inherited Retinal Dystrophies (IRDs), which are among the most genetically and phenotypically heterogeneous conditions. NGS has allowed the characterization of...

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Main Authors: Fabiana D’Esposito, Matteo Capobianco, Caterina Gagliano, Alessandro Avitabile, Giuseppe Gagliano, Gabriella Esposito, Edoardo Dammino, Antonio Carotenuto, Marco Zeppieri
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Language:English
Published: MDPI AG 2025-05-01
Series:Biomedicines
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Online Access:https://www.mdpi.com/2227-9059/13/5/1117
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author Fabiana D’Esposito
Matteo Capobianco
Caterina Gagliano
Alessandro Avitabile
Giuseppe Gagliano
Gabriella Esposito
Edoardo Dammino
Antonio Carotenuto
Marco Zeppieri
author_facet Fabiana D’Esposito
Matteo Capobianco
Caterina Gagliano
Alessandro Avitabile
Giuseppe Gagliano
Gabriella Esposito
Edoardo Dammino
Antonio Carotenuto
Marco Zeppieri
author_sort Fabiana D’Esposito
collection DOAJ
description <b>Background</b>: Next Generation Sequencing (NGS) Technology has represented a revolution in the molecular characterization of Inherited Retinal Dystrophies (IRDs), which are among the most genetically and phenotypically heterogeneous conditions. NGS has allowed the characterization of a consistent number of patients affected by IRDs, but at the same time, unexpected results can pose diagnostic dilemmas. <b>Aim</b>: The purpose of this review is to describe possible scenarios as a reference for ophthalmologists and geneticists who are involved in this particularly complex field. <b>Methods</b>: A review of the existing literature has been performed. In addition, examples have been brought, from a series of patients that have been analyzed at the University of Naples “Federico II”-CEINGE Biotecnologie Avanzate “Franco Salvatore”. <b>Results</b>: Unexpected results in the genetic characterization of IRDs are not uncommon. The main findings are additional variants that potentially modify phenotypes, deletions masked by apparent homozygosity, and pathogenic variants leading to phenotypes revisitation. <b>Conclusions</b>: The high genetic and phenotypic heterogeneity characterizing IRDs have been greatly advantaged by the advent of NGS Technology. At the same time, the not uncommon finding of unexpected data poses diagnostic criticisms that need to be addressed. In this review, we describe possible scenarios, and we go through some more complex genotype–phenotype correlations.
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spelling doaj-art-e3fe1cf7974b458987436b1db4d25e9f2025-08-20T02:33:30ZengMDPI AGBiomedicines2227-90592025-05-01135111710.3390/biomedicines13051117Keep an Eye on Next Generation Sequencing (NGS) Technology: Secondary Findings and Differential Diagnosis in Inherited Retinal Dystrophies (IRDs)Fabiana D’Esposito0Matteo Capobianco1Caterina Gagliano2Alessandro Avitabile3Giuseppe Gagliano4Gabriella Esposito5Edoardo Dammino6Antonio Carotenuto7Marco Zeppieri8Imperial College Ophthalmic Research Group (ICORG) Unit, Imperial College, London NW15QH, UKDepartment of Ophthalmology, Catania University San Marco Hospital, 95121 Catania, ItalyDepartment of Medicine and Surgery, University of Enna “Kore”, Piazza dell’Università, 94100 Enna, ItalyDepartment of Ophthalmology, Catania University San Marco Hospital, 95121 Catania, ItalyDepartment of Ophthalmology, Catania University San Marco Hospital, 95121 Catania, ItalyDepartment of Molecular Medicine and Medical Biotechnologies, University of Naples Federico II, 80100 Naples, ItalyDepartment of Ophthalmology, Catania University San Marco Hospital, 95121 Catania, ItalyDepartment of Neurosciences, Reproductive Sciences and Dentistry, University of Naples Federico II, 80131 Napoli, ItalyDepartment of Ophthalmology, University Hospital of Udine, 33100 Udine, Italy<b>Background</b>: Next Generation Sequencing (NGS) Technology has represented a revolution in the molecular characterization of Inherited Retinal Dystrophies (IRDs), which are among the most genetically and phenotypically heterogeneous conditions. NGS has allowed the characterization of a consistent number of patients affected by IRDs, but at the same time, unexpected results can pose diagnostic dilemmas. <b>Aim</b>: The purpose of this review is to describe possible scenarios as a reference for ophthalmologists and geneticists who are involved in this particularly complex field. <b>Methods</b>: A review of the existing literature has been performed. In addition, examples have been brought, from a series of patients that have been analyzed at the University of Naples “Federico II”-CEINGE Biotecnologie Avanzate “Franco Salvatore”. <b>Results</b>: Unexpected results in the genetic characterization of IRDs are not uncommon. The main findings are additional variants that potentially modify phenotypes, deletions masked by apparent homozygosity, and pathogenic variants leading to phenotypes revisitation. <b>Conclusions</b>: The high genetic and phenotypic heterogeneity characterizing IRDs have been greatly advantaged by the advent of NGS Technology. At the same time, the not uncommon finding of unexpected data poses diagnostic criticisms that need to be addressed. In this review, we describe possible scenarios, and we go through some more complex genotype–phenotype correlations.https://www.mdpi.com/2227-9059/13/5/1117next generation sequencing NGSNGS incidental findingsNGS secondary findingsinherited retinal dystrophiesgenotype–phenotype correlationmolecular diagnosis
spellingShingle Fabiana D’Esposito
Matteo Capobianco
Caterina Gagliano
Alessandro Avitabile
Giuseppe Gagliano
Gabriella Esposito
Edoardo Dammino
Antonio Carotenuto
Marco Zeppieri
Keep an Eye on Next Generation Sequencing (NGS) Technology: Secondary Findings and Differential Diagnosis in Inherited Retinal Dystrophies (IRDs)
Biomedicines
next generation sequencing NGS
NGS incidental findings
NGS secondary findings
inherited retinal dystrophies
genotype–phenotype correlation
molecular diagnosis
title Keep an Eye on Next Generation Sequencing (NGS) Technology: Secondary Findings and Differential Diagnosis in Inherited Retinal Dystrophies (IRDs)
title_full Keep an Eye on Next Generation Sequencing (NGS) Technology: Secondary Findings and Differential Diagnosis in Inherited Retinal Dystrophies (IRDs)
title_fullStr Keep an Eye on Next Generation Sequencing (NGS) Technology: Secondary Findings and Differential Diagnosis in Inherited Retinal Dystrophies (IRDs)
title_full_unstemmed Keep an Eye on Next Generation Sequencing (NGS) Technology: Secondary Findings and Differential Diagnosis in Inherited Retinal Dystrophies (IRDs)
title_short Keep an Eye on Next Generation Sequencing (NGS) Technology: Secondary Findings and Differential Diagnosis in Inherited Retinal Dystrophies (IRDs)
title_sort keep an eye on next generation sequencing ngs technology secondary findings and differential diagnosis in inherited retinal dystrophies irds
topic next generation sequencing NGS
NGS incidental findings
NGS secondary findings
inherited retinal dystrophies
genotype–phenotype correlation
molecular diagnosis
url https://www.mdpi.com/2227-9059/13/5/1117
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