Health literacy, myths and stigma among patients with Parkinson’s disease in the Republic of Moldova

Introduction: Health literacy, defined as an individual's ability to make health-related decisions based on acquired knowledge, impacts the quality of life of patients with Parkinson’s disease (PD). This study aims to establish a baseline assessment of health literacy, common myths, and stigma...

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Main Authors: Lilia ROTARU, Oxana GROSU, Mădălina CEBUC, Ghenadie CARAUSU, Victor VOVC, Stanislav GROPPA
Format: Article
Language:English
Published: Asociatia de Biosiguranta si Biosecuritate 2025-01-01
Series:One Health & Risk Management
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Online Access:https://journal.ohrm.bba.md/index.php/journal-ohrm-bba-md/article/view/774
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author Lilia ROTARU
Oxana GROSU
Mădălina CEBUC
Ghenadie CARAUSU
Victor VOVC
Stanislav GROPPA
author_facet Lilia ROTARU
Oxana GROSU
Mădălina CEBUC
Ghenadie CARAUSU
Victor VOVC
Stanislav GROPPA
author_sort Lilia ROTARU
collection DOAJ
description Introduction: Health literacy, defined as an individual's ability to make health-related decisions based on acquired knowledge, impacts the quality of life of patients with Parkinson’s disease (PD). This study aims to establish a baseline assessment of health literacy, common myths, and stigma among PD patients in the Republic of Moldova. Material and Methods: This cross-sectional study was conducted at the ”Diomid Gherman” Institute of Neurology and Neurosurgery (2022 -2023). Descriptive and inferential statistics were applied (the chi-square test; 95 % CI). A total of 103 PD patients (52.4% women, 47.6% men; mean age 65.5 years) participated and completed the Knowledge, Attitude, and Practices questionnaire. Results: Most PD patients attributed the disease to stress (61.2%), impaired brain blood flow (49.5%), poor brain oxygenation (44.7%), and exposure to toxic substances (13.6%), particularly among those with lower education (p=0.001). Tremors are associated with PD in 30.1% of cases, while 21.4% believe PD shortens life expectancy. Concerns on treatment include 15.5% of patients who believe medication as being "toxic" and 6.8% that L-dopa accelerates disease progression. Self-stigma includes feelings of shame (46.6%), fear of judgment (44.7%), social isolation (32.0%), and reduced independence (65%). Conclusions: The study has revealed limited health literacy and significant self-stigma among PD patients in Moldova, highlighting misconceptions and social impacts of the disease, especially in less educated individuals. Enhancing health literacy and reducing stigma are crucial for improving patient care.
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spelling doaj-art-e3fa18dc2e714303852771be27d5dd322025-08-20T03:06:36ZengAsociatia de Biosiguranta si BiosecuritateOne Health & Risk Management2587-34582587-34662025-01-0161475610.38045/ohrm.2025.1.05Health literacy, myths and stigma among patients with Parkinson’s disease in the Republic of MoldovaLilia ROTARU0https://orcid.org/0000-0002-5340-5234Oxana GROSU1https://orcid.org/0000-0002-8677-372XMădălina CEBUC2https://orcid.org/0000-0001-7055-0081Ghenadie CARAUSU3https://orcid.org/0000-0001-5903-1117Victor VOVC4https://orcid.org/0000-0001-7624-9644Stanislav GROPPA5https://orcid.org/0000-0002-2120-2408„Diomid Gherman” Institute of Neurology and Neurosurgery, Chisinau, the Republic of Moldova„Diomid Gherman” Institute of Neurology and Neurosurgery, Chisinau, the Republic of Moldova„Diomid Gherman” Institute of Neurology and Neurosurgery, Chisinau, the Republic of Moldova„Nicolae Testemitanu” State University of Medicine and Pharmacy, Chisinau, the Republic of Moldova„Nicolae Testemitanu” State University of Medicine and Pharmacy, Chisinau, the Republic of Moldova„Nicolae Testemitanu” State University of Medicine and Pharmacy, Chisinau, the Republic of MoldovaIntroduction: Health literacy, defined as an individual's ability to make health-related decisions based on acquired knowledge, impacts the quality of life of patients with Parkinson’s disease (PD). This study aims to establish a baseline assessment of health literacy, common myths, and stigma among PD patients in the Republic of Moldova. Material and Methods: This cross-sectional study was conducted at the ”Diomid Gherman” Institute of Neurology and Neurosurgery (2022 -2023). Descriptive and inferential statistics were applied (the chi-square test; 95 % CI). A total of 103 PD patients (52.4% women, 47.6% men; mean age 65.5 years) participated and completed the Knowledge, Attitude, and Practices questionnaire. Results: Most PD patients attributed the disease to stress (61.2%), impaired brain blood flow (49.5%), poor brain oxygenation (44.7%), and exposure to toxic substances (13.6%), particularly among those with lower education (p=0.001). Tremors are associated with PD in 30.1% of cases, while 21.4% believe PD shortens life expectancy. Concerns on treatment include 15.5% of patients who believe medication as being "toxic" and 6.8% that L-dopa accelerates disease progression. Self-stigma includes feelings of shame (46.6%), fear of judgment (44.7%), social isolation (32.0%), and reduced independence (65%). Conclusions: The study has revealed limited health literacy and significant self-stigma among PD patients in Moldova, highlighting misconceptions and social impacts of the disease, especially in less educated individuals. Enhancing health literacy and reducing stigma are crucial for improving patient care.https://journal.ohrm.bba.md/index.php/journal-ohrm-bba-md/article/view/774parkinson’s diseasehealth literacyself-stigma
spellingShingle Lilia ROTARU
Oxana GROSU
Mădălina CEBUC
Ghenadie CARAUSU
Victor VOVC
Stanislav GROPPA
Health literacy, myths and stigma among patients with Parkinson’s disease in the Republic of Moldova
One Health & Risk Management
parkinson’s disease
health literacy
self-stigma
title Health literacy, myths and stigma among patients with Parkinson’s disease in the Republic of Moldova
title_full Health literacy, myths and stigma among patients with Parkinson’s disease in the Republic of Moldova
title_fullStr Health literacy, myths and stigma among patients with Parkinson’s disease in the Republic of Moldova
title_full_unstemmed Health literacy, myths and stigma among patients with Parkinson’s disease in the Republic of Moldova
title_short Health literacy, myths and stigma among patients with Parkinson’s disease in the Republic of Moldova
title_sort health literacy myths and stigma among patients with parkinson s disease in the republic of moldova
topic parkinson’s disease
health literacy
self-stigma
url https://journal.ohrm.bba.md/index.php/journal-ohrm-bba-md/article/view/774
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