Diversity in patient and public involvement in healthcare research and education—Realising the potential
Abstract Background Patient and public involvement (PPI) is an increasing priority in health‐related research and education. Attracting and supporting people from different demographic groups to give up their time and get involved is important to help ensure that all parts of society are empowered,...
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| Format: | Article |
| Language: | English |
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Wiley
2024-02-01
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| Series: | Health Expectations |
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| Online Access: | https://doi.org/10.1111/hex.13896 |
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| author | Sarah Hatch Jim Fitzgibbon Amanda Jayne Tonks Liz Forty |
| author_facet | Sarah Hatch Jim Fitzgibbon Amanda Jayne Tonks Liz Forty |
| author_sort | Sarah Hatch |
| collection | DOAJ |
| description | Abstract Background Patient and public involvement (PPI) is an increasing priority in health‐related research and education. Attracting and supporting people from different demographic groups to give up their time and get involved is important to help ensure that all parts of society are empowered, represented and their voices heard in decisions that may affect their health and quality of life. Objectives (1) To determine if a demographically diverse cross‐section of society would be interested in contributing to healthcare research and education. (2) To understand factors that can act as barriers and enablers to effective and diverse PPI. Method PPI survey data was collected via engagement events, with the aim of scoping interest in PPI from a diverse public. A Focus Group study involving members of the public, academic and professional service staff, was then conducted to gain a deeper understanding around the barriers and enablers of diversity within PPI. Results 71% of a diverse rich public indicated they would like to get involved in healthcare research and teaching. 76% of survey respondents indicated that they would be happy to share a personal or family experience of healthcare. The two biggest factors impacting on our cohort getting involved are’ availability of time’ and ‘being aware of PPI opportunities’. These factors may disproportionally affect specific groups. Shared and individual PPI enablers and barriers were identified across all stakeholder groups within the Focus Group Study, as well as generic and novel factors that would impact on an institutions’ ability to improve PPI diversity. Conclusion These data points confirm a demographically diverse public's appetite to get involved in academic health research and teaching. This needs to be recognised and harnessed to ensure public contributor networks are representative of society. Equality Impact Assessments should be undertaken in relation to all PPI opportunities. There is a need to recognise the investment of time and resources required to build mutually beneficial relationships with diverse communities as well as the development of inclusive ‘fit for purpose’ PPI infrastructures to support the uptake of diverse PPI contributors. Public Contribution This study involved members of the public responding to a short survey. Public contributors made up one of the three focus groups. The School of Medicine lead public contributor was also involved in the preparation of this manuscript. |
| format | Article |
| id | doaj-art-e392934a4cf149bdaf2b357bdab8c737 |
| institution | Kabale University |
| issn | 1369-6513 1369-7625 |
| language | English |
| publishDate | 2024-02-01 |
| publisher | Wiley |
| record_format | Article |
| series | Health Expectations |
| spelling | doaj-art-e392934a4cf149bdaf2b357bdab8c7372025-08-23T11:53:04ZengWileyHealth Expectations1369-65131369-76252024-02-01271n/an/a10.1111/hex.13896Diversity in patient and public involvement in healthcare research and education—Realising the potentialSarah Hatch0Jim Fitzgibbon1Amanda Jayne Tonks2Liz Forty3Public Involvement and Engagement Team, School of Medicine Cardiff University Cardiff UKPublic Involvement and Engagement Team, School of Medicine Cardiff University Cardiff UKCentre for Medical Education, School of Medicine Cardiff University Cardiff UKCentre for Medical Education, School of Medicine Cardiff University Cardiff UKAbstract Background Patient and public involvement (PPI) is an increasing priority in health‐related research and education. Attracting and supporting people from different demographic groups to give up their time and get involved is important to help ensure that all parts of society are empowered, represented and their voices heard in decisions that may affect their health and quality of life. Objectives (1) To determine if a demographically diverse cross‐section of society would be interested in contributing to healthcare research and education. (2) To understand factors that can act as barriers and enablers to effective and diverse PPI. Method PPI survey data was collected via engagement events, with the aim of scoping interest in PPI from a diverse public. A Focus Group study involving members of the public, academic and professional service staff, was then conducted to gain a deeper understanding around the barriers and enablers of diversity within PPI. Results 71% of a diverse rich public indicated they would like to get involved in healthcare research and teaching. 76% of survey respondents indicated that they would be happy to share a personal or family experience of healthcare. The two biggest factors impacting on our cohort getting involved are’ availability of time’ and ‘being aware of PPI opportunities’. These factors may disproportionally affect specific groups. Shared and individual PPI enablers and barriers were identified across all stakeholder groups within the Focus Group Study, as well as generic and novel factors that would impact on an institutions’ ability to improve PPI diversity. Conclusion These data points confirm a demographically diverse public's appetite to get involved in academic health research and teaching. This needs to be recognised and harnessed to ensure public contributor networks are representative of society. Equality Impact Assessments should be undertaken in relation to all PPI opportunities. There is a need to recognise the investment of time and resources required to build mutually beneficial relationships with diverse communities as well as the development of inclusive ‘fit for purpose’ PPI infrastructures to support the uptake of diverse PPI contributors. Public Contribution This study involved members of the public responding to a short survey. Public contributors made up one of the three focus groups. The School of Medicine lead public contributor was also involved in the preparation of this manuscript.https://doi.org/10.1111/hex.13896diverse patient/publichealth research and educationinvolvement |
| spellingShingle | Sarah Hatch Jim Fitzgibbon Amanda Jayne Tonks Liz Forty Diversity in patient and public involvement in healthcare research and education—Realising the potential Health Expectations diverse patient/public health research and education involvement |
| title | Diversity in patient and public involvement in healthcare research and education—Realising the potential |
| title_full | Diversity in patient and public involvement in healthcare research and education—Realising the potential |
| title_fullStr | Diversity in patient and public involvement in healthcare research and education—Realising the potential |
| title_full_unstemmed | Diversity in patient and public involvement in healthcare research and education—Realising the potential |
| title_short | Diversity in patient and public involvement in healthcare research and education—Realising the potential |
| title_sort | diversity in patient and public involvement in healthcare research and education realising the potential |
| topic | diverse patient/public health research and education involvement |
| url | https://doi.org/10.1111/hex.13896 |
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