Rose-Colored Answers: Neuropsychological Deficits and Patient-Reported Outcomes after Stroke

Patient-reported, subjective outcomes are promoted as a standard for ethical, valid studies in many neurological disorders. Such outcomes are considered potentially more sensitive and specific to important therapeutic effects, and may be more linked to disability and disease-related life losses than...

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Main Author: Anna M. Barrett
Format: Article
Language:English
Published: Wiley 2010-01-01
Series:Behavioural Neurology
Online Access:http://dx.doi.org/10.3233/BEN-2009-0250
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author Anna M. Barrett
author_facet Anna M. Barrett
author_sort Anna M. Barrett
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description Patient-reported, subjective outcomes are promoted as a standard for ethical, valid studies in many neurological disorders. Such outcomes are considered potentially more sensitive and specific to important therapeutic effects, and may be more linked to disability and disease-related life losses than conventional assessments of impairment (e.g. ability to walk, performance on language tests, serological or radiological indices). Self-report is invaluable to identify social and emotional consequences of brain injury: depression, changes in intimate and family relationships, social role and community participation losses. However, common stroke-related neuropsychological deficits are likely to confound subjective stroke outcome measures. The scientific community focused on stroke-related health outcomes may arrive at significantly underestimated patient reports of stroke-related disability, caused by a failure to adjust for the effect on self-report of spatial neglect, deficits of magnitude estimation, pathologic alteration of self-awareness, and alteration in distributed cortical systems supporting emotional semantics and abstraction.
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spelling doaj-art-e3683de20cb64df8881094acbbe7d1272025-08-20T03:26:31ZengWileyBehavioural Neurology0953-41801875-85842010-01-01221-2172310.3233/BEN-2009-0250Rose-Colored Answers: Neuropsychological Deficits and Patient-Reported Outcomes after StrokeAnna M. Barrett0Director, Stroke Rehabilitation Research, Kessler Foundation Research Center, Associate Professor of Physical Medicine and Rehabilitation/ Neurology and Neurosciences, University of Medicine and Dentistry, NJ Medical School, NJ, USAPatient-reported, subjective outcomes are promoted as a standard for ethical, valid studies in many neurological disorders. Such outcomes are considered potentially more sensitive and specific to important therapeutic effects, and may be more linked to disability and disease-related life losses than conventional assessments of impairment (e.g. ability to walk, performance on language tests, serological or radiological indices). Self-report is invaluable to identify social and emotional consequences of brain injury: depression, changes in intimate and family relationships, social role and community participation losses. However, common stroke-related neuropsychological deficits are likely to confound subjective stroke outcome measures. The scientific community focused on stroke-related health outcomes may arrive at significantly underestimated patient reports of stroke-related disability, caused by a failure to adjust for the effect on self-report of spatial neglect, deficits of magnitude estimation, pathologic alteration of self-awareness, and alteration in distributed cortical systems supporting emotional semantics and abstraction.http://dx.doi.org/10.3233/BEN-2009-0250
spellingShingle Anna M. Barrett
Rose-Colored Answers: Neuropsychological Deficits and Patient-Reported Outcomes after Stroke
Behavioural Neurology
title Rose-Colored Answers: Neuropsychological Deficits and Patient-Reported Outcomes after Stroke
title_full Rose-Colored Answers: Neuropsychological Deficits and Patient-Reported Outcomes after Stroke
title_fullStr Rose-Colored Answers: Neuropsychological Deficits and Patient-Reported Outcomes after Stroke
title_full_unstemmed Rose-Colored Answers: Neuropsychological Deficits and Patient-Reported Outcomes after Stroke
title_short Rose-Colored Answers: Neuropsychological Deficits and Patient-Reported Outcomes after Stroke
title_sort rose colored answers neuropsychological deficits and patient reported outcomes after stroke
url http://dx.doi.org/10.3233/BEN-2009-0250
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