Presymptomatic genetic counseling in amyotrophic lateral sclerosis

Amyotrophic lateral sclerosis (ALS) is a fatal neurodegenerative disease characterized by progressive loss of central and peripheric motor neurons, with genetic factors playing significant role in its  development. In this article, we discuss in detail the difficulties in the analysis of ALS related...

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Bibliographic Details
Main Authors: Yu. A. Shpilyukova, A. A. Rosliakova, M. N. Zakharova, S. N. Illarioshkin
Format: Article
Language:Russian
Published: ABV-press 2018-01-01
Series:Нервно-мышечные болезни
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Online Access:https://nmb.abvpress.ru/jour/article/view/240
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Summary:Amyotrophic lateral sclerosis (ALS) is a fatal neurodegenerative disease characterized by progressive loss of central and peripheric motor neurons, with genetic factors playing significant role in its  development. In this article, we discuss in detail the difficulties in the analysis of ALS related to incomplete penetrance of mutations,  extreme genetic heterogeneity of this disorder, the lack of clear  genotype-phenotype correlations, etc. Presented is our own  instructive observation in which a clinically unaffected relative of a  patient with the SOD1-associated form of ALS requested presymptomatic ALS genetic  testing and medical-genetic counseling. Key aspects of  recommendations about presymptomatic genetic counseling in persons  from the risk group originating from families with ALS have been presented.
ISSN:2222-8721
2413-0443