Exploring subjective quality-of-life indicators in long-term care facilities: a mixed-methods research protocol
Introduction Improving quality of life has become a priority in the long-term care (LTC) sector internationally. With development and implementation guidance, standardised quality-of-life monitoring tools based on valid, self-report surveys could be used more effectively to benefit LTC residents, fa...
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| Format: | Article |
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BMJ Publishing Group
2024-07-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/14/7/e087380.full |
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| author | John P Hirdes Carrie McAiney George A Heckman Anja Declercq Jan De Lepeleire Amanda A Nova |
| author_facet | John P Hirdes Carrie McAiney George A Heckman Anja Declercq Jan De Lepeleire Amanda A Nova |
| author_sort | John P Hirdes |
| collection | DOAJ |
| description | Introduction Improving quality of life has become a priority in the long-term care (LTC) sector internationally. With development and implementation guidance, standardised quality-of-life monitoring tools based on valid, self-report surveys could be used more effectively to benefit LTC residents, families and organisations. This research will explore the potential for subjective quality-of-life indicators in the interRAI Self-Reported Quality of Life Survey for Long-Term Care Facilities (QoL-LTCF).Methods and analysis Guided by the Medical Research Council Framework, this research will entail a (1) modified Delphi study, (2) feasibility study and (3) realist synthesis. In study 1, we will evaluate the importance of statements and scales in the QoL-LTCF by administering Delphi surveys and focus groups to purposively recruited resident and family advisors, researchers, and LTC clinicians, staff, and leadership from international quality improvement organisations. In study 2, we will critically examine the feasibility and implications of risk-adjusting subjective quality-of-life indicators. Specifically, we will collect expert stakeholder perspectives with interviews and apply a risk-adjustment methodology to QoL-LTCF data. In study 3, we will iteratively review and synthesise literature, and consult with expert stakeholders to explore the implementation of quality-of-life indicators.Ethics and dissemination This study has received approval through a University of Waterloo Research Ethics Board and the Social and Societal Ethics Committee of KU Leuven. We will disseminate our findings in conferences, journal article publications and presentations for a variety of stakeholders. |
| format | Article |
| id | doaj-art-e2a516eb3d26432b937a3f342928bcf5 |
| institution | DOAJ |
| issn | 2044-6055 |
| language | English |
| publishDate | 2024-07-01 |
| publisher | BMJ Publishing Group |
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| series | BMJ Open |
| spelling | doaj-art-e2a516eb3d26432b937a3f342928bcf52025-08-20T02:43:12ZengBMJ Publishing GroupBMJ Open2044-60552024-07-0114710.1136/bmjopen-2024-087380Exploring subjective quality-of-life indicators in long-term care facilities: a mixed-methods research protocolJohn P Hirdes0Carrie McAiney1George A Heckman2Anja Declercq3Jan De Lepeleire4Amanda A Nova5School of Public Health Sciences, University of Waterloo, Waterloo, Ontario, CanadaSchool of Public Health Sciences, University of Waterloo, Waterloo, Ontario, CanadaSchool of Public Health and Health Systems, University of Waterloo, Waterloo, Ontario, CanadaCentre for Care Research & Consultancy(LUCAS) and Centre for Sociological Research (CeSO), KU Leuven, Leuven, Belgium6 Faculty of Medicine, KU Leuven, Leuven, Belgium1 School of Public Health Sciences, University of Waterloo, Waterloo, Ontario, CanadaIntroduction Improving quality of life has become a priority in the long-term care (LTC) sector internationally. With development and implementation guidance, standardised quality-of-life monitoring tools based on valid, self-report surveys could be used more effectively to benefit LTC residents, families and organisations. This research will explore the potential for subjective quality-of-life indicators in the interRAI Self-Reported Quality of Life Survey for Long-Term Care Facilities (QoL-LTCF).Methods and analysis Guided by the Medical Research Council Framework, this research will entail a (1) modified Delphi study, (2) feasibility study and (3) realist synthesis. In study 1, we will evaluate the importance of statements and scales in the QoL-LTCF by administering Delphi surveys and focus groups to purposively recruited resident and family advisors, researchers, and LTC clinicians, staff, and leadership from international quality improvement organisations. In study 2, we will critically examine the feasibility and implications of risk-adjusting subjective quality-of-life indicators. Specifically, we will collect expert stakeholder perspectives with interviews and apply a risk-adjustment methodology to QoL-LTCF data. In study 3, we will iteratively review and synthesise literature, and consult with expert stakeholders to explore the implementation of quality-of-life indicators.Ethics and dissemination This study has received approval through a University of Waterloo Research Ethics Board and the Social and Societal Ethics Committee of KU Leuven. We will disseminate our findings in conferences, journal article publications and presentations for a variety of stakeholders.https://bmjopen.bmj.com/content/14/7/e087380.full |
| spellingShingle | John P Hirdes Carrie McAiney George A Heckman Anja Declercq Jan De Lepeleire Amanda A Nova Exploring subjective quality-of-life indicators in long-term care facilities: a mixed-methods research protocol BMJ Open |
| title | Exploring subjective quality-of-life indicators in long-term care facilities: a mixed-methods research protocol |
| title_full | Exploring subjective quality-of-life indicators in long-term care facilities: a mixed-methods research protocol |
| title_fullStr | Exploring subjective quality-of-life indicators in long-term care facilities: a mixed-methods research protocol |
| title_full_unstemmed | Exploring subjective quality-of-life indicators in long-term care facilities: a mixed-methods research protocol |
| title_short | Exploring subjective quality-of-life indicators in long-term care facilities: a mixed-methods research protocol |
| title_sort | exploring subjective quality of life indicators in long term care facilities a mixed methods research protocol |
| url | https://bmjopen.bmj.com/content/14/7/e087380.full |
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