Novel gene variant identified in congenital hypomyelinating neuropathy-3: A case report

Contactin-associated protein ( CNTNAP1 ) gene mutations have been reported in cases of congenital hypomyelinating neuropathy (CHN), a rare hereditary neuropathy. We present a case of a term male infant born at 39 weeks 4 days with respiratory distress, impaired swallow function, and hypotonia. Neuro...

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Main Authors: Helen Wang, Dillon Chen, Miguel Del Campo, Pamela Del Rosario, Pei-Shan Lee
Format: Article
Language:English
Published: SAGE Publishing 2024-11-01
Series:SAGE Open Medical Case Reports
Online Access:https://doi.org/10.1177/2050313X241302236
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author Helen Wang
Dillon Chen
Miguel Del Campo
Pamela Del Rosario
Pei-Shan Lee
author_facet Helen Wang
Dillon Chen
Miguel Del Campo
Pamela Del Rosario
Pei-Shan Lee
author_sort Helen Wang
collection DOAJ
description Contactin-associated protein ( CNTNAP1 ) gene mutations have been reported in cases of congenital hypomyelinating neuropathy (CHN), a rare hereditary neuropathy. We present a case of a term male infant born at 39 weeks 4 days with respiratory distress, impaired swallow function, and hypotonia. Neurological workup for structural, autoimmune, neuromuscular, and metabolic etiologies was negative and whole exome sequencing revealed a novel mutation in the CNTNAP1 gene, consistent with a diagnosis of CHN3. While CHN3 cases with mutations in the same domain have required long-term respiratory support, our patient, now 2 years old, has not required respiratory support since his initial birth hospitalization. Neurologically, he now has central hypotonia with hypertonia in the bilateral extremities and global developmental delay. This case adds to a growing number of identified pathological CNTNAP1 mutations and their heterogenous clinical phenotypes and highlights a rare neurological etiology for respiratory distress in newborns.
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spelling doaj-art-e12c907129fd4f2db0a7b022b6f9b4d62025-08-20T02:49:22ZengSAGE PublishingSAGE Open Medical Case Reports2050-313X2024-11-011210.1177/2050313X241302236Novel gene variant identified in congenital hypomyelinating neuropathy-3: A case reportHelen Wang0Dillon Chen1Miguel Del Campo2Pamela Del Rosario3Pei-Shan Lee4Medical Scientist Training Program, University of California, San Diego, La Jolla, CA, USAUniversity of California, San Diego, La Jolla, CA, USAUniversity of California, San Diego, La Jolla, CA, USAUniversity of California, San Diego, La Jolla, CA, USAUniversity of California, San Diego, La Jolla, CA, USAContactin-associated protein ( CNTNAP1 ) gene mutations have been reported in cases of congenital hypomyelinating neuropathy (CHN), a rare hereditary neuropathy. We present a case of a term male infant born at 39 weeks 4 days with respiratory distress, impaired swallow function, and hypotonia. Neurological workup for structural, autoimmune, neuromuscular, and metabolic etiologies was negative and whole exome sequencing revealed a novel mutation in the CNTNAP1 gene, consistent with a diagnosis of CHN3. While CHN3 cases with mutations in the same domain have required long-term respiratory support, our patient, now 2 years old, has not required respiratory support since his initial birth hospitalization. Neurologically, he now has central hypotonia with hypertonia in the bilateral extremities and global developmental delay. This case adds to a growing number of identified pathological CNTNAP1 mutations and their heterogenous clinical phenotypes and highlights a rare neurological etiology for respiratory distress in newborns.https://doi.org/10.1177/2050313X241302236
spellingShingle Helen Wang
Dillon Chen
Miguel Del Campo
Pamela Del Rosario
Pei-Shan Lee
Novel gene variant identified in congenital hypomyelinating neuropathy-3: A case report
SAGE Open Medical Case Reports
title Novel gene variant identified in congenital hypomyelinating neuropathy-3: A case report
title_full Novel gene variant identified in congenital hypomyelinating neuropathy-3: A case report
title_fullStr Novel gene variant identified in congenital hypomyelinating neuropathy-3: A case report
title_full_unstemmed Novel gene variant identified in congenital hypomyelinating neuropathy-3: A case report
title_short Novel gene variant identified in congenital hypomyelinating neuropathy-3: A case report
title_sort novel gene variant identified in congenital hypomyelinating neuropathy 3 a case report
url https://doi.org/10.1177/2050313X241302236
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AT pameladelrosario novelgenevariantidentifiedincongenitalhypomyelinatingneuropathy3acasereport
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