Researcher and community partner perspectives on community-engaged research during the COVID-19 pandemic

Abstract Introduction: We sought to explore how the COVID-19 pandemic impacted community-engaged research (CEnR) from both researcher and community partner perspectives, identify challenges and facilitators affecting their experiences, and describe desired supports for CEnR during future health cr...

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Main Authors: Simone C. Frank, Mary E. Grewe, Milenka Jean-Baptiste, Alicia Bilheimer, Alexandra F. Lightfoot, Laura Villa-Torres
Format: Article
Language:English
Published: Cambridge University Press 2025-01-01
Series:Journal of Clinical and Translational Science
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Online Access:https://www.cambridge.org/core/product/identifier/S2059866125100903/type/journal_article
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author Simone C. Frank
Mary E. Grewe
Milenka Jean-Baptiste
Alicia Bilheimer
Alexandra F. Lightfoot
Laura Villa-Torres
author_facet Simone C. Frank
Mary E. Grewe
Milenka Jean-Baptiste
Alicia Bilheimer
Alexandra F. Lightfoot
Laura Villa-Torres
author_sort Simone C. Frank
collection DOAJ
description Abstract Introduction: We sought to explore how the COVID-19 pandemic impacted community-engaged research (CEnR) from both researcher and community partner perspectives, identify challenges and facilitators affecting their experiences, and describe desired supports for CEnR during future health crises. Methods: We conducted semi-structured, virtual interviews with ten researchers and eight partners who conducted or collaborated on CEnR during the COVID-19 pandemic. Interviews were recorded and transcribed for analysis. We analyzed the transcribed data thematically through an iterative process involving memoing, consensus coding, and reviewing memos and code reports to identify and describe key categories and themes. Results: Challenges identified were related to wellbeing and personal circumstances, such as feeling burnt out, managing increased caregiving responsibilities, or concern about risk of illness; institutional barriers, such as inflexible and burdensome financial, regulatory, and administrative policies; and virtual engagement, such as distractions, limited Internet access, or difficulty forming relationships online. Facilitators fell into two categories. Foundational factors such as strong existing partnerships, funding, and project-specific circumstances were critical to facilitating CEnR activities. Strategy-based facilitators focused on overcoming challenges and included communication, flexibility, risk mitigation, and utilizing techniques to enhance virtual engagement. Desired supports included flexible funding, resources for navigating research during crises, and increased virtual engagement accessibility and guidance. Conclusions: By better understanding challenges and facilitators affecting experiences of researchers and community partners during the COVID-19 pandemic, we can develop strategies and resources to better support CEnR partnerships during future crises.
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spelling doaj-art-e0277f9b084a4cf29da4f614ac0acdef2025-08-20T03:40:33ZengCambridge University PressJournal of Clinical and Translational Science2059-86612025-01-01910.1017/cts.2025.10090Researcher and community partner perspectives on community-engaged research during the COVID-19 pandemicSimone C. Frank0https://orcid.org/0000-0002-0048-0150Mary E. Grewe1Milenka Jean-Baptiste2Alicia Bilheimer3https://orcid.org/0009-0006-1758-3902Alexandra F. Lightfoot4Laura Villa-Torres5North Carolina Translational and Clinical Sciences Institute, University of North Carolina at Chapel Hill, Chapel Hill, NC, USANorth Carolina Translational and Clinical Sciences Institute, University of North Carolina at Chapel Hill, Chapel Hill, NC, USANorth Carolina Translational and Clinical Sciences Institute, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, NC, USANorth Carolina Translational and Clinical Sciences Institute, University of North Carolina at Chapel Hill, Chapel Hill, NC, USANorth Carolina Translational and Clinical Sciences Institute, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, NC, USANorth Carolina Translational and Clinical Sciences Institute, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA Abstract Introduction: We sought to explore how the COVID-19 pandemic impacted community-engaged research (CEnR) from both researcher and community partner perspectives, identify challenges and facilitators affecting their experiences, and describe desired supports for CEnR during future health crises. Methods: We conducted semi-structured, virtual interviews with ten researchers and eight partners who conducted or collaborated on CEnR during the COVID-19 pandemic. Interviews were recorded and transcribed for analysis. We analyzed the transcribed data thematically through an iterative process involving memoing, consensus coding, and reviewing memos and code reports to identify and describe key categories and themes. Results: Challenges identified were related to wellbeing and personal circumstances, such as feeling burnt out, managing increased caregiving responsibilities, or concern about risk of illness; institutional barriers, such as inflexible and burdensome financial, regulatory, and administrative policies; and virtual engagement, such as distractions, limited Internet access, or difficulty forming relationships online. Facilitators fell into two categories. Foundational factors such as strong existing partnerships, funding, and project-specific circumstances were critical to facilitating CEnR activities. Strategy-based facilitators focused on overcoming challenges and included communication, flexibility, risk mitigation, and utilizing techniques to enhance virtual engagement. Desired supports included flexible funding, resources for navigating research during crises, and increased virtual engagement accessibility and guidance. Conclusions: By better understanding challenges and facilitators affecting experiences of researchers and community partners during the COVID-19 pandemic, we can develop strategies and resources to better support CEnR partnerships during future crises. https://www.cambridge.org/core/product/identifier/S2059866125100903/type/journal_articleCommunity-engaged research (CEnR)covid-19 pandemicvirtual engagementinstitutional barrierstranslational science
spellingShingle Simone C. Frank
Mary E. Grewe
Milenka Jean-Baptiste
Alicia Bilheimer
Alexandra F. Lightfoot
Laura Villa-Torres
Researcher and community partner perspectives on community-engaged research during the COVID-19 pandemic
Journal of Clinical and Translational Science
Community-engaged research (CEnR)
covid-19 pandemic
virtual engagement
institutional barriers
translational science
title Researcher and community partner perspectives on community-engaged research during the COVID-19 pandemic
title_full Researcher and community partner perspectives on community-engaged research during the COVID-19 pandemic
title_fullStr Researcher and community partner perspectives on community-engaged research during the COVID-19 pandemic
title_full_unstemmed Researcher and community partner perspectives on community-engaged research during the COVID-19 pandemic
title_short Researcher and community partner perspectives on community-engaged research during the COVID-19 pandemic
title_sort researcher and community partner perspectives on community engaged research during the covid 19 pandemic
topic Community-engaged research (CEnR)
covid-19 pandemic
virtual engagement
institutional barriers
translational science
url https://www.cambridge.org/core/product/identifier/S2059866125100903/type/journal_article
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