Unmet supportive care needs in patients with advanced cancer and its impact on distress

Abstract Purpose Patients with advanced cancer endure considerable physical and emotional distress without sufficient supportive care. This cross-sectional study examined the relationship between cancer-related symptoms, supportive care needs, and distress levels in patients with advanced lung, head...

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Main Authors: Kayla W. Miranda, Benjamin L. Musher, Hoda J. Badr
Format: Article
Language:English
Published: BMC 2025-04-01
Series:BMC Palliative Care
Subjects:
Online Access:https://doi.org/10.1186/s12904-025-01746-x
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author Kayla W. Miranda
Benjamin L. Musher
Hoda J. Badr
author_facet Kayla W. Miranda
Benjamin L. Musher
Hoda J. Badr
author_sort Kayla W. Miranda
collection DOAJ
description Abstract Purpose Patients with advanced cancer endure considerable physical and emotional distress without sufficient supportive care. This cross-sectional study examined the relationship between cancer-related symptoms, supportive care needs, and distress levels in patients with advanced lung, head and neck, or gastrointestinal cancers. Methods 158 patients were assessed for symptom burden and distress levels using the M.D. Anderson Symptom Inventory (MDASI) and unmet needs using the Supportive Care Needs Survey (SCNS-34) within one month of treatment initiation. Pearson correlations and multiple regression analyses were used to explore associations between supportive care needs and distress. Results Distress levels were moderate across the study population, with fatigue, pain, and disturbed sleep being the most reported symptoms. Patients who lived with their caregivers reported significantly lower needs in four out of five domains. Positive correlations were found between distress levels and supportive care needs in the psychological (r = 0.342, p < 0.001), health system (r = 0.253, p = 0.001), patient care and support (r = 0.237, p = 0.003), and physical and daily living domains (r = 0.378, p < 0.001). Multiple regression analysis showed that these domains collectively explained a significant portion of the variance in distress levels (R2 = 0.169, p < 0.001). Conclusion Independent of demographic or clinic characteristics, patients with advanced cancer experience moderate distress and unmet supportive care needs, particularly in psychological and health system domains. The association between living with caregivers and lower reported needs suggests that caregiver support may play a crucial role in meeting these needs. Therefore, integrating strategies that involve and support caregivers could potentially reduce distress and improve the quality of life for patients with advanced cancer.
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spelling doaj-art-dfb18bd8b64b4167a6c2c9efdfac87ef2025-08-20T03:15:10ZengBMCBMC Palliative Care1472-684X2025-04-012411910.1186/s12904-025-01746-xUnmet supportive care needs in patients with advanced cancer and its impact on distressKayla W. Miranda0Benjamin L. Musher1Hoda J. Badr2Dan L. Duncan Comprehensive Cancer Center, Baylor College of MedicineDan L. Duncan Comprehensive Cancer Center, Baylor College of MedicineDan L. Duncan Comprehensive Cancer Center, Baylor College of MedicineAbstract Purpose Patients with advanced cancer endure considerable physical and emotional distress without sufficient supportive care. This cross-sectional study examined the relationship between cancer-related symptoms, supportive care needs, and distress levels in patients with advanced lung, head and neck, or gastrointestinal cancers. Methods 158 patients were assessed for symptom burden and distress levels using the M.D. Anderson Symptom Inventory (MDASI) and unmet needs using the Supportive Care Needs Survey (SCNS-34) within one month of treatment initiation. Pearson correlations and multiple regression analyses were used to explore associations between supportive care needs and distress. Results Distress levels were moderate across the study population, with fatigue, pain, and disturbed sleep being the most reported symptoms. Patients who lived with their caregivers reported significantly lower needs in four out of five domains. Positive correlations were found between distress levels and supportive care needs in the psychological (r = 0.342, p < 0.001), health system (r = 0.253, p = 0.001), patient care and support (r = 0.237, p = 0.003), and physical and daily living domains (r = 0.378, p < 0.001). Multiple regression analysis showed that these domains collectively explained a significant portion of the variance in distress levels (R2 = 0.169, p < 0.001). Conclusion Independent of demographic or clinic characteristics, patients with advanced cancer experience moderate distress and unmet supportive care needs, particularly in psychological and health system domains. The association between living with caregivers and lower reported needs suggests that caregiver support may play a crucial role in meeting these needs. Therefore, integrating strategies that involve and support caregivers could potentially reduce distress and improve the quality of life for patients with advanced cancer.https://doi.org/10.1186/s12904-025-01746-xAdvanced cancerCaregiverDistressSupportive care
spellingShingle Kayla W. Miranda
Benjamin L. Musher
Hoda J. Badr
Unmet supportive care needs in patients with advanced cancer and its impact on distress
BMC Palliative Care
Advanced cancer
Caregiver
Distress
Supportive care
title Unmet supportive care needs in patients with advanced cancer and its impact on distress
title_full Unmet supportive care needs in patients with advanced cancer and its impact on distress
title_fullStr Unmet supportive care needs in patients with advanced cancer and its impact on distress
title_full_unstemmed Unmet supportive care needs in patients with advanced cancer and its impact on distress
title_short Unmet supportive care needs in patients with advanced cancer and its impact on distress
title_sort unmet supportive care needs in patients with advanced cancer and its impact on distress
topic Advanced cancer
Caregiver
Distress
Supportive care
url https://doi.org/10.1186/s12904-025-01746-x
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