Psycho-Emotional Aspects of Pregnant Women Diagnosed with a Rare Disease: A Systematic Review
<b>Background</b>: Psycho-emotional aspects as a cross-cutting theme have gained relevance and scientific interest in recent years. Pregnant women diagnosed with a rare disease constitute a vulnerable population, experiencing psycho-emotional challenges due to their specific circumstance...
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MDPI AG
2024-11-01
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| author | Celia Cortés-Martín Juan Carlos Sánchez-García Beatriz Piqueras-Sola Jonathan Cortés-Martín Andrés Reinoso-Cobo Jose Manuel Martínez-Linares Raquel Rodríguez-Blanque |
| author_facet | Celia Cortés-Martín Juan Carlos Sánchez-García Beatriz Piqueras-Sola Jonathan Cortés-Martín Andrés Reinoso-Cobo Jose Manuel Martínez-Linares Raquel Rodríguez-Blanque |
| author_sort | Celia Cortés-Martín |
| collection | DOAJ |
| description | <b>Background</b>: Psycho-emotional aspects as a cross-cutting theme have gained relevance and scientific interest in recent years. Pregnant women diagnosed with a rare disease constitute a vulnerable population, experiencing psycho-emotional challenges due to their specific circumstances. It is essential that this group is informed and receives the proper to manage the physical, emotional, and psychological challenges linked to their condition. <b>Objectives</b>: The aim of this review is to understand how the diagnosis of a rare disease affects the psycho-emotional aspects of a pregnant woman. <b>Methods</b>: The research question posed is how does the diagnosis of a rare disease affect the psycho-emotional aspects of a pregnant woman? This systematic review has been carried out following the PRISMA model and has been registered in PROSPERO with registration number CRD42024558523. A literature search was conducted in the databases of Scopus, PubMed, Cinahl, Scielo, and the Cochrane Library. Articles were selected on the basis of the following inclusion criteria: publication in the last twenty years and all languages. <b>Results</b>: In the end, 28 articles were selected. The main results highlight that there is a negative impact on the psycho-emotional level in these patients, altering aspects such as anxiety, stress, social rejection, and self-stigma. <b>Conclusion</b>: The role of nursing in addressing this psycho-emotional dimension as a mediator between families and other branches of the health sciences environment stands out. |
| format | Article |
| id | doaj-art-debaa5ed3a1c4de28a29f4516c7b07be |
| institution | DOAJ |
| issn | 2039-439X 2039-4403 |
| language | English |
| publishDate | 2024-11-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Nursing Reports |
| spelling | doaj-art-debaa5ed3a1c4de28a29f4516c7b07be2025-08-20T02:43:39ZengMDPI AGNursing Reports2039-439X2039-44032024-11-011443391340610.3390/nursrep14040245Psycho-Emotional Aspects of Pregnant Women Diagnosed with a Rare Disease: A Systematic ReviewCelia Cortés-Martín0Juan Carlos Sánchez-García1Beatriz Piqueras-Sola2Jonathan Cortés-Martín3Andrés Reinoso-Cobo4Jose Manuel Martínez-Linares5Raquel Rodríguez-Blanque6Research Group CTS1068, Andalusia Research Plan, Junta de Andalucía, 18014 Granada, SpainResearch Group CTS1068, Andalusia Research Plan, Junta de Andalucía, 18014 Granada, SpainResearch Group CTS1068, Andalusia Research Plan, Junta de Andalucía, 18014 Granada, SpainResearch Group CTS1068, Andalusia Research Plan, Junta de Andalucía, 18014 Granada, SpainDepartment of Nursing and Podiatry, Faculty of Health Sciences, University of Malaga—Teatinos, Arquitecto Francisco Peñalosa 3, 29071 Malaga, SpainDepartment of Nursing, Faculty of Health Sciences, University of Granada, 18071 Granada, SpainResearch Group CTS1068, Andalusia Research Plan, Junta de Andalucía, 18014 Granada, Spain<b>Background</b>: Psycho-emotional aspects as a cross-cutting theme have gained relevance and scientific interest in recent years. Pregnant women diagnosed with a rare disease constitute a vulnerable population, experiencing psycho-emotional challenges due to their specific circumstances. It is essential that this group is informed and receives the proper to manage the physical, emotional, and psychological challenges linked to their condition. <b>Objectives</b>: The aim of this review is to understand how the diagnosis of a rare disease affects the psycho-emotional aspects of a pregnant woman. <b>Methods</b>: The research question posed is how does the diagnosis of a rare disease affect the psycho-emotional aspects of a pregnant woman? This systematic review has been carried out following the PRISMA model and has been registered in PROSPERO with registration number CRD42024558523. A literature search was conducted in the databases of Scopus, PubMed, Cinahl, Scielo, and the Cochrane Library. Articles were selected on the basis of the following inclusion criteria: publication in the last twenty years and all languages. <b>Results</b>: In the end, 28 articles were selected. The main results highlight that there is a negative impact on the psycho-emotional level in these patients, altering aspects such as anxiety, stress, social rejection, and self-stigma. <b>Conclusion</b>: The role of nursing in addressing this psycho-emotional dimension as a mediator between families and other branches of the health sciences environment stands out.https://www.mdpi.com/2039-4403/14/4/245psycho-emotional aspectspregnant womanrare diseasemental healthchildbirth |
| spellingShingle | Celia Cortés-Martín Juan Carlos Sánchez-García Beatriz Piqueras-Sola Jonathan Cortés-Martín Andrés Reinoso-Cobo Jose Manuel Martínez-Linares Raquel Rodríguez-Blanque Psycho-Emotional Aspects of Pregnant Women Diagnosed with a Rare Disease: A Systematic Review Nursing Reports psycho-emotional aspects pregnant woman rare disease mental health childbirth |
| title | Psycho-Emotional Aspects of Pregnant Women Diagnosed with a Rare Disease: A Systematic Review |
| title_full | Psycho-Emotional Aspects of Pregnant Women Diagnosed with a Rare Disease: A Systematic Review |
| title_fullStr | Psycho-Emotional Aspects of Pregnant Women Diagnosed with a Rare Disease: A Systematic Review |
| title_full_unstemmed | Psycho-Emotional Aspects of Pregnant Women Diagnosed with a Rare Disease: A Systematic Review |
| title_short | Psycho-Emotional Aspects of Pregnant Women Diagnosed with a Rare Disease: A Systematic Review |
| title_sort | psycho emotional aspects of pregnant women diagnosed with a rare disease a systematic review |
| topic | psycho-emotional aspects pregnant woman rare disease mental health childbirth |
| url | https://www.mdpi.com/2039-4403/14/4/245 |
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