Reflections on youth partnership in a randomized controlled trial of an intervention to optimize transition from pediatric to adult care in inflammatory bowel disease

Reflections on youth partnership in a randomized controlled trial of an intervention to optimize transition from pediatric to adult care in inflammatory bowel disease

Background: Patient engagement allows for developing health interventions and research studies that align with the needs of people living with chronic diseases. Actively involving people with lived experience as partners in the design and governance of interventional trials is gaining prominence. Ho...

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Main Authors: Brooke Allemang, PhD, MSW, RSW, Ashleigh Miatello, MA, Pranshu Maini, Joshua Eszczuk, Claudia Tersigni, MSc, Samantha Micsinszki, PhD, Sneha Dave, Natasha Bollegala, MD, MSc, FRCPC, Nancy Fu, MD, MHSc, Kate Lee, PhD, MBA, Samantha J. Anthony, PhD, MSW, RSW, Melanie Barwick, PhD, Eric I. Benchimol, MD, PhD
Format: Article
Language:English
Published: Elsevier 2025-01-01
Series:Health Care Transitions
Subjects:
Adolescents
Inflammatory bowel disease
Patient engagement
Patient-oriented research
Transition to adult care
Young adults
Online Access:http://www.sciencedirect.com/science/article/pii/S2949923225000170
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