Finnish translation and linguistic validation of the FACE-Q Head and Neck Cancer Module
Head and neck cancer (HNC) and its treatment can result in permanent changes to a patient’s appearance, speaking, eating, and psychosocial well-being. To better assess the impact of the disease on HNC patients, the FACE-Q Head and Neck Cancer Module, a health-related quality-of-life instrument, was...
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| Language: | English |
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Medical Journals Sweden
2024-11-01
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| Series: | Journal of Plastic Surgery and Hand Surgery |
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| Online Access: | https://medicaljournalssweden.se/JPHS/article/view/40518 |
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| author | Lotta Varakas Ian Barner-Rasmussen Aaro Haapaniemi Andrew Lindford Patrik Lassus Pauliina Homsy |
| author_facet | Lotta Varakas Ian Barner-Rasmussen Aaro Haapaniemi Andrew Lindford Patrik Lassus Pauliina Homsy |
| author_sort | Lotta Varakas |
| collection | DOAJ |
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Head and neck cancer (HNC) and its treatment can result in permanent changes to a patient’s appearance, speaking, eating, and psychosocial well-being. To better assess the impact of the disease on HNC patients, the FACE-Q Head and Neck Cancer Module, a health-related quality-of-life instrument, was developed. The aim of this study was to produce and linguistically validate a Finnish version of the module. The module was translated into Finnish following the International Society for Pharmacoeconomics and Outcomes Research (ISPOR) guidelines. A total of 51 patients who had undergone tumour resection and reconstruction of the oral cavity, tonsil, or tongue area between 2019 and 2021 were approached for a pilot study. They completed the translated module and provided feedback on any linguistic issues. Adjustments were made based on the pilot study comments. The FACE-Q Head and Neck Cancer Module translated well into Finnish. Twenty-one (41%) patients participated in the survey, 12 men (57%) and nine women (43%) with a median age of 66 years (range 48–89 years). The median time since surgery was 3 years (range 1–4 years). Based on the feedback from the pilot study participants, one word was changed, and one question was rewritten. Otherwise, no deficiencies were identified in the language of the module. In summary, this study produced a linguistically valid Finnish version of the FACE-Q Head and Neck Cancer Module, enabling its application in evaluating the health-related quality-of-life among Finnish HNC patients who have undergone reconstructive surgery.
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| format | Article |
| id | doaj-art-dc2dc63716554be5b0253f0b3f2557d0 |
| institution | Kabale University |
| issn | 2000-6764 |
| language | English |
| publishDate | 2024-11-01 |
| publisher | Medical Journals Sweden |
| record_format | Article |
| series | Journal of Plastic Surgery and Hand Surgery |
| spelling | doaj-art-dc2dc63716554be5b0253f0b3f2557d02025-08-25T11:16:40ZengMedical Journals SwedenJournal of Plastic Surgery and Hand Surgery2000-67642024-11-015910.2340/jphs.v59.40518Finnish translation and linguistic validation of the FACE-Q Head and Neck Cancer ModuleLotta Varakas0https://orcid.org/0009-0003-9732-246XIan Barner-Rasmussen1https://orcid.org/0000-0001-6294-4988Aaro Haapaniemi2https://orcid.org/0000-0003-3097-1118Andrew Lindford3https://orcid.org/0000-0002-1120-8160Patrik Lassus4https://orcid.org/0000-0003-0554-5096Pauliina Homsy5https://orcid.org/0000-0002-5454-3313Department of Medicine, University of Helsinki and Helsinki University Hospital, Helsinki, FinlandDepartment of Plastic Surgery, University of Helsinki and Helsinki University Hospital, Helsinki, FinlandDepartment of Otorhinolaryngology – Head and Neck Surgery, University of Helsinki and Helsinki University Hospital, Helsinki, FinlandDepartment of Plastic Surgery, University of Helsinki and Helsinki University Hospital, Helsinki, FinlandDepartment of Plastic Surgery, University of Helsinki and Helsinki University Hospital, Helsinki, FinlandDepartment of Plastic Surgery, University of Helsinki and Helsinki University Hospital, Helsinki, Finland Head and neck cancer (HNC) and its treatment can result in permanent changes to a patient’s appearance, speaking, eating, and psychosocial well-being. To better assess the impact of the disease on HNC patients, the FACE-Q Head and Neck Cancer Module, a health-related quality-of-life instrument, was developed. The aim of this study was to produce and linguistically validate a Finnish version of the module. The module was translated into Finnish following the International Society for Pharmacoeconomics and Outcomes Research (ISPOR) guidelines. A total of 51 patients who had undergone tumour resection and reconstruction of the oral cavity, tonsil, or tongue area between 2019 and 2021 were approached for a pilot study. They completed the translated module and provided feedback on any linguistic issues. Adjustments were made based on the pilot study comments. The FACE-Q Head and Neck Cancer Module translated well into Finnish. Twenty-one (41%) patients participated in the survey, 12 men (57%) and nine women (43%) with a median age of 66 years (range 48–89 years). The median time since surgery was 3 years (range 1–4 years). Based on the feedback from the pilot study participants, one word was changed, and one question was rewritten. Otherwise, no deficiencies were identified in the language of the module. In summary, this study produced a linguistically valid Finnish version of the FACE-Q Head and Neck Cancer Module, enabling its application in evaluating the health-related quality-of-life among Finnish HNC patients who have undergone reconstructive surgery. https://medicaljournalssweden.se/JPHS/article/view/40518Head and neck cancerhealth-related quality of lifepatient-reported outcomesFACE-QFACE-Q Head and Neck Cancer Module |
| spellingShingle | Lotta Varakas Ian Barner-Rasmussen Aaro Haapaniemi Andrew Lindford Patrik Lassus Pauliina Homsy Finnish translation and linguistic validation of the FACE-Q Head and Neck Cancer Module Journal of Plastic Surgery and Hand Surgery Head and neck cancer health-related quality of life patient-reported outcomes FACE-Q FACE-Q Head and Neck Cancer Module |
| title | Finnish translation and linguistic validation of the FACE-Q Head and Neck Cancer Module |
| title_full | Finnish translation and linguistic validation of the FACE-Q Head and Neck Cancer Module |
| title_fullStr | Finnish translation and linguistic validation of the FACE-Q Head and Neck Cancer Module |
| title_full_unstemmed | Finnish translation and linguistic validation of the FACE-Q Head and Neck Cancer Module |
| title_short | Finnish translation and linguistic validation of the FACE-Q Head and Neck Cancer Module |
| title_sort | finnish translation and linguistic validation of the face q head and neck cancer module |
| topic | Head and neck cancer health-related quality of life patient-reported outcomes FACE-Q FACE-Q Head and Neck Cancer Module |
| url | https://medicaljournalssweden.se/JPHS/article/view/40518 |
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