Self-advocacy positive perceptions and stage experiences in patients who had a stroke: a qualitative study in China
Objectives This study explored the perceptions and experiences of self-advocacy among patients who had a stroke in China.Design A descriptive phenomenological qualitative study was performed. Colaizzi’s seven-step method was used to analyse the data.Setting Two hospitals in Zhengzhou and Luoyang Cit...
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BMJ Publishing Group
2024-12-01
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Series: | BMJ Open |
Online Access: | https://bmjopen.bmj.com/content/14/12/e091273.full |
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author | Shanshan Wang Zhen-Xiang Zhang Yong-Xia Mei Chunhui Zhang Bei-lei Lin Hu Jiang Xiaoxuan Wang Zhixin Zhao |
author_facet | Shanshan Wang Zhen-Xiang Zhang Yong-Xia Mei Chunhui Zhang Bei-lei Lin Hu Jiang Xiaoxuan Wang Zhixin Zhao |
author_sort | Shanshan Wang |
collection | DOAJ |
description | Objectives This study explored the perceptions and experiences of self-advocacy among patients who had a stroke in China.Design A descriptive phenomenological qualitative study was performed. Colaizzi’s seven-step method was used to analyse the data.Setting Two hospitals in Zhengzhou and Luoyang City, Henan Province, China.Participants 19 patients who had a stroke were recruited and interviewed face-to-face between October 2023 and February 2024.Results The findings revealed two categories: positive perceptions and stage experiences. Three themes of positive perceptions were extracted: ‘accept the facts of illness while maintaining inner integrity’ with three subthemes (disease cognition, firm faith and positive attitude); ‘clarify one’s own needs and strive for them’ with four subthemes (self-care knowledge, effective communication, independent decision-making and power from relation); ‘enhancing subjective initiative and maintaining healthy behaviours’ with three subthemes (active participant in disease management, increased treatment compliance and increased initiative in rehabilitation exercises). Three stage experiences themes were motivation, response and stabilisation stage.Conclusions In this study, patients who had a stroke showed more positive perceptions of self-advocacy. Self-advocacy is a dynamic and progressive process of accepting their disease and actively participating in disease treatment. In addition, patients’ health behaviours are improved and maintained when they engage in self-advocacy. |
format | Article |
id | doaj-art-daec380ff8914e3cb4c6bdadf00f61c0 |
institution | Kabale University |
issn | 2044-6055 |
language | English |
publishDate | 2024-12-01 |
publisher | BMJ Publishing Group |
record_format | Article |
series | BMJ Open |
spelling | doaj-art-daec380ff8914e3cb4c6bdadf00f61c02025-01-14T08:45:11ZengBMJ Publishing GroupBMJ Open2044-60552024-12-01141210.1136/bmjopen-2024-091273Self-advocacy positive perceptions and stage experiences in patients who had a stroke: a qualitative study in ChinaShanshan Wang0Zhen-Xiang Zhang1Yong-Xia Mei2Chunhui Zhang3Bei-lei Lin4Hu Jiang5Xiaoxuan Wang6Zhixin Zhao73 School of Nursing, The Hong Kong Polytechnic University, Hong Kong, China1 School of Nursing and Health, Zhengzhou University, Zhengzhou, China1 School of Nursing and Health, Zhengzhou University, Zhengzhou, China2 Southern Medical University, Guangzhou, Baiyun District Guangdong, China1 School of Nursing and Health, Zhengzhou University, Zhengzhou, China1 School of Nursing and Health, Zhengzhou University, Zhengzhou, China1 School of Nursing and Health, Zhengzhou University, Zhengzhou, China1 School of Nursing and Health, Zhengzhou University, Zhengzhou, ChinaObjectives This study explored the perceptions and experiences of self-advocacy among patients who had a stroke in China.Design A descriptive phenomenological qualitative study was performed. Colaizzi’s seven-step method was used to analyse the data.Setting Two hospitals in Zhengzhou and Luoyang City, Henan Province, China.Participants 19 patients who had a stroke were recruited and interviewed face-to-face between October 2023 and February 2024.Results The findings revealed two categories: positive perceptions and stage experiences. Three themes of positive perceptions were extracted: ‘accept the facts of illness while maintaining inner integrity’ with three subthemes (disease cognition, firm faith and positive attitude); ‘clarify one’s own needs and strive for them’ with four subthemes (self-care knowledge, effective communication, independent decision-making and power from relation); ‘enhancing subjective initiative and maintaining healthy behaviours’ with three subthemes (active participant in disease management, increased treatment compliance and increased initiative in rehabilitation exercises). Three stage experiences themes were motivation, response and stabilisation stage.Conclusions In this study, patients who had a stroke showed more positive perceptions of self-advocacy. Self-advocacy is a dynamic and progressive process of accepting their disease and actively participating in disease treatment. In addition, patients’ health behaviours are improved and maintained when they engage in self-advocacy.https://bmjopen.bmj.com/content/14/12/e091273.full |
spellingShingle | Shanshan Wang Zhen-Xiang Zhang Yong-Xia Mei Chunhui Zhang Bei-lei Lin Hu Jiang Xiaoxuan Wang Zhixin Zhao Self-advocacy positive perceptions and stage experiences in patients who had a stroke: a qualitative study in China BMJ Open |
title | Self-advocacy positive perceptions and stage experiences in patients who had a stroke: a qualitative study in China |
title_full | Self-advocacy positive perceptions and stage experiences in patients who had a stroke: a qualitative study in China |
title_fullStr | Self-advocacy positive perceptions and stage experiences in patients who had a stroke: a qualitative study in China |
title_full_unstemmed | Self-advocacy positive perceptions and stage experiences in patients who had a stroke: a qualitative study in China |
title_short | Self-advocacy positive perceptions and stage experiences in patients who had a stroke: a qualitative study in China |
title_sort | self advocacy positive perceptions and stage experiences in patients who had a stroke a qualitative study in china |
url | https://bmjopen.bmj.com/content/14/12/e091273.full |
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