Self-advocacy positive perceptions and stage experiences in patients who had a stroke: a qualitative study in China

Objectives This study explored the perceptions and experiences of self-advocacy among patients who had a stroke in China.Design A descriptive phenomenological qualitative study was performed. Colaizzi’s seven-step method was used to analyse the data.Setting Two hospitals in Zhengzhou and Luoyang Cit...

Full description

Saved in:
Bibliographic Details
Main Authors: Shanshan Wang, Zhen-Xiang Zhang, Yong-Xia Mei, Chunhui Zhang, Bei-lei Lin, Hu Jiang, Xiaoxuan Wang, Zhixin Zhao
Format: Article
Language:English
Published: BMJ Publishing Group 2024-12-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/14/12/e091273.full
Tags: Add Tag
No Tags, Be the first to tag this record!
_version_ 1841537158827999232
author Shanshan Wang
Zhen-Xiang Zhang
Yong-Xia Mei
Chunhui Zhang
Bei-lei Lin
Hu Jiang
Xiaoxuan Wang
Zhixin Zhao
author_facet Shanshan Wang
Zhen-Xiang Zhang
Yong-Xia Mei
Chunhui Zhang
Bei-lei Lin
Hu Jiang
Xiaoxuan Wang
Zhixin Zhao
author_sort Shanshan Wang
collection DOAJ
description Objectives This study explored the perceptions and experiences of self-advocacy among patients who had a stroke in China.Design A descriptive phenomenological qualitative study was performed. Colaizzi’s seven-step method was used to analyse the data.Setting Two hospitals in Zhengzhou and Luoyang City, Henan Province, China.Participants 19 patients who had a stroke were recruited and interviewed face-to-face between October 2023 and February 2024.Results The findings revealed two categories: positive perceptions and stage experiences. Three themes of positive perceptions were extracted: ‘accept the facts of illness while maintaining inner integrity’ with three subthemes (disease cognition, firm faith and positive attitude); ‘clarify one’s own needs and strive for them’ with four subthemes (self-care knowledge, effective communication, independent decision-making and power from relation); ‘enhancing subjective initiative and maintaining healthy behaviours’ with three subthemes (active participant in disease management, increased treatment compliance and increased initiative in rehabilitation exercises). Three stage experiences themes were motivation, response and stabilisation stage.Conclusions In this study, patients who had a stroke showed more positive perceptions of self-advocacy. Self-advocacy is a dynamic and progressive process of accepting their disease and actively participating in disease treatment. In addition, patients’ health behaviours are improved and maintained when they engage in self-advocacy.
format Article
id doaj-art-daec380ff8914e3cb4c6bdadf00f61c0
institution Kabale University
issn 2044-6055
language English
publishDate 2024-12-01
publisher BMJ Publishing Group
record_format Article
series BMJ Open
spelling doaj-art-daec380ff8914e3cb4c6bdadf00f61c02025-01-14T08:45:11ZengBMJ Publishing GroupBMJ Open2044-60552024-12-01141210.1136/bmjopen-2024-091273Self-advocacy positive perceptions and stage experiences in patients who had a stroke: a qualitative study in ChinaShanshan Wang0Zhen-Xiang Zhang1Yong-Xia Mei2Chunhui Zhang3Bei-lei Lin4Hu Jiang5Xiaoxuan Wang6Zhixin Zhao73 School of Nursing, The Hong Kong Polytechnic University, Hong Kong, China1 School of Nursing and Health, Zhengzhou University, Zhengzhou, China1 School of Nursing and Health, Zhengzhou University, Zhengzhou, China2 Southern Medical University, Guangzhou, Baiyun District Guangdong, China1 School of Nursing and Health, Zhengzhou University, Zhengzhou, China1 School of Nursing and Health, Zhengzhou University, Zhengzhou, China1 School of Nursing and Health, Zhengzhou University, Zhengzhou, China1 School of Nursing and Health, Zhengzhou University, Zhengzhou, ChinaObjectives This study explored the perceptions and experiences of self-advocacy among patients who had a stroke in China.Design A descriptive phenomenological qualitative study was performed. Colaizzi’s seven-step method was used to analyse the data.Setting Two hospitals in Zhengzhou and Luoyang City, Henan Province, China.Participants 19 patients who had a stroke were recruited and interviewed face-to-face between October 2023 and February 2024.Results The findings revealed two categories: positive perceptions and stage experiences. Three themes of positive perceptions were extracted: ‘accept the facts of illness while maintaining inner integrity’ with three subthemes (disease cognition, firm faith and positive attitude); ‘clarify one’s own needs and strive for them’ with four subthemes (self-care knowledge, effective communication, independent decision-making and power from relation); ‘enhancing subjective initiative and maintaining healthy behaviours’ with three subthemes (active participant in disease management, increased treatment compliance and increased initiative in rehabilitation exercises). Three stage experiences themes were motivation, response and stabilisation stage.Conclusions In this study, patients who had a stroke showed more positive perceptions of self-advocacy. Self-advocacy is a dynamic and progressive process of accepting their disease and actively participating in disease treatment. In addition, patients’ health behaviours are improved and maintained when they engage in self-advocacy.https://bmjopen.bmj.com/content/14/12/e091273.full
spellingShingle Shanshan Wang
Zhen-Xiang Zhang
Yong-Xia Mei
Chunhui Zhang
Bei-lei Lin
Hu Jiang
Xiaoxuan Wang
Zhixin Zhao
Self-advocacy positive perceptions and stage experiences in patients who had a stroke: a qualitative study in China
BMJ Open
title Self-advocacy positive perceptions and stage experiences in patients who had a stroke: a qualitative study in China
title_full Self-advocacy positive perceptions and stage experiences in patients who had a stroke: a qualitative study in China
title_fullStr Self-advocacy positive perceptions and stage experiences in patients who had a stroke: a qualitative study in China
title_full_unstemmed Self-advocacy positive perceptions and stage experiences in patients who had a stroke: a qualitative study in China
title_short Self-advocacy positive perceptions and stage experiences in patients who had a stroke: a qualitative study in China
title_sort self advocacy positive perceptions and stage experiences in patients who had a stroke a qualitative study in china
url https://bmjopen.bmj.com/content/14/12/e091273.full
work_keys_str_mv AT shanshanwang selfadvocacypositiveperceptionsandstageexperiencesinpatientswhohadastrokeaqualitativestudyinchina
AT zhenxiangzhang selfadvocacypositiveperceptionsandstageexperiencesinpatientswhohadastrokeaqualitativestudyinchina
AT yongxiamei selfadvocacypositiveperceptionsandstageexperiencesinpatientswhohadastrokeaqualitativestudyinchina
AT chunhuizhang selfadvocacypositiveperceptionsandstageexperiencesinpatientswhohadastrokeaqualitativestudyinchina
AT beileilin selfadvocacypositiveperceptionsandstageexperiencesinpatientswhohadastrokeaqualitativestudyinchina
AT hujiang selfadvocacypositiveperceptionsandstageexperiencesinpatientswhohadastrokeaqualitativestudyinchina
AT xiaoxuanwang selfadvocacypositiveperceptionsandstageexperiencesinpatientswhohadastrokeaqualitativestudyinchina
AT zhixinzhao selfadvocacypositiveperceptionsandstageexperiencesinpatientswhohadastrokeaqualitativestudyinchina