Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Randomized Controlled Trial
Abstract BackgroundAs dementia progresses, patients exhibit various psychological and behavioral symptoms, imposing a significant burden on families and society, including behavioral and psychological symptoms of dementia. However, caregivers lack professional care knowledge a...
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| Format: | Article |
| Language: | English |
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JMIR Publications
2024-10-01
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| Series: | JMIR Aging |
| Online Access: | https://aging.jmir.org/2024/1/e50847 |
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| author | Yanhong Xie Shanshan Shen Caixia Liu Hong Hong Huilan Guan Jingmei Zhang Wanqi Yu |
| author_facet | Yanhong Xie Shanshan Shen Caixia Liu Hong Hong Huilan Guan Jingmei Zhang Wanqi Yu |
| author_sort | Yanhong Xie |
| collection | DOAJ |
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Abstract
BackgroundAs dementia progresses, patients exhibit various psychological and behavioral symptoms, imposing a significant burden on families and society, including behavioral and psychological symptoms of dementia. However, caregivers lack professional care knowledge and skills, making it difficult for them to effectively cope with the diverse challenges of caregiving. Therefore, it is necessary to provide caregivers with professional knowledge and skills guidance.
ObjectiveThis study aimed to analyze the impact of internet-based training on behavioral and psychological symptoms of dementia in patients, and explore how this training model affects the caregiving abilities and caregiving burden of the family caregivers of patients with dementia.
MethodsUsing a consecutive enrollment method, the Department of Geriatrics at Zhejiang Hospital (Zhejiang, China) recruited 72 informal caregivers of patients with dementia. These caregivers were randomly divided into an intervention group and a control group, with 36 participants in each group. The intervention group underwent caregiver skill training via a web-based platform, whereas the control group initially received face-to-face follow-up guidance and was subsequently offered web-based training after 6 months. To assess the effectiveness of the intervention program, we used the Neuropsychiatric Inventory Questionnaire (NPI-Q), the Chinese version of the Zarit Burden Interview (CZBI), and the Sense of Competence in Dementia Care Staff Scale (SCIDS) for evaluations conducted before the intervention, 3 months after the intervention, and 6 months after the intervention.
ResultsBetween July 2019 and December 2020, a total of 66 patients successfully completed the intervention and follow-up. After 6 months of intervention, the NPI-Q score of the intervention group was 3.18 (SD 3.81), the CZBI score was 10.97 (SD 5.43), and the SCIDS score was 71.88 (SD 4.78). The NPI-Q score of the control group was 8.09 (SD 8.52), the CZBI score was 30.30 (SD 13.05), and the SCIDS score was 50.12 (SD 9.10). There were statistically significant differences in NPI-Q (PPPPPPPPPPPP
ConclusionsInternet-based training could significantly reduce the level of behavioral symptoms in older patients with dementia and alleviate the burden on caregivers, enhancing their caregiving abilities. Our results confirmed the effectiveness and feasibility of web-based training, which was of great significance in providing caregiving knowledge training for informal caregivers of persons with dementia. |
| format | Article |
| id | doaj-art-dad6b7f94e484bbbabed2a9df0bf1d67 |
| institution | Kabale University |
| issn | 2561-7605 |
| language | English |
| publishDate | 2024-10-01 |
| publisher | JMIR Publications |
| record_format | Article |
| series | JMIR Aging |
| spelling | doaj-art-dad6b7f94e484bbbabed2a9df0bf1d672025-02-05T16:18:19ZengJMIR PublicationsJMIR Aging2561-76052024-10-017e50847e5084710.2196/50847Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Randomized Controlled TrialYanhong Xiehttp://orcid.org/0000-0003-1030-4481Shanshan Shenhttp://orcid.org/0000-0002-0531-6333Caixia Liuhttp://orcid.org/0000-0003-2329-2934Hong Honghttp://orcid.org/0009-0001-1372-1670Huilan Guanhttp://orcid.org/0009-0001-0910-2455Jingmei Zhanghttp://orcid.org/0009-0006-8118-1377Wanqi Yuhttp://orcid.org/0009-0007-1590-2938 Abstract BackgroundAs dementia progresses, patients exhibit various psychological and behavioral symptoms, imposing a significant burden on families and society, including behavioral and psychological symptoms of dementia. However, caregivers lack professional care knowledge and skills, making it difficult for them to effectively cope with the diverse challenges of caregiving. Therefore, it is necessary to provide caregivers with professional knowledge and skills guidance. ObjectiveThis study aimed to analyze the impact of internet-based training on behavioral and psychological symptoms of dementia in patients, and explore how this training model affects the caregiving abilities and caregiving burden of the family caregivers of patients with dementia. MethodsUsing a consecutive enrollment method, the Department of Geriatrics at Zhejiang Hospital (Zhejiang, China) recruited 72 informal caregivers of patients with dementia. These caregivers were randomly divided into an intervention group and a control group, with 36 participants in each group. The intervention group underwent caregiver skill training via a web-based platform, whereas the control group initially received face-to-face follow-up guidance and was subsequently offered web-based training after 6 months. To assess the effectiveness of the intervention program, we used the Neuropsychiatric Inventory Questionnaire (NPI-Q), the Chinese version of the Zarit Burden Interview (CZBI), and the Sense of Competence in Dementia Care Staff Scale (SCIDS) for evaluations conducted before the intervention, 3 months after the intervention, and 6 months after the intervention. ResultsBetween July 2019 and December 2020, a total of 66 patients successfully completed the intervention and follow-up. After 6 months of intervention, the NPI-Q score of the intervention group was 3.18 (SD 3.81), the CZBI score was 10.97 (SD 5.43), and the SCIDS score was 71.88 (SD 4.78). The NPI-Q score of the control group was 8.09 (SD 8.52), the CZBI score was 30.30 (SD 13.05), and the SCIDS score was 50.12 (SD 9.10). There were statistically significant differences in NPI-Q (PPPPPPPPPPPP ConclusionsInternet-based training could significantly reduce the level of behavioral symptoms in older patients with dementia and alleviate the burden on caregivers, enhancing their caregiving abilities. Our results confirmed the effectiveness and feasibility of web-based training, which was of great significance in providing caregiving knowledge training for informal caregivers of persons with dementia.https://aging.jmir.org/2024/1/e50847 |
| spellingShingle | Yanhong Xie Shanshan Shen Caixia Liu Hong Hong Huilan Guan Jingmei Zhang Wanqi Yu Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Randomized Controlled Trial JMIR Aging |
| title | Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Randomized Controlled Trial |
| title_full | Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Randomized Controlled Trial |
| title_fullStr | Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Randomized Controlled Trial |
| title_full_unstemmed | Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Randomized Controlled Trial |
| title_short | Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Randomized Controlled Trial |
| title_sort | internet based supportive interventions for family caregivers of people with dementia randomized controlled trial |
| url | https://aging.jmir.org/2024/1/e50847 |
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