Fragmented care in lupus: Patient experiences and insights
Background: Systemic lupus erythematosus (SLE) is a complex autoimmune disease requiring interprofessional collaborative care because of its varied manifestations. This study explores the experiences of individuals living with SLE regarding the communication and collaboration among their healthcare...
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| Format: | Article |
| Language: | English |
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AOSIS
2025-01-01
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| Series: | African Journal of Disability |
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| Online Access: | https://ajod.org/index.php/ajod/article/view/1562 |
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| _version_ | 1823858228942864384 |
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| author | Armand Bam |
| author_facet | Armand Bam |
| author_sort | Armand Bam |
| collection | DOAJ |
| description | Background: Systemic lupus erythematosus (SLE) is a complex autoimmune disease requiring interprofessional collaborative care because of its varied manifestations. This study explores the experiences of individuals living with SLE regarding the communication and collaboration among their healthcare providers.
Objectives: This study aimed to explore the communication dynamics that shape treatment experiences and well-being in SLE care.
Method: A qualitative multiple case study design was used, with thematic analysis of semi-structured interviews from six people living with SLE.
Results: Three primary themes emerged: the necessity of cohesive healthcare teams, the centrality of client-centred care and the significant challenges posed by fragmented healthcare systems.
Conclusion: The study highlights the need for integrated care models to enhance communication and coordination among healthcare providers.
Contribution: This research adds empirical insights into the communication dynamics within medical teams managing SLE, advocating for client-centred and systemic improvements in care coordination. |
| format | Article |
| id | doaj-art-dab95302427344cd8f173efa6c161bf0 |
| institution | Kabale University |
| issn | 2223-9170 2226-7220 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | AOSIS |
| record_format | Article |
| series | African Journal of Disability |
| spelling | doaj-art-dab95302427344cd8f173efa6c161bf02025-02-11T13:22:07ZengAOSISAfrican Journal of Disability2223-91702226-72202025-01-01140e1e1210.4102/ajod.v14i0.1562437Fragmented care in lupus: Patient experiences and insightsArmand Bam0Stellenbosch Business School, Faculty of Economics and Management Science, Stellenbosch University, Cape TownBackground: Systemic lupus erythematosus (SLE) is a complex autoimmune disease requiring interprofessional collaborative care because of its varied manifestations. This study explores the experiences of individuals living with SLE regarding the communication and collaboration among their healthcare providers. Objectives: This study aimed to explore the communication dynamics that shape treatment experiences and well-being in SLE care. Method: A qualitative multiple case study design was used, with thematic analysis of semi-structured interviews from six people living with SLE. Results: Three primary themes emerged: the necessity of cohesive healthcare teams, the centrality of client-centred care and the significant challenges posed by fragmented healthcare systems. Conclusion: The study highlights the need for integrated care models to enhance communication and coordination among healthcare providers. Contribution: This research adds empirical insights into the communication dynamics within medical teams managing SLE, advocating for client-centred and systemic improvements in care coordination.https://ajod.org/index.php/ajod/article/view/1562systemic lupus erythematosuschronic illness managementmultidisciplinary carecare fragmentationpatient-centredinterprofessional collaborationteam dynamicsintegrated care. |
| spellingShingle | Armand Bam Fragmented care in lupus: Patient experiences and insights African Journal of Disability systemic lupus erythematosus chronic illness management multidisciplinary care care fragmentation patient-centred interprofessional collaboration team dynamics integrated care. |
| title | Fragmented care in lupus: Patient experiences and insights |
| title_full | Fragmented care in lupus: Patient experiences and insights |
| title_fullStr | Fragmented care in lupus: Patient experiences and insights |
| title_full_unstemmed | Fragmented care in lupus: Patient experiences and insights |
| title_short | Fragmented care in lupus: Patient experiences and insights |
| title_sort | fragmented care in lupus patient experiences and insights |
| topic | systemic lupus erythematosus chronic illness management multidisciplinary care care fragmentation patient-centred interprofessional collaboration team dynamics integrated care. |
| url | https://ajod.org/index.php/ajod/article/view/1562 |
| work_keys_str_mv | AT armandbam fragmentedcareinlupuspatientexperiencesandinsights |