How people with multiple sclerosis rate their quality of life: an EQ-5D survey via the UK MS register.
<h4>Introduction</h4>The EQ-5D is a widely-used, standardised, quality of life measure producing health profiles, indices and states. The aims of this study were to assess the role of various factors in how people with Multiple Sclerosis rate their quality of life, based on responses to...
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Public Library of Science (PLoS)
2013-01-01
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| Series: | PLoS ONE |
| Online Access: | https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0065640&type=printable |
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| author | Kerina H Jones David V Ford Philip A Jones Ann John Rodden M Middleton Hazel Lockhart-Jones Jeffrey Peng Lisa A Osborne J Gareth Noble |
| author_facet | Kerina H Jones David V Ford Philip A Jones Ann John Rodden M Middleton Hazel Lockhart-Jones Jeffrey Peng Lisa A Osborne J Gareth Noble |
| author_sort | Kerina H Jones |
| collection | DOAJ |
| description | <h4>Introduction</h4>The EQ-5D is a widely-used, standardised, quality of life measure producing health profiles, indices and states. The aims of this study were to assess the role of various factors in how people with Multiple Sclerosis rate their quality of life, based on responses to the EQ-5D received via the web portal of the UK MS Register.<h4>Methods</h4>The 4516 responses to the EQ-5D (between May 2011 and April 2012) were collated with basic demographic and descriptive MS data and the resulting dataset was analysed in SPSS (v.20).<h4>Results</h4>The mean health state for people with MS was 59.73 (SD 22.4, median 61), compared to the UK population mean of 82.48 (which is approximately 1SD above the cohort mean). The characteristics of respondents with high health states (at or above +1SD) were: better health profiles (most predictive dimension: Usual Activities), higher health indices, younger age, shorter durations of MS, female gender, relapsing-remitting MS, higher educational attainment and being in paid employment (all p-values<0.001). Conversely, the characteristics of respondents with low health states (at or below -1SD) were: poorer health profiles (most predictive dimension: Mobility), lower health indices, older age, longer durations of MS, male gender, progressive MS, lower educational attainment and having an employment status of sick/disabled (p = 0.0014 for age, all other p-values<0.001). Particular living arrangements were not associated with either the high or low health status groups.<h4>Conclusions</h4>This large-scale study has enabled in-depth analyses on how people with MS rate their quality of life, and it provides new knowledge on the various factors that contribute to their self-assessed health status. These findings demonstrate the impact of MS on quality of life, and they can be used to inform care provision and further research, to work towards enhancing the quality of life of people with MS. |
| format | Article |
| id | doaj-art-da103ccfbaa548ab8ff73d628ab93285 |
| institution | Kabale University |
| issn | 1932-6203 |
| language | English |
| publishDate | 2013-01-01 |
| publisher | Public Library of Science (PLoS) |
| record_format | Article |
| series | PLoS ONE |
| spelling | doaj-art-da103ccfbaa548ab8ff73d628ab932852025-08-20T03:26:48ZengPublic Library of Science (PLoS)PLoS ONE1932-62032013-01-0186e6564010.1371/journal.pone.0065640How people with multiple sclerosis rate their quality of life: an EQ-5D survey via the UK MS register.Kerina H JonesDavid V FordPhilip A JonesAnn JohnRodden M MiddletonHazel Lockhart-JonesJeffrey PengLisa A OsborneJ Gareth Noble<h4>Introduction</h4>The EQ-5D is a widely-used, standardised, quality of life measure producing health profiles, indices and states. The aims of this study were to assess the role of various factors in how people with Multiple Sclerosis rate their quality of life, based on responses to the EQ-5D received via the web portal of the UK MS Register.<h4>Methods</h4>The 4516 responses to the EQ-5D (between May 2011 and April 2012) were collated with basic demographic and descriptive MS data and the resulting dataset was analysed in SPSS (v.20).<h4>Results</h4>The mean health state for people with MS was 59.73 (SD 22.4, median 61), compared to the UK population mean of 82.48 (which is approximately 1SD above the cohort mean). The characteristics of respondents with high health states (at or above +1SD) were: better health profiles (most predictive dimension: Usual Activities), higher health indices, younger age, shorter durations of MS, female gender, relapsing-remitting MS, higher educational attainment and being in paid employment (all p-values<0.001). Conversely, the characteristics of respondents with low health states (at or below -1SD) were: poorer health profiles (most predictive dimension: Mobility), lower health indices, older age, longer durations of MS, male gender, progressive MS, lower educational attainment and having an employment status of sick/disabled (p = 0.0014 for age, all other p-values<0.001). Particular living arrangements were not associated with either the high or low health status groups.<h4>Conclusions</h4>This large-scale study has enabled in-depth analyses on how people with MS rate their quality of life, and it provides new knowledge on the various factors that contribute to their self-assessed health status. These findings demonstrate the impact of MS on quality of life, and they can be used to inform care provision and further research, to work towards enhancing the quality of life of people with MS.https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0065640&type=printable |
| spellingShingle | Kerina H Jones David V Ford Philip A Jones Ann John Rodden M Middleton Hazel Lockhart-Jones Jeffrey Peng Lisa A Osborne J Gareth Noble How people with multiple sclerosis rate their quality of life: an EQ-5D survey via the UK MS register. PLoS ONE |
| title | How people with multiple sclerosis rate their quality of life: an EQ-5D survey via the UK MS register. |
| title_full | How people with multiple sclerosis rate their quality of life: an EQ-5D survey via the UK MS register. |
| title_fullStr | How people with multiple sclerosis rate their quality of life: an EQ-5D survey via the UK MS register. |
| title_full_unstemmed | How people with multiple sclerosis rate their quality of life: an EQ-5D survey via the UK MS register. |
| title_short | How people with multiple sclerosis rate their quality of life: an EQ-5D survey via the UK MS register. |
| title_sort | how people with multiple sclerosis rate their quality of life an eq 5d survey via the uk ms register |
| url | https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0065640&type=printable |
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