The Life Impact Burn Recovery Evaluation (LIBRE) Profile: Historical Overview and Future Directions
The Life Impact Burn Recovery Evaluation (LIBRE) Profile was developed to assess long-term social participation outcomes for adult burn survivors. Traditional clinical burn recovery outcomes focus on early physical complications and psychosocial issues, but there is a growing need for quantitative m...
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| Format: | Article |
| Language: | English |
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MDPI AG
2025-05-01
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| Series: | European Burn Journal |
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| Online Access: | https://www.mdpi.com/2673-1991/6/2/23 |
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| author | Colleen M. Ryan Jeffrey C. Schneider Pengsheng Ni Mary D. Slavin Amy Acton Ananya Vasudevan Allan Sosa-Ebert Lewis E. Kazis |
| author_facet | Colleen M. Ryan Jeffrey C. Schneider Pengsheng Ni Mary D. Slavin Amy Acton Ananya Vasudevan Allan Sosa-Ebert Lewis E. Kazis |
| author_sort | Colleen M. Ryan |
| collection | DOAJ |
| description | The Life Impact Burn Recovery Evaluation (LIBRE) Profile was developed to assess long-term social participation outcomes for adult burn survivors. Traditional clinical burn recovery outcomes focus on early physical complications and psychosocial issues, but there is a growing need for quantitative measures of long-term recovery that assess experiences deemed relevant to burn survivors. The LIBRE Profile, co-produced with input from burn survivors and clinicians and grounded in the World Health Organization’s International Classification of Functioning, Disability and Health (WHO-ICF) conceptual framework, addresses the measurement gap by focusing on six domains of social participation: social interactions, social activities, family and friends, work and employment, romantic relationships, and sexual relationships. The LIBRE Profile uses Item Response Theory (IRT) and computer adaptive tests (CAT) to minimize respondent burden while maintaining accuracy. Psychometric evaluations have validated the LIBRE Profile as a reliable and clinically useful tool that can help clinicians and burn survivors monitor recovery and inform personalized care. Future work includes LIBRE Profile development for pediatric populations, further international language translations, and the development of an APP for broader personal and clinical use. This paper provides a comprehensive overview of the LIBRE Profile’s development, psychometric foundations, and future directions, advocating for its adoption in clinical practice and burn survivor communities. |
| format | Article |
| id | doaj-art-d9bceb36ffb741188c5eaccee748564c |
| institution | Kabale University |
| issn | 2673-1991 |
| language | English |
| publishDate | 2025-05-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | European Burn Journal |
| spelling | doaj-art-d9bceb36ffb741188c5eaccee748564c2025-08-20T03:26:56ZengMDPI AGEuropean Burn Journal2673-19912025-05-01622310.3390/ebj6020023The Life Impact Burn Recovery Evaluation (LIBRE) Profile: Historical Overview and Future DirectionsColleen M. Ryan0Jeffrey C. Schneider1Pengsheng Ni2Mary D. Slavin3Amy Acton4Ananya Vasudevan5Allan Sosa-Ebert6Lewis E. Kazis7Department of Surgery, Massachusetts General Hospital, Harvard Medical School, Boston, MA 02114, USADepartment of Physical Medicine and Rehabilitation, Schoen Adams Research Institute, Rehabilitation Outcomes Center (ROC), Spaulding Rehabilitation Hospital, Harvard Medical School, Boston, MA 02129, USADepartment of Health Law, Policy, and Management, Boston University School of Public Health, Boston, MA 02118, USADepartment of Physical Medicine and Rehabilitation, Schoen Adams Research Institute, Rehabilitation Outcomes Center (ROC), Spaulding Rehabilitation Hospital, Harvard Medical School, Boston, MA 02129, USAPhoenix Society for Burn Survivors, Kentwood, MI 49508, USADepartment of Anesthesiology, Tufts Medical Center, Boston, MA 02111, USAElmhurst Hospital Center—Internal Medicine Residency Program, Elmhurst, New York, NY 11373, USADepartment of Physical Medicine and Rehabilitation, Schoen Adams Research Institute, Rehabilitation Outcomes Center (ROC), Spaulding Rehabilitation Hospital, Harvard Medical School, Boston, MA 02129, USAThe Life Impact Burn Recovery Evaluation (LIBRE) Profile was developed to assess long-term social participation outcomes for adult burn survivors. Traditional clinical burn recovery outcomes focus on early physical complications and psychosocial issues, but there is a growing need for quantitative measures of long-term recovery that assess experiences deemed relevant to burn survivors. The LIBRE Profile, co-produced with input from burn survivors and clinicians and grounded in the World Health Organization’s International Classification of Functioning, Disability and Health (WHO-ICF) conceptual framework, addresses the measurement gap by focusing on six domains of social participation: social interactions, social activities, family and friends, work and employment, romantic relationships, and sexual relationships. The LIBRE Profile uses Item Response Theory (IRT) and computer adaptive tests (CAT) to minimize respondent burden while maintaining accuracy. Psychometric evaluations have validated the LIBRE Profile as a reliable and clinically useful tool that can help clinicians and burn survivors monitor recovery and inform personalized care. Future work includes LIBRE Profile development for pediatric populations, further international language translations, and the development of an APP for broader personal and clinical use. This paper provides a comprehensive overview of the LIBRE Profile’s development, psychometric foundations, and future directions, advocating for its adoption in clinical practice and burn survivor communities.https://www.mdpi.com/2673-1991/6/2/23burnthermal injuryPROMpatient reported outcome measureLIBRElife impact burn recovery evaluation |
| spellingShingle | Colleen M. Ryan Jeffrey C. Schneider Pengsheng Ni Mary D. Slavin Amy Acton Ananya Vasudevan Allan Sosa-Ebert Lewis E. Kazis The Life Impact Burn Recovery Evaluation (LIBRE) Profile: Historical Overview and Future Directions European Burn Journal burn thermal injury PROM patient reported outcome measure LIBRE life impact burn recovery evaluation |
| title | The Life Impact Burn Recovery Evaluation (LIBRE) Profile: Historical Overview and Future Directions |
| title_full | The Life Impact Burn Recovery Evaluation (LIBRE) Profile: Historical Overview and Future Directions |
| title_fullStr | The Life Impact Burn Recovery Evaluation (LIBRE) Profile: Historical Overview and Future Directions |
| title_full_unstemmed | The Life Impact Burn Recovery Evaluation (LIBRE) Profile: Historical Overview and Future Directions |
| title_short | The Life Impact Burn Recovery Evaluation (LIBRE) Profile: Historical Overview and Future Directions |
| title_sort | life impact burn recovery evaluation libre profile historical overview and future directions |
| topic | burn thermal injury PROM patient reported outcome measure LIBRE life impact burn recovery evaluation |
| url | https://www.mdpi.com/2673-1991/6/2/23 |
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