The effects of information and communication technologies on informal caregivers of persons living with dementia: A systematic review

Abstract Introduction Information and communication technology (ICT) has emerged as promising to support health care consumers, including informal caregivers. This systematic review seeks to evaluate the state of the science of ICT interventions on the health of informal dementia caregivers. Methods...

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Main Authors: Robert J. Lucero, Elizabeth A. Fehlberg, Aditi G.M. Patel, Ragnhildur I. Bjarnardottir, Renessa Williams, Karis Lee, Margaret Ansell, Suzanne Bakken, Jose A. Luchsinger, Mary Mittelman
Format: Article
Language:English
Published: Wiley 2019-01-01
Series:Alzheimer’s & Dementia: Translational Research & Clinical Interventions
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Online Access:https://doi.org/10.1016/j.trci.2018.11.003
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author Robert J. Lucero
Elizabeth A. Fehlberg
Aditi G.M. Patel
Ragnhildur I. Bjarnardottir
Renessa Williams
Karis Lee
Margaret Ansell
Suzanne Bakken
Jose A. Luchsinger
Mary Mittelman
author_facet Robert J. Lucero
Elizabeth A. Fehlberg
Aditi G.M. Patel
Ragnhildur I. Bjarnardottir
Renessa Williams
Karis Lee
Margaret Ansell
Suzanne Bakken
Jose A. Luchsinger
Mary Mittelman
author_sort Robert J. Lucero
collection DOAJ
description Abstract Introduction Information and communication technology (ICT) has emerged as promising to support health care consumers, including informal caregivers. This systematic review seeks to evaluate the state of the science of ICT interventions on the health of informal dementia caregivers. Methods We searched PubMed, CINAHL, Web of Science, and PsycINFO using concepts associated with ICT, dementia, and caregiver. Studies were assessed using the Quality Assessment Tool for Quantitative Studies. Results We identified 657 full‐text publications. After removal of duplicates and title, abstract, and full‐text screening, the quality of 12 studies was assessed. Studies varied in technology, implementation, results, and intervention evaluation. Discussion The methodological quality of the ICT intervention studies among dementia family caregivers was moderate to strong, yet outcome measurement was not uniform. The evidence is strongest for various forms of telephone‐based interventions. However, there is a need for research that includes heterogeneous participants based on gender, race, and ethnicity.
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spelling doaj-art-d928ff9efd9e4e97af174dc894f142652025-08-20T02:09:55ZengWileyAlzheimer’s & Dementia: Translational Research & Clinical Interventions2352-87372019-01-015111210.1016/j.trci.2018.11.003The effects of information and communication technologies on informal caregivers of persons living with dementia: A systematic reviewRobert J. Lucero0Elizabeth A. Fehlberg1Aditi G.M. Patel2Ragnhildur I. Bjarnardottir3Renessa Williams4Karis Lee5Margaret Ansell6Suzanne Bakken7Jose A. Luchsinger8Mary Mittelman9Department of Family, Community, and Health Systems ScienceUniversity of Florida, College of NursingGainesvilleFLUSADivision of Research on Healthcare Value, Equity, and the LifespanRTI InternationalRaleighNCUSADepartment of Health Outcomes and Biomedical InformaticsUniversity of Florida, College of MedicineGainesvilleFLUSADepartment of Family, Community, and Health Systems ScienceUniversity of Florida, College of NursingGainesvilleFLUSADepartment of Family, Community, and Health Systems ScienceUniversity of Florida, College of NursingGainesvilleFLUSAUniversity of Central Florida, College of NursingOrlandoFLUSAHealth Science Center LibrariesUniversity of FloridaGainesvilleFLUSAColumbia University, School of NursingNew YorkNYUSAColumbia University, College of Physicians and SurgeonsNew YorkNYUSADepartments of Psychiatry and Rehabilitation MedicineNew York University, Langone HealthNew YorkNYUSAAbstract Introduction Information and communication technology (ICT) has emerged as promising to support health care consumers, including informal caregivers. This systematic review seeks to evaluate the state of the science of ICT interventions on the health of informal dementia caregivers. Methods We searched PubMed, CINAHL, Web of Science, and PsycINFO using concepts associated with ICT, dementia, and caregiver. Studies were assessed using the Quality Assessment Tool for Quantitative Studies. Results We identified 657 full‐text publications. After removal of duplicates and title, abstract, and full‐text screening, the quality of 12 studies was assessed. Studies varied in technology, implementation, results, and intervention evaluation. Discussion The methodological quality of the ICT intervention studies among dementia family caregivers was moderate to strong, yet outcome measurement was not uniform. The evidence is strongest for various forms of telephone‐based interventions. However, there is a need for research that includes heterogeneous participants based on gender, race, and ethnicity.https://doi.org/10.1016/j.trci.2018.11.003Information and communication technologyInformal dementia caregiversSystematic reviewInterventionsRandomized controlled trial
spellingShingle Robert J. Lucero
Elizabeth A. Fehlberg
Aditi G.M. Patel
Ragnhildur I. Bjarnardottir
Renessa Williams
Karis Lee
Margaret Ansell
Suzanne Bakken
Jose A. Luchsinger
Mary Mittelman
The effects of information and communication technologies on informal caregivers of persons living with dementia: A systematic review
Alzheimer’s & Dementia: Translational Research & Clinical Interventions
Information and communication technology
Informal dementia caregivers
Systematic review
Interventions
Randomized controlled trial
title The effects of information and communication technologies on informal caregivers of persons living with dementia: A systematic review
title_full The effects of information and communication technologies on informal caregivers of persons living with dementia: A systematic review
title_fullStr The effects of information and communication technologies on informal caregivers of persons living with dementia: A systematic review
title_full_unstemmed The effects of information and communication technologies on informal caregivers of persons living with dementia: A systematic review
title_short The effects of information and communication technologies on informal caregivers of persons living with dementia: A systematic review
title_sort effects of information and communication technologies on informal caregivers of persons living with dementia a systematic review
topic Information and communication technology
Informal dementia caregivers
Systematic review
Interventions
Randomized controlled trial
url https://doi.org/10.1016/j.trci.2018.11.003
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