Validation of the Pearlin Mastery Scale for unpaid caregivers of people living with dementia in Brazil: a methodological study

ABSTRACT BACKGROUND: Sense of mastery has been described in the literature as a psychological resource potentially associated with reduced caregiver burden. However, there are no validated instruments in the Brazilian context that allow the evaluation of the sense of mastery as a possible outcome o...

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Main Authors: Gustavo Carrijo Barbosa, Diana Quirino Monteiro, Ana Carolina Ottaviani, Camila Rafael Ferreira Campos, Ludmyla Caroline de Souza Alves, Gabriela Martins, Larissa Corrêa, Luana Aparecida da Rocha, Sofia Cristina Iost Pavarini, Elizabeth Joan Barham, Fabiana de Souza Orlandi, Keila Cristianne Trindade da Cruz, Deborah Oliveira, Aline Cristina Martins Gratão
Format: Article
Language:English
Published: Associação Paulista de Medicina 2025-08-01
Series:São Paulo Medical Journal
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Online Access:http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1516-31802025000500203&lng=en&tlng=en
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author Gustavo Carrijo Barbosa
Diana Quirino Monteiro
Ana Carolina Ottaviani
Camila Rafael Ferreira Campos
Ludmyla Caroline de Souza Alves
Gabriela Martins
Larissa Corrêa
Luana Aparecida da Rocha
Sofia Cristina Iost Pavarini
Elizabeth Joan Barham
Fabiana de Souza Orlandi
Keila Cristianne Trindade da Cruz
Deborah Oliveira
Aline Cristina Martins Gratão
author_facet Gustavo Carrijo Barbosa
Diana Quirino Monteiro
Ana Carolina Ottaviani
Camila Rafael Ferreira Campos
Ludmyla Caroline de Souza Alves
Gabriela Martins
Larissa Corrêa
Luana Aparecida da Rocha
Sofia Cristina Iost Pavarini
Elizabeth Joan Barham
Fabiana de Souza Orlandi
Keila Cristianne Trindade da Cruz
Deborah Oliveira
Aline Cristina Martins Gratão
author_sort Gustavo Carrijo Barbosa
collection DOAJ
description ABSTRACT BACKGROUND: Sense of mastery has been described in the literature as a psychological resource potentially associated with reduced caregiver burden. However, there are no validated instruments in the Brazilian context that allow the evaluation of the sense of mastery as a possible outcome of interventions aimed at supporting unpaid caregivers of people with dementia. OBJECTIVE: To validate the construct of the Brazilian version of the Pearlin Mastery Scale among unpaid caregivers of people living with dementia. DESIGN AND SETTING: This methodological study was conducted with 100 unpaid caregivers of people living with dementia, cared for at home, and who resided in Brazil. METHODS: Evidence of validity was tested based on internal structure, reliability, and correlations with theoretically related constructs. Sociodemographic data on sense of mastery, burden, depressive symptoms, anxiety, and quality of life were collected. RESULTS: Difficulties involving burden (80%), depressive symptoms (70%), anxiety (65%), and low quality of life (62%) were reported. Satisfactory measures of adjustment were found in the factor analysis; however, by removing two inversely scored items, these measures improved, resulting in a Cronbach’s alpha of 0.75. Significant correlations were found between sense of mastery and burden scores (ρ = −.56), symptoms of depression (ρ = −.57), anxiety (ρ = −.57), and quality of life (ρ = .64). CONCLUSION: Evidence of validity was found for the Pearlin Mastery Scale Brazilian version based on the internal structure, reliability, and correlations with theoretically related constructs, indicating that it is a suitable instrument for use in Brazil.
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spelling doaj-art-d89fb5a0286d49f285a1d15d9348dedb2025-08-26T07:46:28ZengAssociação Paulista de MedicinaSão Paulo Medical Journal1806-94602025-08-01143510.1590/1516-3180.2024.0446.r1.13062025Validation of the Pearlin Mastery Scale for unpaid caregivers of people living with dementia in Brazil: a methodological studyGustavo Carrijo Barbosahttps://orcid.org/0000-0001-8670-1227Diana Quirino Monteirohttps://orcid.org/0000-0002-3130-4096Ana Carolina Ottavianihttps://orcid.org/0000-0003-4037-4587Camila Rafael Ferreira Camposhttps://orcid.org/0000-0001-8700-153XLudmyla Caroline de Souza Alveshttps://orcid.org/0000-0001-5507-702XGabriela Martinshttps://orcid.org/0000-0002-3637-4763Larissa Corrêahttps://orcid.org/0000-0002-4596-4845Luana Aparecida da Rochahttps://orcid.org/0000-0002-6707-4982Sofia Cristina Iost Pavarinihttps://orcid.org/0000-0001-9359-8600Elizabeth Joan Barhamhttps://orcid.org/0000-0002-7270-4918Fabiana de Souza Orlandihttps://orcid.org/0000-0002-5714-6890Keila Cristianne Trindade da Cruzhttps://orcid.org/0000-0001-8146-8323Deborah Oliveirahttps://orcid.org/0000-0002-6616-533XAline Cristina Martins Gratãohttps://orcid.org/0000-0002-8508-0251ABSTRACT BACKGROUND: Sense of mastery has been described in the literature as a psychological resource potentially associated with reduced caregiver burden. However, there are no validated instruments in the Brazilian context that allow the evaluation of the sense of mastery as a possible outcome of interventions aimed at supporting unpaid caregivers of people with dementia. OBJECTIVE: To validate the construct of the Brazilian version of the Pearlin Mastery Scale among unpaid caregivers of people living with dementia. DESIGN AND SETTING: This methodological study was conducted with 100 unpaid caregivers of people living with dementia, cared for at home, and who resided in Brazil. METHODS: Evidence of validity was tested based on internal structure, reliability, and correlations with theoretically related constructs. Sociodemographic data on sense of mastery, burden, depressive symptoms, anxiety, and quality of life were collected. RESULTS: Difficulties involving burden (80%), depressive symptoms (70%), anxiety (65%), and low quality of life (62%) were reported. Satisfactory measures of adjustment were found in the factor analysis; however, by removing two inversely scored items, these measures improved, resulting in a Cronbach’s alpha of 0.75. Significant correlations were found between sense of mastery and burden scores (ρ = −.56), symptoms of depression (ρ = −.57), anxiety (ρ = −.57), and quality of life (ρ = .64). CONCLUSION: Evidence of validity was found for the Pearlin Mastery Scale Brazilian version based on the internal structure, reliability, and correlations with theoretically related constructs, indicating that it is a suitable instrument for use in Brazil.http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1516-31802025000500203&lng=en&tlng=enValidation study.Nursing assessment.Caregivers.Coping skills.Dementia.Sense of mastery.Mental health.Validation of instruments.Major neurocognitive disorder.Family caregiver.
spellingShingle Gustavo Carrijo Barbosa
Diana Quirino Monteiro
Ana Carolina Ottaviani
Camila Rafael Ferreira Campos
Ludmyla Caroline de Souza Alves
Gabriela Martins
Larissa Corrêa
Luana Aparecida da Rocha
Sofia Cristina Iost Pavarini
Elizabeth Joan Barham
Fabiana de Souza Orlandi
Keila Cristianne Trindade da Cruz
Deborah Oliveira
Aline Cristina Martins Gratão
Validation of the Pearlin Mastery Scale for unpaid caregivers of people living with dementia in Brazil: a methodological study
São Paulo Medical Journal
Validation study.
Nursing assessment.
Caregivers.
Coping skills.
Dementia.
Sense of mastery.
Mental health.
Validation of instruments.
Major neurocognitive disorder.
Family caregiver.
title Validation of the Pearlin Mastery Scale for unpaid caregivers of people living with dementia in Brazil: a methodological study
title_full Validation of the Pearlin Mastery Scale for unpaid caregivers of people living with dementia in Brazil: a methodological study
title_fullStr Validation of the Pearlin Mastery Scale for unpaid caregivers of people living with dementia in Brazil: a methodological study
title_full_unstemmed Validation of the Pearlin Mastery Scale for unpaid caregivers of people living with dementia in Brazil: a methodological study
title_short Validation of the Pearlin Mastery Scale for unpaid caregivers of people living with dementia in Brazil: a methodological study
title_sort validation of the pearlin mastery scale for unpaid caregivers of people living with dementia in brazil a methodological study
topic Validation study.
Nursing assessment.
Caregivers.
Coping skills.
Dementia.
Sense of mastery.
Mental health.
Validation of instruments.
Major neurocognitive disorder.
Family caregiver.
url http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1516-31802025000500203&lng=en&tlng=en
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