Assessment of patient empowerment--a systematic review of measures.

<h4>Background</h4>Patient empowerment has gained considerable importance but uncertainty remains about the best way to define and measure it. The validity of empirical findings depends on the quality of measures used. This systematic review aims to provide an overview of studies assessi...

Full description

Saved in:
Bibliographic Details
Main Authors: Paul J Barr, Isabelle Scholl, Paulina Bravo, Marjan J Faber, Glyn Elwyn, Marion McAllister
Format: Article
Language:English
Published: Public Library of Science (PLoS) 2015-01-01
Series:PLoS ONE
Online Access:https://doi.org/10.1371/journal.pone.0126553
Tags: Add Tag
No Tags, Be the first to tag this record!
_version_ 1849470330342473728
author Paul J Barr
Isabelle Scholl
Paulina Bravo
Marjan J Faber
Glyn Elwyn
Marion McAllister
author_facet Paul J Barr
Isabelle Scholl
Paulina Bravo
Marjan J Faber
Glyn Elwyn
Marion McAllister
author_sort Paul J Barr
collection DOAJ
description <h4>Background</h4>Patient empowerment has gained considerable importance but uncertainty remains about the best way to define and measure it. The validity of empirical findings depends on the quality of measures used. This systematic review aims to provide an overview of studies assessing psychometric properties of questionnaires purporting to capture patient empowerment, evaluate the methodological quality of these studies and assess the psychometric properties of measures identified.<h4>Methods</h4>Electronic searches in five databases were combined with reference tracking of included articles. Peer-reviewed articles reporting psychometric testing of empowerment measures for adult patients in French, German, English, Portuguese and Spanish were included. Study characteristics, constructs operationalised and psychometric properties were extracted. The quality of study design, methods and reporting was assessed using the COSMIN checklist. The quality of psychometric properties was assessed using Terwee's 2007 criteria.<h4>Findings</h4>30 studies on 19 measures were included. Six measures are generic, while 13 were developed for a specific condition (N=4) or specialty (N=9). Most studies tested measures in English (N=17) or Swedish (N=6). Sample sizes of included studies varied from N=35 to N=8261. A range of patient empowerment constructs was operationalised in included measures. These were classified into four domains: patient states, experiences and capacities; patient actions and behaviours; patient self-determination within the healthcare relationship and patient skills development. Quality assessment revealed several flaws in methodological study quality with COSMIN scores mainly fair or poor. The overall quality of psychometric properties of included measures was intermediate to positive. Certain psychometric properties were not tested for most measures.<h4>Discussion</h4>Findings provide a basis from which to develop consensus on a core set of patient empowerment constructs and for further work to develop a (set of) appropriately validated measure(s) to capture this. The methodological quality of psychometric studies could be improved by adhering to published quality criteria.
format Article
id doaj-art-d81054d390ec44218752e8e6cfbe4edf
institution Kabale University
issn 1932-6203
language English
publishDate 2015-01-01
publisher Public Library of Science (PLoS)
record_format Article
series PLoS ONE
spelling doaj-art-d81054d390ec44218752e8e6cfbe4edf2025-08-20T03:25:11ZengPublic Library of Science (PLoS)PLoS ONE1932-62032015-01-01105e012655310.1371/journal.pone.0126553Assessment of patient empowerment--a systematic review of measures.Paul J BarrIsabelle SchollPaulina BravoMarjan J FaberGlyn ElwynMarion McAllister<h4>Background</h4>Patient empowerment has gained considerable importance but uncertainty remains about the best way to define and measure it. The validity of empirical findings depends on the quality of measures used. This systematic review aims to provide an overview of studies assessing psychometric properties of questionnaires purporting to capture patient empowerment, evaluate the methodological quality of these studies and assess the psychometric properties of measures identified.<h4>Methods</h4>Electronic searches in five databases were combined with reference tracking of included articles. Peer-reviewed articles reporting psychometric testing of empowerment measures for adult patients in French, German, English, Portuguese and Spanish were included. Study characteristics, constructs operationalised and psychometric properties were extracted. The quality of study design, methods and reporting was assessed using the COSMIN checklist. The quality of psychometric properties was assessed using Terwee's 2007 criteria.<h4>Findings</h4>30 studies on 19 measures were included. Six measures are generic, while 13 were developed for a specific condition (N=4) or specialty (N=9). Most studies tested measures in English (N=17) or Swedish (N=6). Sample sizes of included studies varied from N=35 to N=8261. A range of patient empowerment constructs was operationalised in included measures. These were classified into four domains: patient states, experiences and capacities; patient actions and behaviours; patient self-determination within the healthcare relationship and patient skills development. Quality assessment revealed several flaws in methodological study quality with COSMIN scores mainly fair or poor. The overall quality of psychometric properties of included measures was intermediate to positive. Certain psychometric properties were not tested for most measures.<h4>Discussion</h4>Findings provide a basis from which to develop consensus on a core set of patient empowerment constructs and for further work to develop a (set of) appropriately validated measure(s) to capture this. The methodological quality of psychometric studies could be improved by adhering to published quality criteria.https://doi.org/10.1371/journal.pone.0126553
spellingShingle Paul J Barr
Isabelle Scholl
Paulina Bravo
Marjan J Faber
Glyn Elwyn
Marion McAllister
Assessment of patient empowerment--a systematic review of measures.
PLoS ONE
title Assessment of patient empowerment--a systematic review of measures.
title_full Assessment of patient empowerment--a systematic review of measures.
title_fullStr Assessment of patient empowerment--a systematic review of measures.
title_full_unstemmed Assessment of patient empowerment--a systematic review of measures.
title_short Assessment of patient empowerment--a systematic review of measures.
title_sort assessment of patient empowerment a systematic review of measures
url https://doi.org/10.1371/journal.pone.0126553
work_keys_str_mv AT pauljbarr assessmentofpatientempowermentasystematicreviewofmeasures
AT isabellescholl assessmentofpatientempowermentasystematicreviewofmeasures
AT paulinabravo assessmentofpatientempowermentasystematicreviewofmeasures
AT marjanjfaber assessmentofpatientempowermentasystematicreviewofmeasures
AT glynelwyn assessmentofpatientempowermentasystematicreviewofmeasures
AT marionmcallister assessmentofpatientempowermentasystematicreviewofmeasures