Instruments for assessing patient-reported experience measures among patients with diabetes mellitus: a scoping review
Abstract Purpose Diabetes Mellitus (DM) management is increasingly focusing on patient-centered care, making patient-reported experience measures (PREMs) critical for understanding the subjective aspects of diabetes treatment and self-management. These measures differ based on cultural contexts and...
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| Format: | Article |
| Language: | English |
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SpringerOpen
2025-02-01
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| Series: | Journal of Patient-Reported Outcomes |
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| Online Access: | https://doi.org/10.1186/s41687-025-00848-7 |
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| author | Soe Sandi Tint Myo Zin Oo Nida Buawangpong Wichuda Jiraporncharoen Nutchar Wiwatkunupakarn Kittipan Rerkasem Kanokwan Kulprachakarn Hataichanok Chuljerm Timothy E. O’Brien Rohini Mathur Chaisiri Angkurawaranon |
| author_facet | Soe Sandi Tint Myo Zin Oo Nida Buawangpong Wichuda Jiraporncharoen Nutchar Wiwatkunupakarn Kittipan Rerkasem Kanokwan Kulprachakarn Hataichanok Chuljerm Timothy E. O’Brien Rohini Mathur Chaisiri Angkurawaranon |
| author_sort | Soe Sandi Tint |
| collection | DOAJ |
| description | Abstract Purpose Diabetes Mellitus (DM) management is increasingly focusing on patient-centered care, making patient-reported experience measures (PREMs) critical for understanding the subjective aspects of diabetes treatment and self-management. These measures differ based on cultural contexts and individual perspectives, leading different countries to the development of country-specific tools to assess care quality from the patient’s viewpoint. This review aimed to identify available instruments for assessing patient-reported experiences in individuals with diabetes and examine the different domains, items, and the validity and reliability of these instruments. Methods Following PRISMA-ScR guidelines, databases including PubMed, Embase, CINAHL, Cochrane, and Scopus were searched for English-language articles without year limitations. This scoping review focused on PREMs that evaluate the quality of diabetes care among adolescent and adult patients with type 1 and type 2 DM. Studies that used patient expectation questionnaires, involved individuals not receiving care, or focused on patient-reported outcomes rather than experiences were excluded. Results Eight articles from six countries representing different healthcare settings were included, mostly from developed countries. A variety of methodologies were used to develop these PREM instruments, with unique domains and items. Content analysis revealed five commonly measured domains: (1) care planning, (2) patient education, (3) professionalism, (4) quality of care, and (5) hospital care and transition, reflecting diverse patient experiences across healthcare services. Conclusions This scoping review identifies a limited number of tools for evaluating PREMs in diabetes care, highlighting variability in their development and domain coverage. Five core domains are proposed across different settings, with an emphasis on culturally adapted measures to enhance the accuracy of patient experience capture in diverse populations. |
| format | Article |
| id | doaj-art-d79f701a0ed04779a74028d1511a0ade |
| institution | Kabale University |
| issn | 2509-8020 |
| language | English |
| publishDate | 2025-02-01 |
| publisher | SpringerOpen |
| record_format | Article |
| series | Journal of Patient-Reported Outcomes |
| spelling | doaj-art-d79f701a0ed04779a74028d1511a0ade2025-02-09T12:39:26ZengSpringerOpenJournal of Patient-Reported Outcomes2509-80202025-02-019111210.1186/s41687-025-00848-7Instruments for assessing patient-reported experience measures among patients with diabetes mellitus: a scoping reviewSoe Sandi Tint0Myo Zin Oo1Nida Buawangpong2Wichuda Jiraporncharoen3Nutchar Wiwatkunupakarn4Kittipan Rerkasem5Kanokwan Kulprachakarn6Hataichanok Chuljerm7Timothy E. O’Brien8Rohini Mathur9Chaisiri Angkurawaranon10Global Health and Chronic Conditions Research Center, Chiang Mai UniversityEnvironmental-Occupational Health Sciences and Non-Communicable Diseases Research Center, Research Institute for Health Sciences, Chiang Mai UniversityGlobal Health and Chronic Conditions Research Center, Chiang Mai UniversityGlobal Health and Chronic Conditions Research Center, Chiang Mai UniversityGlobal Health and Chronic Conditions Research Center, Chiang Mai UniversitySchool of Health Sciences Research, Research Institute for Health Sciences, Chiang Mai UniversitySchool of Health Sciences Research, Research Institute for Health Sciences, Chiang Mai UniversitySchool of Health Sciences Research, Research Institute for Health Sciences, Chiang Mai UniversityDepartment of Mathematics and Statistics, Loyola University ChicagoWolfson Institute for Population Health, Queen Mary University of LondonGlobal Health and Chronic Conditions Research Center, Chiang Mai UniversityAbstract Purpose Diabetes Mellitus (DM) management is increasingly focusing on patient-centered care, making patient-reported experience measures (PREMs) critical for understanding the subjective aspects of diabetes treatment and self-management. These measures differ based on cultural contexts and individual perspectives, leading different countries to the development of country-specific tools to assess care quality from the patient’s viewpoint. This review aimed to identify available instruments for assessing patient-reported experiences in individuals with diabetes and examine the different domains, items, and the validity and reliability of these instruments. Methods Following PRISMA-ScR guidelines, databases including PubMed, Embase, CINAHL, Cochrane, and Scopus were searched for English-language articles without year limitations. This scoping review focused on PREMs that evaluate the quality of diabetes care among adolescent and adult patients with type 1 and type 2 DM. Studies that used patient expectation questionnaires, involved individuals not receiving care, or focused on patient-reported outcomes rather than experiences were excluded. Results Eight articles from six countries representing different healthcare settings were included, mostly from developed countries. A variety of methodologies were used to develop these PREM instruments, with unique domains and items. Content analysis revealed five commonly measured domains: (1) care planning, (2) patient education, (3) professionalism, (4) quality of care, and (5) hospital care and transition, reflecting diverse patient experiences across healthcare services. Conclusions This scoping review identifies a limited number of tools for evaluating PREMs in diabetes care, highlighting variability in their development and domain coverage. Five core domains are proposed across different settings, with an emphasis on culturally adapted measures to enhance the accuracy of patient experience capture in diverse populations.https://doi.org/10.1186/s41687-025-00848-7Diabetes mellitusPatient-reported experience measuresPatient-centered carePatient outcome assessment |
| spellingShingle | Soe Sandi Tint Myo Zin Oo Nida Buawangpong Wichuda Jiraporncharoen Nutchar Wiwatkunupakarn Kittipan Rerkasem Kanokwan Kulprachakarn Hataichanok Chuljerm Timothy E. O’Brien Rohini Mathur Chaisiri Angkurawaranon Instruments for assessing patient-reported experience measures among patients with diabetes mellitus: a scoping review Journal of Patient-Reported Outcomes Diabetes mellitus Patient-reported experience measures Patient-centered care Patient outcome assessment |
| title | Instruments for assessing patient-reported experience measures among patients with diabetes mellitus: a scoping review |
| title_full | Instruments for assessing patient-reported experience measures among patients with diabetes mellitus: a scoping review |
| title_fullStr | Instruments for assessing patient-reported experience measures among patients with diabetes mellitus: a scoping review |
| title_full_unstemmed | Instruments for assessing patient-reported experience measures among patients with diabetes mellitus: a scoping review |
| title_short | Instruments for assessing patient-reported experience measures among patients with diabetes mellitus: a scoping review |
| title_sort | instruments for assessing patient reported experience measures among patients with diabetes mellitus a scoping review |
| topic | Diabetes mellitus Patient-reported experience measures Patient-centered care Patient outcome assessment |
| url | https://doi.org/10.1186/s41687-025-00848-7 |
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