Effect of RaceRunning on cardiometabolic disease risk factors and functional mobility in young people with moderate-to-severe cerebral palsy: protocol for a feasibility study
Introduction There is consistent evidence that people with cerebral palsy (CP) do not engage in the recommended physical activity guidelines for the general population from a young age. Participation in moderate-to-vigorous physical activity is particularly reduced in people with CP who have a moder...
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| Format: | Article |
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BMJ Publishing Group
2020-07-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/10/7/e036469.full |
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| author | Nana Anokye Jennifer Ryan Nicola Theis Pelagia Koufaki Shaun Phillips Georgia Andreopoulou Fiona Kennedy Kavi C Jagadamma Petra vanSchie Hannah Dines Marietta L van der Linden |
| author_facet | Nana Anokye Jennifer Ryan Nicola Theis Pelagia Koufaki Shaun Phillips Georgia Andreopoulou Fiona Kennedy Kavi C Jagadamma Petra vanSchie Hannah Dines Marietta L van der Linden |
| author_sort | Nana Anokye |
| collection | DOAJ |
| description | Introduction There is consistent evidence that people with cerebral palsy (CP) do not engage in the recommended physical activity guidelines for the general population from a young age. Participation in moderate-to-vigorous physical activity is particularly reduced in people with CP who have a moderate-to-severe disability. RaceRunning is a growing disability sport that provides an opportunity for people with moderate-to-severe disability to participate in physical activity in the community. It allows those who are unable to walk independently to propel themselves using a RaceRunning bike, which has a breastplate for support but no pedals. The aim of this study is to examine the feasibility and acceptability of RaceRunning for young people with moderate-to-severe CP and the feasibility of conducting a definitive study of the effect of RaceRunning on cardiometabolic disease risk factors and functional mobility.Methods and analysis Twenty-five young people (age 5–21 years) with CP or acquired brain injury affecting coordination will be included in this single-arm intervention study. Participants will take part in one RaceRunning session each week for 24 weeks. Outcomes assessed at baseline, 12 and 24 weeks include body mass index, waist circumference, blood pressure, muscle strength, cardiorespiratory fitness, physical activity and sedentary behaviour, functional mobility, activity competence and psychosocial impact. Adverse events will be systematically recorded throughout the 24 weeks. Focus groups will be conducted with participants and/or parents to explore their views and experiences of taking part in RaceRunning.Ethics and dissemination Approval has been granted by Queen Margaret University Research Ethics Committee (REC) and the South East of Scotland REC. Results will be disseminated through peer-reviewed journals and distributed to people with CP and their families through RaceRunning and Athletic Clubs, National Health Service trusts and organisations for people with disabilities.Trial registration number NCT04034342; pre-results. |
| format | Article |
| id | doaj-art-d79865c35e0f4b07ad7f0fd5adcb0e80 |
| institution | OA Journals |
| issn | 2044-6055 |
| language | English |
| publishDate | 2020-07-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-d79865c35e0f4b07ad7f0fd5adcb0e802025-08-20T02:36:00ZengBMJ Publishing GroupBMJ Open2044-60552020-07-0110710.1136/bmjopen-2019-036469Effect of RaceRunning on cardiometabolic disease risk factors and functional mobility in young people with moderate-to-severe cerebral palsy: protocol for a feasibility studyNana Anokye0Jennifer Ryan1Nicola Theis2Pelagia Koufaki3Shaun Phillips4Georgia Andreopoulou5Fiona Kennedy6Kavi C Jagadamma7Petra vanSchie8Hannah Dines9Marietta L van der Linden10Brunel University London, UKDepartment of Health Sciences, Brunel University London, Uxbridge, UK2School of Sport, Health and Applied Science, St. Mary`s University, Twickenham, UKCentre for Health, Activity and Rehabilitation Research, Queen Margaret University Edinburgh, Musselburgh, East Lothian, UKInstitute for Sport, Physical Education and Health Sciences, The University of Edinburgh, Edinburgh, UKCentre for Health, Activity and Rehabilitation Research, Queen Margaret University Edinburgh, Musselburgh, East Lothian, UKBarts Health NHS Trust, London, UKCentre for Health, Activity and Rehabilitation Research, Queen Margaret University Edinburgh, Musselburgh, East Lothian, UKDepartment of Rehabilitation Medicine, Amsterdam University Medical Centres, Amsterdam, Noord-Holland, The NetherlandsDepartment of Exercise and Sports Science, Manchester Metropolitan University, Manchester, Greater Manchester, UKCentre for Health, Activity and Rehabilitation Research, Queen Margaret University Edinburgh, Musselburgh, East Lothian, UKIntroduction There is consistent evidence that people with cerebral palsy (CP) do not engage in the recommended physical activity guidelines for the general population from a young age. Participation in moderate-to-vigorous physical activity is particularly reduced in people with CP who have a moderate-to-severe disability. RaceRunning is a growing disability sport that provides an opportunity for people with moderate-to-severe disability to participate in physical activity in the community. It allows those who are unable to walk independently to propel themselves using a RaceRunning bike, which has a breastplate for support but no pedals. The aim of this study is to examine the feasibility and acceptability of RaceRunning for young people with moderate-to-severe CP and the feasibility of conducting a definitive study of the effect of RaceRunning on cardiometabolic disease risk factors and functional mobility.Methods and analysis Twenty-five young people (age 5–21 years) with CP or acquired brain injury affecting coordination will be included in this single-arm intervention study. Participants will take part in one RaceRunning session each week for 24 weeks. Outcomes assessed at baseline, 12 and 24 weeks include body mass index, waist circumference, blood pressure, muscle strength, cardiorespiratory fitness, physical activity and sedentary behaviour, functional mobility, activity competence and psychosocial impact. Adverse events will be systematically recorded throughout the 24 weeks. Focus groups will be conducted with participants and/or parents to explore their views and experiences of taking part in RaceRunning.Ethics and dissemination Approval has been granted by Queen Margaret University Research Ethics Committee (REC) and the South East of Scotland REC. Results will be disseminated through peer-reviewed journals and distributed to people with CP and their families through RaceRunning and Athletic Clubs, National Health Service trusts and organisations for people with disabilities.Trial registration number NCT04034342; pre-results.https://bmjopen.bmj.com/content/10/7/e036469.full |
| spellingShingle | Nana Anokye Jennifer Ryan Nicola Theis Pelagia Koufaki Shaun Phillips Georgia Andreopoulou Fiona Kennedy Kavi C Jagadamma Petra vanSchie Hannah Dines Marietta L van der Linden Effect of RaceRunning on cardiometabolic disease risk factors and functional mobility in young people with moderate-to-severe cerebral palsy: protocol for a feasibility study BMJ Open |
| title | Effect of RaceRunning on cardiometabolic disease risk factors and functional mobility in young people with moderate-to-severe cerebral palsy: protocol for a feasibility study |
| title_full | Effect of RaceRunning on cardiometabolic disease risk factors and functional mobility in young people with moderate-to-severe cerebral palsy: protocol for a feasibility study |
| title_fullStr | Effect of RaceRunning on cardiometabolic disease risk factors and functional mobility in young people with moderate-to-severe cerebral palsy: protocol for a feasibility study |
| title_full_unstemmed | Effect of RaceRunning on cardiometabolic disease risk factors and functional mobility in young people with moderate-to-severe cerebral palsy: protocol for a feasibility study |
| title_short | Effect of RaceRunning on cardiometabolic disease risk factors and functional mobility in young people with moderate-to-severe cerebral palsy: protocol for a feasibility study |
| title_sort | effect of racerunning on cardiometabolic disease risk factors and functional mobility in young people with moderate to severe cerebral palsy protocol for a feasibility study |
| url | https://bmjopen.bmj.com/content/10/7/e036469.full |
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