The Rhythm of Connection: Describing the Heartbeats Intervention for Patients and Families Receiving Paediatric Palliative Care

Music therapy in paediatric palliative care offers a unique opportunity for emotional support, legacy creation, and therapeutic connection for children and their families. This paper describes the Heartbeats Intervention, as delivered by a paediatric palliative care music therapist at Sydney Childre...

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Main Authors: Holly E. Evans, Matthew Ralph, Tiina Jaaniste, Claire E. Wakefield, Ursula M. Sansom-Daly
Format: Article
Language:English
Published: MDPI AG 2025-07-01
Series:Children
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Online Access:https://www.mdpi.com/2227-9067/12/7/884
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author Holly E. Evans
Matthew Ralph
Tiina Jaaniste
Claire E. Wakefield
Ursula M. Sansom-Daly
author_facet Holly E. Evans
Matthew Ralph
Tiina Jaaniste
Claire E. Wakefield
Ursula M. Sansom-Daly
author_sort Holly E. Evans
collection DOAJ
description Music therapy in paediatric palliative care offers a unique opportunity for emotional support, legacy creation, and therapeutic connection for children and their families. This paper describes the Heartbeats Intervention, as delivered by a paediatric palliative care music therapist at Sydney Children’s Hospital Australia. This intervention involves recording and creatively integrating the heartbeats of children and family members into personalised musical compositions. Originally inspired by music therapist Brian Schreck’s work, the intervention has evolved to meet diverse therapeutic goals, from soothing children with serious illnesses (including cancer) with recordings of their families’ heartbeats to creating legacy song tracks that support families through bereavement. Despite some logistical and resource challenges, the intervention has been well-received and continues to expand, including the integration of environmental soundscapes and broader community involvement, which allows the intervention to be experienced by a greater number of families. This paper contributes to the limited but growing literature on music therapy in paediatric palliative care, highlighting the Heartbeats Intervention as a flexible and meaningful way to enhance psychosocial support and connection for children and their families. Further research to evaluate its long-term impact and to explore children’s direct experiences of the intervention is needed.
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spelling doaj-art-d69a62249f784bdc82ad7cfc33ba7fa52025-08-20T02:45:38ZengMDPI AGChildren2227-90672025-07-0112788410.3390/children12070884The Rhythm of Connection: Describing the Heartbeats Intervention for Patients and Families Receiving Paediatric Palliative CareHolly E. Evans0Matthew Ralph1Tiina Jaaniste2Claire E. Wakefield3Ursula M. Sansom-Daly4Behavioural Sciences Unit, School of Clinical Medicine, UNSW Medicine and Health, Randwick Clinical Campus, Discipline of Paediatrics and Child Health, University of New South Wales Sydney, Kensington, NSW 2031, AustraliaDepartment of Palliative Care, Sydney Children’s Hospital, Randwick, NSW 2031, AustraliaSchool of Clinical Medicine, Discipline of Paediatrics and Child Health, University of New South Wales Sydney, Kensington, NSW 2031, AustraliaBehavioural Sciences Unit, School of Clinical Medicine, UNSW Medicine and Health, Randwick Clinical Campus, Discipline of Paediatrics and Child Health, University of New South Wales Sydney, Kensington, NSW 2031, AustraliaBehavioural Sciences Unit, School of Clinical Medicine, UNSW Medicine and Health, Randwick Clinical Campus, Discipline of Paediatrics and Child Health, University of New South Wales Sydney, Kensington, NSW 2031, AustraliaMusic therapy in paediatric palliative care offers a unique opportunity for emotional support, legacy creation, and therapeutic connection for children and their families. This paper describes the Heartbeats Intervention, as delivered by a paediatric palliative care music therapist at Sydney Children’s Hospital Australia. This intervention involves recording and creatively integrating the heartbeats of children and family members into personalised musical compositions. Originally inspired by music therapist Brian Schreck’s work, the intervention has evolved to meet diverse therapeutic goals, from soothing children with serious illnesses (including cancer) with recordings of their families’ heartbeats to creating legacy song tracks that support families through bereavement. Despite some logistical and resource challenges, the intervention has been well-received and continues to expand, including the integration of environmental soundscapes and broader community involvement, which allows the intervention to be experienced by a greater number of families. This paper contributes to the limited but growing literature on music therapy in paediatric palliative care, highlighting the Heartbeats Intervention as a flexible and meaningful way to enhance psychosocial support and connection for children and their families. Further research to evaluate its long-term impact and to explore children’s direct experiences of the intervention is needed.https://www.mdpi.com/2227-9067/12/7/884paediatric palliative caremusic therapyheartbeat recordingsintegrative medicinechildren and adolescentscancer
spellingShingle Holly E. Evans
Matthew Ralph
Tiina Jaaniste
Claire E. Wakefield
Ursula M. Sansom-Daly
The Rhythm of Connection: Describing the Heartbeats Intervention for Patients and Families Receiving Paediatric Palliative Care
Children
paediatric palliative care
music therapy
heartbeat recordings
integrative medicine
children and adolescents
cancer
title The Rhythm of Connection: Describing the Heartbeats Intervention for Patients and Families Receiving Paediatric Palliative Care
title_full The Rhythm of Connection: Describing the Heartbeats Intervention for Patients and Families Receiving Paediatric Palliative Care
title_fullStr The Rhythm of Connection: Describing the Heartbeats Intervention for Patients and Families Receiving Paediatric Palliative Care
title_full_unstemmed The Rhythm of Connection: Describing the Heartbeats Intervention for Patients and Families Receiving Paediatric Palliative Care
title_short The Rhythm of Connection: Describing the Heartbeats Intervention for Patients and Families Receiving Paediatric Palliative Care
title_sort rhythm of connection describing the heartbeats intervention for patients and families receiving paediatric palliative care
topic paediatric palliative care
music therapy
heartbeat recordings
integrative medicine
children and adolescents
cancer
url https://www.mdpi.com/2227-9067/12/7/884
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