Refining Our “CRAFT”: The Community Research Academy to Foster RepresenTation (CRAFT) Program
Introduction Clinical research participation is under-represented among minoritized groups (eg, Black Americans) leading to suboptimal generalizability of findings and likely propagating inequities in cancer outcomes. Offices of Community Outreach and Engagement at comprehensive cancer centers estab...
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| Format: | Article |
| Language: | English |
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SAGE Publishing
2025-06-01
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| Series: | Cancer Control |
| Online Access: | https://doi.org/10.1177/10732748251355153 |
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| author | Mackenzie E. Fowler PhD Oluseun Akinyele MPH Francine Walton MPH Rochelle Wallace MS Stacey A. Ingram MEd Yu-Mei Schoenberger PhD Soumya J. Niranjan BPharm, MS, PhD Ritika R. Samant MPH Claudia Hardy MPA Silvia Gisiger-Camata MPH, Pharm, RN Timiya S. Nolan PhD, APRN-CRNP, ANP-BC, FAAN |
| author_facet | Mackenzie E. Fowler PhD Oluseun Akinyele MPH Francine Walton MPH Rochelle Wallace MS Stacey A. Ingram MEd Yu-Mei Schoenberger PhD Soumya J. Niranjan BPharm, MS, PhD Ritika R. Samant MPH Claudia Hardy MPA Silvia Gisiger-Camata MPH, Pharm, RN Timiya S. Nolan PhD, APRN-CRNP, ANP-BC, FAAN |
| author_sort | Mackenzie E. Fowler PhD |
| collection | DOAJ |
| description | Introduction Clinical research participation is under-represented among minoritized groups (eg, Black Americans) leading to suboptimal generalizability of findings and likely propagating inequities in cancer outcomes. Offices of Community Outreach and Engagement at comprehensive cancer centers establish bidirectional relationships between institutions and communities to facilitate catchment-concordant clinical research. We describe a program to educate and empower community health workers (CHWs) to act as clinical research advocates within their communities. Methods Academic and community stakeholders adapted existing evidence-based educational materials addressing importance of clinical research. The resulting program was entitled Community Research Academy to Foster RepresenTation (CRAFT). CRAFT is a 3-hour “train the trainer” session including introduction to clinical trials with “myth busters”, “Ask the Participant” panel, and hands-on experience finding a clinical trial. CRAFT was evaluated for acceptability, change in knowledge/perception, maintenance, and suggestions for curriculum improvement. Results Training was held in December 2023 with 21 CHWs, with a refresher training in July 2024 with 19 CHWs. At initial training, all participants reported ‘excellent’ or ‘good’ satisfaction with CRAFT. Results indicate 48% reported increased knowledge and 33% improved perception, and 21% demonstrated increased objective knowledge of clinical trials. At refresher training, 94% reported ‘excellent’ or ‘good’ satisfaction with CRAFT, 47% reported increased knowledge and 73% increased objective knowledge of clinical trials. Of those completing both sessions and all objective knowledge questions, 50% maintained or improved their score. Qualitative feedback indicated need for additional training (eg, more testimonials, more facts to supplement “myth busting”, more trainings, additional information on how to present to the public, and collaboration with academic health system staff during future CHW-facilitated programs). Conclusion CRAFT increased awareness, knowledge, and perception of clinical research among diverse CHWs with maintenance over time. Next steps include refining CRAFT, administering CRAFT to volunteer community health advisors, continuing evaluation, and sharing with other institutions. |
| format | Article |
| id | doaj-art-d6413ba3b4bc4c749942c7edf5586b44 |
| institution | Kabale University |
| issn | 1526-2359 |
| language | English |
| publishDate | 2025-06-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Cancer Control |
| spelling | doaj-art-d6413ba3b4bc4c749942c7edf5586b442025-08-20T03:32:04ZengSAGE PublishingCancer Control1526-23592025-06-013210.1177/10732748251355153Refining Our “CRAFT”: The Community Research Academy to Foster RepresenTation (CRAFT) ProgramMackenzie E. Fowler PhDOluseun Akinyele MPHFrancine Walton MPHRochelle Wallace MSStacey A. Ingram MEdYu-Mei Schoenberger PhDSoumya J. Niranjan BPharm, MS, PhDRitika R. Samant MPHClaudia Hardy MPASilvia Gisiger-Camata MPH, Pharm, RNTimiya S. Nolan PhD, APRN-CRNP, ANP-BC, FAANIntroduction Clinical research participation is under-represented among minoritized groups (eg, Black Americans) leading to suboptimal generalizability of findings and likely propagating inequities in cancer outcomes. Offices of Community Outreach and Engagement at comprehensive cancer centers establish bidirectional relationships between institutions and communities to facilitate catchment-concordant clinical research. We describe a program to educate and empower community health workers (CHWs) to act as clinical research advocates within their communities. Methods Academic and community stakeholders adapted existing evidence-based educational materials addressing importance of clinical research. The resulting program was entitled Community Research Academy to Foster RepresenTation (CRAFT). CRAFT is a 3-hour “train the trainer” session including introduction to clinical trials with “myth busters”, “Ask the Participant” panel, and hands-on experience finding a clinical trial. CRAFT was evaluated for acceptability, change in knowledge/perception, maintenance, and suggestions for curriculum improvement. Results Training was held in December 2023 with 21 CHWs, with a refresher training in July 2024 with 19 CHWs. At initial training, all participants reported ‘excellent’ or ‘good’ satisfaction with CRAFT. Results indicate 48% reported increased knowledge and 33% improved perception, and 21% demonstrated increased objective knowledge of clinical trials. At refresher training, 94% reported ‘excellent’ or ‘good’ satisfaction with CRAFT, 47% reported increased knowledge and 73% increased objective knowledge of clinical trials. Of those completing both sessions and all objective knowledge questions, 50% maintained or improved their score. Qualitative feedback indicated need for additional training (eg, more testimonials, more facts to supplement “myth busting”, more trainings, additional information on how to present to the public, and collaboration with academic health system staff during future CHW-facilitated programs). Conclusion CRAFT increased awareness, knowledge, and perception of clinical research among diverse CHWs with maintenance over time. Next steps include refining CRAFT, administering CRAFT to volunteer community health advisors, continuing evaluation, and sharing with other institutions.https://doi.org/10.1177/10732748251355153 |
| spellingShingle | Mackenzie E. Fowler PhD Oluseun Akinyele MPH Francine Walton MPH Rochelle Wallace MS Stacey A. Ingram MEd Yu-Mei Schoenberger PhD Soumya J. Niranjan BPharm, MS, PhD Ritika R. Samant MPH Claudia Hardy MPA Silvia Gisiger-Camata MPH, Pharm, RN Timiya S. Nolan PhD, APRN-CRNP, ANP-BC, FAAN Refining Our “CRAFT”: The Community Research Academy to Foster RepresenTation (CRAFT) Program Cancer Control |
| title | Refining Our “CRAFT”: The Community Research Academy to Foster RepresenTation (CRAFT) Program |
| title_full | Refining Our “CRAFT”: The Community Research Academy to Foster RepresenTation (CRAFT) Program |
| title_fullStr | Refining Our “CRAFT”: The Community Research Academy to Foster RepresenTation (CRAFT) Program |
| title_full_unstemmed | Refining Our “CRAFT”: The Community Research Academy to Foster RepresenTation (CRAFT) Program |
| title_short | Refining Our “CRAFT”: The Community Research Academy to Foster RepresenTation (CRAFT) Program |
| title_sort | refining our craft the community research academy to foster representation craft program |
| url | https://doi.org/10.1177/10732748251355153 |
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