“When I Look in the Mirror, I Want to See a Healthy Body”: The Lived Experience of Young Previvors, Bilateral Risk-Reducing Mastectomy, and Body Image

Breast cancer is a significant cause of cancer death in young women in the United States. Inherited pathogenic variants, like BRCA1 and BRCA2, contribute to an increased lifetime breast cancer risk in this population. For women with a known pathogenic variant but without a previous cancer diagnosis,...

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Main Authors: Christa Torrisi, Mei R. Fu, Michelle Teti, Jane M. Armer
Format: Article
Language:English
Published: SAGE Publishing 2025-08-01
Series:Global Qualitative Nursing Research
Online Access:https://doi.org/10.1177/23333936251362638
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author Christa Torrisi
Mei R. Fu
Michelle Teti
Jane M. Armer
author_facet Christa Torrisi
Mei R. Fu
Michelle Teti
Jane M. Armer
author_sort Christa Torrisi
collection DOAJ
description Breast cancer is a significant cause of cancer death in young women in the United States. Inherited pathogenic variants, like BRCA1 and BRCA2, contribute to an increased lifetime breast cancer risk in this population. For women with a known pathogenic variant but without a previous cancer diagnosis, also known as “previvors,” the bilateral risk-reducing mastectomy (BRRM) most effectively reduces breast cancer risk. However, this surgery often causes physical change to the body. While existing research has examined the effect of BRRM and body image among previvors across the lifespan, the effect of prophylactic breast removal to decrease lifetime breast cancer risk in young previvors less than 40 years of age is less understood. A descriptive phenomenological approach, along with participant-submitted images, from a sample of 13 young previvors from the Midwestern United States, aged 29 to 39, explored the lived experience of BRRM and body image in the first 12 months following surgery. Narrative data served as the primary source, augmented by participant-submitted visual data. Essential themes were intuited to include BRRM to promote health, the importance of adaptation and acceptance to a changed body, and unexpected challenges following surgery; body image was found to be largely positive after healing occurred.
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spelling doaj-art-d62807ed9da040a4821e8f000bc20f0e2025-08-20T04:01:08ZengSAGE PublishingGlobal Qualitative Nursing Research2333-39362025-08-011210.1177/23333936251362638“When I Look in the Mirror, I Want to See a Healthy Body”: The Lived Experience of Young Previvors, Bilateral Risk-Reducing Mastectomy, and Body ImageChrista Torrisi0Mei R. Fu1Michelle Teti2Jane M. Armer3Indiana University, Indianapolis, USAUniversity of Missouri, Kansas City, USAUniversity of Missouri, Columbia, USAUniversity of Missouri, Columbia, USABreast cancer is a significant cause of cancer death in young women in the United States. Inherited pathogenic variants, like BRCA1 and BRCA2, contribute to an increased lifetime breast cancer risk in this population. For women with a known pathogenic variant but without a previous cancer diagnosis, also known as “previvors,” the bilateral risk-reducing mastectomy (BRRM) most effectively reduces breast cancer risk. However, this surgery often causes physical change to the body. While existing research has examined the effect of BRRM and body image among previvors across the lifespan, the effect of prophylactic breast removal to decrease lifetime breast cancer risk in young previvors less than 40 years of age is less understood. A descriptive phenomenological approach, along with participant-submitted images, from a sample of 13 young previvors from the Midwestern United States, aged 29 to 39, explored the lived experience of BRRM and body image in the first 12 months following surgery. Narrative data served as the primary source, augmented by participant-submitted visual data. Essential themes were intuited to include BRRM to promote health, the importance of adaptation and acceptance to a changed body, and unexpected challenges following surgery; body image was found to be largely positive after healing occurred.https://doi.org/10.1177/23333936251362638
spellingShingle Christa Torrisi
Mei R. Fu
Michelle Teti
Jane M. Armer
“When I Look in the Mirror, I Want to See a Healthy Body”: The Lived Experience of Young Previvors, Bilateral Risk-Reducing Mastectomy, and Body Image
Global Qualitative Nursing Research
title “When I Look in the Mirror, I Want to See a Healthy Body”: The Lived Experience of Young Previvors, Bilateral Risk-Reducing Mastectomy, and Body Image
title_full “When I Look in the Mirror, I Want to See a Healthy Body”: The Lived Experience of Young Previvors, Bilateral Risk-Reducing Mastectomy, and Body Image
title_fullStr “When I Look in the Mirror, I Want to See a Healthy Body”: The Lived Experience of Young Previvors, Bilateral Risk-Reducing Mastectomy, and Body Image
title_full_unstemmed “When I Look in the Mirror, I Want to See a Healthy Body”: The Lived Experience of Young Previvors, Bilateral Risk-Reducing Mastectomy, and Body Image
title_short “When I Look in the Mirror, I Want to See a Healthy Body”: The Lived Experience of Young Previvors, Bilateral Risk-Reducing Mastectomy, and Body Image
title_sort when i look in the mirror i want to see a healthy body the lived experience of young previvors bilateral risk reducing mastectomy and body image
url https://doi.org/10.1177/23333936251362638
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