Can the CANKADO online application improve quality of life monitoring via the endometriosis health profile-30 in endometriosis patients: A randomized cohort study on acceptance, usability, and correlations with demographics and media usage
Abstract Background The global increase in interest in endometriosis highlights the importance of further investigations concerning this so-called benign gynecological disease. Owing to their severe presentation of symptoms, patients suffer from an enormous impact on their health-related quality of...
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2025-04-01
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| Series: | BMC Women's Health |
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| Online Access: | https://doi.org/10.1186/s12905-025-03736-w |
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| author | Lucia Ehmann Maresa Jäger Lina Folger Timo Schinköthe Susanne Beyer Lennard Schröder Sven Mahner Thomas Kolben |
| author_facet | Lucia Ehmann Maresa Jäger Lina Folger Timo Schinköthe Susanne Beyer Lennard Schröder Sven Mahner Thomas Kolben |
| author_sort | Lucia Ehmann |
| collection | DOAJ |
| description | Abstract Background The global increase in interest in endometriosis highlights the importance of further investigations concerning this so-called benign gynecological disease. Owing to their severe presentation of symptoms, patients suffer from an enormous impact on their health-related quality of life (HRQoL). While the paper-based assessment of quality of life via, e.g., the “Endometriosis Health Profile-30 questionnaire (EHP-30)” seems to be largely accepted and implemented, the electronic measurement of this patient-reported outcome (ePRO) is still rarely applied. This study aimed to analyze the acceptance and usability of electronic assessments of HRQoL in endometriosis patients via the online platform CANKADO. Methods The study was conducted at the Department of Gynecology and Obstetrics of LMU Munich between January 2022 and February 2023. Sixty conservatively treated patients with endometriosis were recruited for the randomized cohort study, followed by randomization due to their planned interrogation modality (n paper-based = 23, n online-based = 17). Afterwards, a HRQoL assessment via the EHP-30 questionnaire was performed. An evaluation of the interrogation modalities was performed at 0, 6 and 12 months. The metric or categorical variables were compared via Fisher’s exact test or the Mann‒Whitney U test. Correlation analysis was performed by calculating the Kendall Tau coefficient or Eta coefficient. Results Forty patients completed evaluation forms at T0 (0 months), with n = 23 evaluating the paper-based interrogation modality and n = 17 evaluating the online version. At all the time of assessment, more than 80% of the patients showed a positive response to routinely performed ePRO measurements in the clinical context, expecting simplified communication, faster diagnosis, and therapeutic improvement. The online modality was rated more suitably (T0: 72.7% vs. 76.5%; T3: 60.0% vs. 90.0%), less complex (T0: 59.1% vs. 76.5%; T3: 80.0% vs. 70.0%), and less laborious (T0: 72.7% vs. 70.6%; T3: 80% each). Completion time over ten minutes was significantly correlated with low coping ability (r = 0.530; p = 0.029), lower clarity (r = 0.530; p = 0.029) and greater effort (r = 0.593; p = 0.012). Conclusions The findings indicate high acceptance and usability of regularly performed ePRO assessments in patients with endometriosis via the online tool CANKADO. |
| format | Article |
| id | doaj-art-d4638a9708ef4934a48401da4856e4e8 |
| institution | DOAJ |
| issn | 1472-6874 |
| language | English |
| publishDate | 2025-04-01 |
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| spelling | doaj-art-d4638a9708ef4934a48401da4856e4e82025-08-20T02:55:38ZengBMCBMC Women's Health1472-68742025-04-0125111210.1186/s12905-025-03736-wCan the CANKADO online application improve quality of life monitoring via the endometriosis health profile-30 in endometriosis patients: A randomized cohort study on acceptance, usability, and correlations with demographics and media usageLucia Ehmann0Maresa Jäger1Lina Folger2Timo Schinköthe3Susanne Beyer4Lennard Schröder5Sven Mahner6Thomas Kolben7Department of Obstetrics and Gynecology, University Hospital Munich, Ludwig-Maximilians UniversityDepartment of Obstetrics and Gynecology, University Hospital Munich, Ludwig-Maximilians UniversityDepartment of Obstetrics and Gynecology, University Hospital Munich, Ludwig-Maximilians UniversityCANKADO GmbHDepartment of Obstetrics and Gynecology, University Hospital Munich, Ludwig-Maximilians UniversityDepartment of Obstetrics and Gynecology, University Hospital Munich, Ludwig-Maximilians UniversityDepartment of Obstetrics and Gynecology, University Hospital Munich, Ludwig-Maximilians UniversityDepartment of Obstetrics and Gynecology, University Hospital Munich, Ludwig-Maximilians UniversityAbstract Background The global increase in interest in endometriosis highlights the importance of further investigations concerning this so-called benign gynecological disease. Owing to their severe presentation of symptoms, patients suffer from an enormous impact on their health-related quality of life (HRQoL). While the paper-based assessment of quality of life via, e.g., the “Endometriosis Health Profile-30 questionnaire (EHP-30)” seems to be largely accepted and implemented, the electronic measurement of this patient-reported outcome (ePRO) is still rarely applied. This study aimed to analyze the acceptance and usability of electronic assessments of HRQoL in endometriosis patients via the online platform CANKADO. Methods The study was conducted at the Department of Gynecology and Obstetrics of LMU Munich between January 2022 and February 2023. Sixty conservatively treated patients with endometriosis were recruited for the randomized cohort study, followed by randomization due to their planned interrogation modality (n paper-based = 23, n online-based = 17). Afterwards, a HRQoL assessment via the EHP-30 questionnaire was performed. An evaluation of the interrogation modalities was performed at 0, 6 and 12 months. The metric or categorical variables were compared via Fisher’s exact test or the Mann‒Whitney U test. Correlation analysis was performed by calculating the Kendall Tau coefficient or Eta coefficient. Results Forty patients completed evaluation forms at T0 (0 months), with n = 23 evaluating the paper-based interrogation modality and n = 17 evaluating the online version. At all the time of assessment, more than 80% of the patients showed a positive response to routinely performed ePRO measurements in the clinical context, expecting simplified communication, faster diagnosis, and therapeutic improvement. The online modality was rated more suitably (T0: 72.7% vs. 76.5%; T3: 60.0% vs. 90.0%), less complex (T0: 59.1% vs. 76.5%; T3: 80.0% vs. 70.0%), and less laborious (T0: 72.7% vs. 70.6%; T3: 80% each). Completion time over ten minutes was significantly correlated with low coping ability (r = 0.530; p = 0.029), lower clarity (r = 0.530; p = 0.029) and greater effort (r = 0.593; p = 0.012). Conclusions The findings indicate high acceptance and usability of regularly performed ePRO assessments in patients with endometriosis via the online tool CANKADO.https://doi.org/10.1186/s12905-025-03736-wEndometriosisHealth-related quality of lifeEHP-30Electronic patient-reported outcome measurementCANKADO |
| spellingShingle | Lucia Ehmann Maresa Jäger Lina Folger Timo Schinköthe Susanne Beyer Lennard Schröder Sven Mahner Thomas Kolben Can the CANKADO online application improve quality of life monitoring via the endometriosis health profile-30 in endometriosis patients: A randomized cohort study on acceptance, usability, and correlations with demographics and media usage BMC Women's Health Endometriosis Health-related quality of life EHP-30 Electronic patient-reported outcome measurement CANKADO |
| title | Can the CANKADO online application improve quality of life monitoring via the endometriosis health profile-30 in endometriosis patients: A randomized cohort study on acceptance, usability, and correlations with demographics and media usage |
| title_full | Can the CANKADO online application improve quality of life monitoring via the endometriosis health profile-30 in endometriosis patients: A randomized cohort study on acceptance, usability, and correlations with demographics and media usage |
| title_fullStr | Can the CANKADO online application improve quality of life monitoring via the endometriosis health profile-30 in endometriosis patients: A randomized cohort study on acceptance, usability, and correlations with demographics and media usage |
| title_full_unstemmed | Can the CANKADO online application improve quality of life monitoring via the endometriosis health profile-30 in endometriosis patients: A randomized cohort study on acceptance, usability, and correlations with demographics and media usage |
| title_short | Can the CANKADO online application improve quality of life monitoring via the endometriosis health profile-30 in endometriosis patients: A randomized cohort study on acceptance, usability, and correlations with demographics and media usage |
| title_sort | can the cankado online application improve quality of life monitoring via the endometriosis health profile 30 in endometriosis patients a randomized cohort study on acceptance usability and correlations with demographics and media usage |
| topic | Endometriosis Health-related quality of life EHP-30 Electronic patient-reported outcome measurement CANKADO |
| url | https://doi.org/10.1186/s12905-025-03736-w |
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