Measuring the quality of self-care of elderly patients with dementia in a developing country
In developing countries like Uganda, people with dementia are cared for by non-medically trained family members with minimal support from the formal healthcare system. The quality of care in this setting is largely unknown but significantly affects the well-being of those with dementia. A...
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Academia.edu Journals
2024-07-01
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| Series: | Academia Mental Health & Well-Being |
| Online Access: | https://www.academia.edu/122481556/Measuring_quality_of_self_care_of_elderly_patients_with_dementia_in_a_developing_country |
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| author | Dennis Rogers Buwembo Joy Louise Gumikiriza-Onoria Lwere Kamada Mark Kaddu-Mukasa Joseph Kagaayi Juliet Kiguli Martha Sajatovic Noeline Nakasujja Fredrick Makumbi |
| author_facet | Dennis Rogers Buwembo Joy Louise Gumikiriza-Onoria Lwere Kamada Mark Kaddu-Mukasa Joseph Kagaayi Juliet Kiguli Martha Sajatovic Noeline Nakasujja Fredrick Makumbi |
| author_sort | Dennis Rogers Buwembo |
| collection | DOAJ |
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In developing countries like Uganda, people with dementia are cared for by non-medically trained family members with minimal support from the formal healthcare system. The quality of care in this setting is largely unknown but significantly affects the well-being of those with dementia. A tool designed to measure the quality of informal care for old frail adults with or without dementia was translated into Luganda. A committee of experts reviewed and finalized the translation, which was pilot-tested and then used to measure the quality of dementia self-care. We consecutively enrolled 105 caregivers of elderly people with dementia; the median age was 35 years (Interquartile Range 26–47 years), and 67% were females, taking care of a grandparent (44%) or a parent (34%). We used confirmatory factor analysis to assess for structural validity and computed correlation coefficients and Cronbach’s alpha to assess for discriminant validity and internal reliability, respectively. The three-factor model applied to the 20 items, adequately fit the data (Comparative Fit Index = 0.88, Tucker–Lewis Index = 0.87, Root Mean Square Error of Approximation = 0.08; 90% Confidence Interval (0.06–0.09), Standardized Root Mean Square Residual = 0.089). There was good discriminant validity, and correlation coefficients between dimensions/scales and the Dementia Knowledge Assessment Scale scores were low. There was good internal reliability with all items Cronbach’s alpha ranging from 0.69 to 0.89. Our findings demonstrated that this culturally adapted, shorter measurement tool is valid and reliable. The tool can be used by researchers, health workers, and agencies to assess the quality of self-care for elderly people with dementia in Uganda. |
| format | Article |
| id | doaj-art-d1fd8599d81a444caa4d55bfa32ee8ec |
| institution | OA Journals |
| issn | 2997-9196 |
| language | English |
| publishDate | 2024-07-01 |
| publisher | Academia.edu Journals |
| record_format | Article |
| series | Academia Mental Health & Well-Being |
| spelling | doaj-art-d1fd8599d81a444caa4d55bfa32ee8ec2025-08-20T02:29:41ZengAcademia.edu JournalsAcademia Mental Health & Well-Being2997-91962024-07-011210.20935/MHealthWellB7300Measuring the quality of self-care of elderly patients with dementia in a developing countryDennis Rogers Buwembo0Joy Louise Gumikiriza-Onoria1Lwere Kamada2Mark Kaddu-Mukasa3Joseph Kagaayi4Juliet Kiguli5Martha Sajatovic6Noeline Nakasujja7Fredrick Makumbi8Brain Health Training Program, School of Medicine, College of Health Sciences, Makerere University, Kampala 7072, Uganda.Department of Psychiatry, School of Medicine, College of Health Sciences, Makerere University, Kampala 7072, Uganda.Department of Microbiology, School of Biomedical Sciences, College of Health Sciences, Makerere University, Kampala 7072, Uganda.Department of Internal Medicine, School of Medicine, College of Health Sciences, Makerere University, Kampala 7072, Uganda.Department of Epidemiology and Biostatistics, School of Public Health, College of Health Sciences, Makerere University, Kampala 7072, Uganda.Department of Community Health and Behavioral Sciences, School of Public Health, College of Health Sciences, Makerere University, Kampala 7072, Uganda.Neurological and Behavioral Outcomes Center, School of Medicine, University Hospitals Cleveland Medical Center, Case Western Reserve University, Cleveland, OH 44106, USA.Department of Psychiatry, School of Medicine, College of Health Sciences, Makerere University, Kampala 7072, Uganda.Department of Epidemiology and Biostatistics, School of Public Health, College of Health Sciences, Makerere University, Kampala 7072, Uganda. In developing countries like Uganda, people with dementia are cared for by non-medically trained family members with minimal support from the formal healthcare system. The quality of care in this setting is largely unknown but significantly affects the well-being of those with dementia. A tool designed to measure the quality of informal care for old frail adults with or without dementia was translated into Luganda. A committee of experts reviewed and finalized the translation, which was pilot-tested and then used to measure the quality of dementia self-care. We consecutively enrolled 105 caregivers of elderly people with dementia; the median age was 35 years (Interquartile Range 26–47 years), and 67% were females, taking care of a grandparent (44%) or a parent (34%). We used confirmatory factor analysis to assess for structural validity and computed correlation coefficients and Cronbach’s alpha to assess for discriminant validity and internal reliability, respectively. The three-factor model applied to the 20 items, adequately fit the data (Comparative Fit Index = 0.88, Tucker–Lewis Index = 0.87, Root Mean Square Error of Approximation = 0.08; 90% Confidence Interval (0.06–0.09), Standardized Root Mean Square Residual = 0.089). There was good discriminant validity, and correlation coefficients between dimensions/scales and the Dementia Knowledge Assessment Scale scores were low. There was good internal reliability with all items Cronbach’s alpha ranging from 0.69 to 0.89. Our findings demonstrated that this culturally adapted, shorter measurement tool is valid and reliable. The tool can be used by researchers, health workers, and agencies to assess the quality of self-care for elderly people with dementia in Uganda.https://www.academia.edu/122481556/Measuring_quality_of_self_care_of_elderly_patients_with_dementia_in_a_developing_country |
| spellingShingle | Dennis Rogers Buwembo Joy Louise Gumikiriza-Onoria Lwere Kamada Mark Kaddu-Mukasa Joseph Kagaayi Juliet Kiguli Martha Sajatovic Noeline Nakasujja Fredrick Makumbi Measuring the quality of self-care of elderly patients with dementia in a developing country Academia Mental Health & Well-Being |
| title | Measuring the quality of self-care of elderly patients with dementia in a developing country |
| title_full | Measuring the quality of self-care of elderly patients with dementia in a developing country |
| title_fullStr | Measuring the quality of self-care of elderly patients with dementia in a developing country |
| title_full_unstemmed | Measuring the quality of self-care of elderly patients with dementia in a developing country |
| title_short | Measuring the quality of self-care of elderly patients with dementia in a developing country |
| title_sort | measuring the quality of self care of elderly patients with dementia in a developing country |
| url | https://www.academia.edu/122481556/Measuring_quality_of_self_care_of_elderly_patients_with_dementia_in_a_developing_country |
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