Community‐engaged efforts to increase retention of Black American online registry participants

Community‐engaged efforts to increase retention of Black American online registry participants

Abstract INTRODUCTION Many longitudinal Alzheimer's disease studies fail to retain Black American adults once enrolled. This limits the generalizability of research findings. METHODS The Community‐Engaged Digital Alzheimer's Research (CEDAR) study developed digital, culturally‐informed, co...

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Main Authors: Miriam T. Ashford, Anna Aaronson, Danqi Zhu, Xinyue Deng, Sandhya Kannan, Catherine Conti, Roxanne Alaniz, Jennefer Sorce, Carole Cypress, Derek Flenniken, Monica Camacho, Juliet Fockler, Diana Truran, R. Scott Mackin, Carl Hill, Michael W. Weiner, Desiree Byrd, Robert W. Turner II, Heining Cham, Monica Rivera Mindt, Rachel L. Nosheny
Format: Article
Language:English
Published: Wiley 2025-04-01
Series:Alzheimer’s & Dementia: Translational Research & Clinical Interventions
Subjects:
Alzheimer's disease
Black/African American
brain health registry
community‐engaged research
digital
effectiveness
Online Access:https://doi.org/10.1002/trc2.70046
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