Barriers and Facilitators to Medicines Use in Patients With Vision Impairment: A Theory‐Informed Qualitative Study of Patients and Caregivers

ABSTRACT Introduction Previous studies have highlighted numerous challenges with medicines use for patients with vision impairment, but evidence is lacking on interventions to support safe and effective medicine use for this population. This study aimed to identify potential barriers/facilitators of...

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Main Authors: Basma Y. Kentab, Heather E. Barry, Sinaa A. Al‐Aqeel, Carmel M. Hughes
Format: Article
Language:English
Published: Wiley 2025-04-01
Series:Health Expectations
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Online Access:https://doi.org/10.1111/hex.70234
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author Basma Y. Kentab
Heather E. Barry
Sinaa A. Al‐Aqeel
Carmel M. Hughes
author_facet Basma Y. Kentab
Heather E. Barry
Sinaa A. Al‐Aqeel
Carmel M. Hughes
author_sort Basma Y. Kentab
collection DOAJ
description ABSTRACT Introduction Previous studies have highlighted numerous challenges with medicines use for patients with vision impairment, but evidence is lacking on interventions to support safe and effective medicine use for this population. This study aimed to identify potential barriers/facilitators of medicines use from the viewpoint of patients/caregivers, to establish a theory‐informed foundation for a future intervention. Methods Semi‐structured interviews were conducted with patients with vision impairment and their caregivers in Saudi Arabia. Participants were recruited from low‐vision clinics and a non‐profit organisation. The Theoretical Domains Framework (TDF) informed the topic guide and served as the theoretical basis for examining participants' behaviours. Interviews explored the barriers/facilitators to obtaining and taking medicines (i.e. the target behaviours). Data were analysed using the framework method and content analysis. Key TDF domains were identified by assessing the relative frequency of themes, the existence of conflicting themes and the perceived theme impact on target behaviours. Results Twelve patient/caregiver dyads and 18 individual patients were interviewed. Patients' ages ranged from 19 to 88 years, with 21 females and 9 males. Patients/caregivers demonstrated good knowledge of medicines used, and resourcefulness in finding methods to manage medication use (Domains: ‘Knowledge’ and ‘Skills’). ‘Environmental context and resources (ECR)’ and ‘Social influences’ were the two most coded domains. Participants reported the usefulness of several resources including pill organisers and smartphones but described problems with pharmacy environments (Domain: ‘ECR’). Caregivers played a major role in assisting patients with medicines. Participants had some positive encounters with pharmacists but reported difficulties in discussing medication issues with them. Many participants had a narrow view of the pharmacist's role (Domain: ‘Social influences’). Maintaining a routine was a major facilitator under the ‘Memory, attention and decision processes’ and ‘Behavioural regulation’ domains. Six TDF domains were considered ‘key’ to participants' behaviours. Conclusions This study is the first to utilise a theoretical approach to understand the behaviour of patients with vision impairment in relation to medication use. It provides a comprehensive understanding of the role of caregivers and what influences their own behaviours. Findings will inform the future development of an intervention to support safe and effective medicine use for patients with vision impairment. Patient or Public Contribution An author met with an administrator at the ‘National Association of the Blind’ (Kafeef) in Riyadh to enhance the research team's understanding of vision impairment, and the practicality and logistics for identifying and recruiting patients. A draft of the interview guides was piloted with two patients and their caregivers and they were asked for feedback on the questions with amendments made accordingly.
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spelling doaj-art-cf6957afc4fb485196bcf1150ce9376e2025-08-20T02:26:13ZengWileyHealth Expectations1369-65131369-76252025-04-01282n/an/a10.1111/hex.70234Barriers and Facilitators to Medicines Use in Patients With Vision Impairment: A Theory‐Informed Qualitative Study of Patients and CaregiversBasma Y. Kentab0Heather E. Barry1Sinaa A. Al‐Aqeel2Carmel M. Hughes3Department of Clinical Pharmacy, College of Pharmacy King Saud University Riyadh Saudi ArabiaPrimary Care Research Group, School of Pharmacy Queen's University Belfast Belfast Northern Ireland UKDepartment of Clinical Pharmacy, College of Pharmacy King Saud University Riyadh Saudi ArabiaPrimary Care Research Group, School of Pharmacy Queen's University Belfast Belfast Northern Ireland UKABSTRACT Introduction Previous studies have highlighted numerous challenges with medicines use for patients with vision impairment, but evidence is lacking on interventions to support safe and effective medicine use for this population. This study aimed to identify potential barriers/facilitators of medicines use from the viewpoint of patients/caregivers, to establish a theory‐informed foundation for a future intervention. Methods Semi‐structured interviews were conducted with patients with vision impairment and their caregivers in Saudi Arabia. Participants were recruited from low‐vision clinics and a non‐profit organisation. The Theoretical Domains Framework (TDF) informed the topic guide and served as the theoretical basis for examining participants' behaviours. Interviews explored the barriers/facilitators to obtaining and taking medicines (i.e. the target behaviours). Data were analysed using the framework method and content analysis. Key TDF domains were identified by assessing the relative frequency of themes, the existence of conflicting themes and the perceived theme impact on target behaviours. Results Twelve patient/caregiver dyads and 18 individual patients were interviewed. Patients' ages ranged from 19 to 88 years, with 21 females and 9 males. Patients/caregivers demonstrated good knowledge of medicines used, and resourcefulness in finding methods to manage medication use (Domains: ‘Knowledge’ and ‘Skills’). ‘Environmental context and resources (ECR)’ and ‘Social influences’ were the two most coded domains. Participants reported the usefulness of several resources including pill organisers and smartphones but described problems with pharmacy environments (Domain: ‘ECR’). Caregivers played a major role in assisting patients with medicines. Participants had some positive encounters with pharmacists but reported difficulties in discussing medication issues with them. Many participants had a narrow view of the pharmacist's role (Domain: ‘Social influences’). Maintaining a routine was a major facilitator under the ‘Memory, attention and decision processes’ and ‘Behavioural regulation’ domains. Six TDF domains were considered ‘key’ to participants' behaviours. Conclusions This study is the first to utilise a theoretical approach to understand the behaviour of patients with vision impairment in relation to medication use. It provides a comprehensive understanding of the role of caregivers and what influences their own behaviours. Findings will inform the future development of an intervention to support safe and effective medicine use for patients with vision impairment. Patient or Public Contribution An author met with an administrator at the ‘National Association of the Blind’ (Kafeef) in Riyadh to enhance the research team's understanding of vision impairment, and the practicality and logistics for identifying and recruiting patients. A draft of the interview guides was piloted with two patients and their caregivers and they were asked for feedback on the questions with amendments made accordingly.https://doi.org/10.1111/hex.70234caregiversmedication usepatientsqualitativeTheoretical Domains Frameworkvision impairment
spellingShingle Basma Y. Kentab
Heather E. Barry
Sinaa A. Al‐Aqeel
Carmel M. Hughes
Barriers and Facilitators to Medicines Use in Patients With Vision Impairment: A Theory‐Informed Qualitative Study of Patients and Caregivers
Health Expectations
caregivers
medication use
patients
qualitative
Theoretical Domains Framework
vision impairment
title Barriers and Facilitators to Medicines Use in Patients With Vision Impairment: A Theory‐Informed Qualitative Study of Patients and Caregivers
title_full Barriers and Facilitators to Medicines Use in Patients With Vision Impairment: A Theory‐Informed Qualitative Study of Patients and Caregivers
title_fullStr Barriers and Facilitators to Medicines Use in Patients With Vision Impairment: A Theory‐Informed Qualitative Study of Patients and Caregivers
title_full_unstemmed Barriers and Facilitators to Medicines Use in Patients With Vision Impairment: A Theory‐Informed Qualitative Study of Patients and Caregivers
title_short Barriers and Facilitators to Medicines Use in Patients With Vision Impairment: A Theory‐Informed Qualitative Study of Patients and Caregivers
title_sort barriers and facilitators to medicines use in patients with vision impairment a theory informed qualitative study of patients and caregivers
topic caregivers
medication use
patients
qualitative
Theoretical Domains Framework
vision impairment
url https://doi.org/10.1111/hex.70234
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