A new role for fluorine-18-fluorodeoxyglucose positron-emission tomography/computed tomography in Erdheim-Chester disease

Erdheim-Chester disease (ECD) is a rare form of non-Langerhans cell histiocytosis, with multisystem manifestation such as bone pain, being the most common presenting symptom, cardiovascular or central nervous system involvement, interstitial lung disease, skin and orbital lesions, adrenal enlargemen...

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Main Authors: Ciska-Anne Van Keerberghen, Antoine Harrouk, Luca Leone
Format: Article
Language:English
Published: Thieme Medical and Scientific Publishers Pvt. Ltd. 2019-04-01
Series:World Journal of Nuclear Medicine
Subjects:
Online Access:http://www.thieme-connect.de/DOI/DOI?10.4103/wjnm.wjnm_57_18
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author Ciska-Anne Van Keerberghen
Antoine Harrouk
Luca Leone
author_facet Ciska-Anne Van Keerberghen
Antoine Harrouk
Luca Leone
author_sort Ciska-Anne Van Keerberghen
collection DOAJ
description Erdheim-Chester disease (ECD) is a rare form of non-Langerhans cell histiocytosis, with multisystem manifestation such as bone pain, being the most common presenting symptom, cardiovascular or central nervous system involvement, interstitial lung disease, skin and orbital lesions, adrenal enlargement, retroperitoneal fibrosis and renal impairment as well fever, and weight loss. The disease is challenging to diagnose due to its rarity and mimicry of other infiltrative processes. Technetium-99 m bone scintigraphy showing pathological bone activity in the long bones is highly suggestive of ECD. However, not all patients have bone complaints. Till now, fluorine-18-fluorodeoxyglucose positron-emission tomography/computed tomography (18F-FDG PET/CT) was especially used after histological diagnosis to determine disease activity and extent, as well as the evaluation of treatment response. With this case, we suggest an additional role for 18F-FDG PET/CT earlier on in the diagnosis workup as follows: detecting a possible biopsy site to establish the diagnosis of ECD especially in a clinical context without bone pain.
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institution Kabale University
issn 1450-1147
1607-3312
language English
publishDate 2019-04-01
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series World Journal of Nuclear Medicine
spelling doaj-art-cee249c7ea0147b8911a51459def79802025-08-20T03:48:36ZengThieme Medical and Scientific Publishers Pvt. Ltd.World Journal of Nuclear Medicine1450-11471607-33122019-04-01180220120310.4103/wjnm.wjnm_57_18A new role for fluorine-18-fluorodeoxyglucose positron-emission tomography/computed tomography in Erdheim-Chester diseaseCiska-Anne Van Keerberghen0Antoine Harrouk1Luca Leone2Division of Nuclear Medicine and Molecular Imaging, University Hospitals LeuvenDepartment of Internal Medicine, St Elisabeth Hospital, BrusselsDepartment of Internal Medicine, St Elisabeth Hospital, BrusselsErdheim-Chester disease (ECD) is a rare form of non-Langerhans cell histiocytosis, with multisystem manifestation such as bone pain, being the most common presenting symptom, cardiovascular or central nervous system involvement, interstitial lung disease, skin and orbital lesions, adrenal enlargement, retroperitoneal fibrosis and renal impairment as well fever, and weight loss. The disease is challenging to diagnose due to its rarity and mimicry of other infiltrative processes. Technetium-99 m bone scintigraphy showing pathological bone activity in the long bones is highly suggestive of ECD. However, not all patients have bone complaints. Till now, fluorine-18-fluorodeoxyglucose positron-emission tomography/computed tomography (18F-FDG PET/CT) was especially used after histological diagnosis to determine disease activity and extent, as well as the evaluation of treatment response. With this case, we suggest an additional role for 18F-FDG PET/CT earlier on in the diagnosis workup as follows: detecting a possible biopsy site to establish the diagnosis of ECD especially in a clinical context without bone pain.http://www.thieme-connect.de/DOI/DOI?10.4103/wjnm.wjnm_57_18erdheim-chester diseasenon-langerhans cell histiocytosisnormal bone scintigraphysubcutaneous nodule
spellingShingle Ciska-Anne Van Keerberghen
Antoine Harrouk
Luca Leone
A new role for fluorine-18-fluorodeoxyglucose positron-emission tomography/computed tomography in Erdheim-Chester disease
World Journal of Nuclear Medicine
erdheim-chester disease
non-langerhans cell histiocytosis
normal bone scintigraphy
subcutaneous nodule
title A new role for fluorine-18-fluorodeoxyglucose positron-emission tomography/computed tomography in Erdheim-Chester disease
title_full A new role for fluorine-18-fluorodeoxyglucose positron-emission tomography/computed tomography in Erdheim-Chester disease
title_fullStr A new role for fluorine-18-fluorodeoxyglucose positron-emission tomography/computed tomography in Erdheim-Chester disease
title_full_unstemmed A new role for fluorine-18-fluorodeoxyglucose positron-emission tomography/computed tomography in Erdheim-Chester disease
title_short A new role for fluorine-18-fluorodeoxyglucose positron-emission tomography/computed tomography in Erdheim-Chester disease
title_sort new role for fluorine 18 fluorodeoxyglucose positron emission tomography computed tomography in erdheim chester disease
topic erdheim-chester disease
non-langerhans cell histiocytosis
normal bone scintigraphy
subcutaneous nodule
url http://www.thieme-connect.de/DOI/DOI?10.4103/wjnm.wjnm_57_18
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