Unusual case of Parkes-Weber syndrome in a patient with spontaneous subarachnoid hemorrhage

Introduction. Parkes-Weber syndrome (PWS) is a complex and rare genetic disease of combined vascular malformations that primarily occur in the extremities and can involve the pelvic blood vessels. In extremely rare cases, the disease is manifested by endocranial and spinal involvement. The treatment...

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Main Authors: Ilić Jovan, Kostić Aleksandar, Nikolov Vesna, Đorđević Marija, Radisavljević Miša, Jelenković Boban, Stojanović Nikola, Aracki-Trenkić Aleksandra
Format: Article
Language:English
Published: Ministry of Defence of the Republic of Serbia, University of Defence, Belgrade 2023-01-01
Series:Vojnosanitetski Pregled
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Online Access:https://doiserbia.nb.rs/img/doi/0042-8450/2023/0042-84502300027I.pdf
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author Ilić Jovan
Kostić Aleksandar
Nikolov Vesna
Đorđević Marija
Radisavljević Miša
Jelenković Boban
Stojanović Nikola
Aracki-Trenkić Aleksandra
author_facet Ilić Jovan
Kostić Aleksandar
Nikolov Vesna
Đorđević Marija
Radisavljević Miša
Jelenković Boban
Stojanović Nikola
Aracki-Trenkić Aleksandra
author_sort Ilić Jovan
collection DOAJ
description Introduction. Parkes-Weber syndrome (PWS) is a complex and rare genetic disease of combined vascular malformations that primarily occur in the extremities and can involve the pelvic blood vessels. In extremely rare cases, the disease is manifested by endocranial and spinal involvement. The treatment of such patients represents a challenge for neurosurgical centers and requires a multidisciplinary approach. Case report. We present the case of a 46-year-old male patient admitted to the emergency department due to spontaneous subarachnoid hemorrhage (SAH), moderate flaccid paraparesis, and urinary incontinence. The patient was previously diagnosed with PWS, while the genetic evaluation proved the RASA1 gene mutation. Furthermore, he experienced a spontaneous SAH and was hospitalized 26 years ago, while six years ago, he underwent a right nephrectomy due to multiple hilar aneurysms of the right renal artery and its branches. Digital subtraction angiography of the endocranium was performed, which detected no aneurysmal dilatations or arteriovenous malformations (AVM). The magnetic resonance imaging recorded spinal intradural AVM in the vertebral levels between T12 and L3, which completely filled the dural sac. After the conservative treatment, there was a significant improvement in the patient’s neurological and clinical condition. Conclusion. To the best of our knowledge, this is the only case report of a patient with PWS who had a spinal intradural AVM and spontaneous SAH without high-output heart failure and with a history of a previous nephrectomy.
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publishDate 2023-01-01
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spelling doaj-art-ce79a66f104d48a7833cb44199de7fa42025-08-20T03:19:38ZengMinistry of Defence of the Republic of Serbia, University of Defence, BelgradeVojnosanitetski Pregled0042-84502406-07202023-01-01801194995410.2298/VSP230128027I0042-84502300027IUnusual case of Parkes-Weber syndrome in a patient with spontaneous subarachnoid hemorrhageIlić Jovan0https://orcid.org/0000-0003-0730-1060Kostić Aleksandar1Nikolov Vesna2https://orcid.org/0000-0003-1352-8704Đorđević Marija3Radisavljević Miša4https://orcid.org/0000-0003-0554-793XJelenković Boban5https://orcid.org/0000-0002-5134-0078Stojanović Nikola6https://orcid.org/0000-0002-0124-3501Aracki-Trenkić Aleksandra7https://orcid.org/0000-0001-5018-5566University Clinical Center Niš, Department of Neurosurgery, Niš, SerbiaUniversity Clinical Center Niš, Department of Neurosurgery, Niš, Serbia + University of Niš, Faculty of Medicine, Niš, SerbiaUniversity Clinical Center Niš, Department of Neurosurgery, Niš, Serbia + University of Niš, Faculty of Medicine, Niš, SerbiaUniversity of Niš, Faculty of Medicine, Niš, SerbiaUniversity Clinical Center Niš, Department of Neurosurgery, Niš, SerbiaUniversity Clinical Center Niš, Department of Neurosurgery, Niš, SerbiaUniversity Clinical Center Niš, Department of Neurosurgery, Niš, SerbiaUniversity Clinical Center Niš, Department of Radiology, Niš, SerbiaIntroduction. Parkes-Weber syndrome (PWS) is a complex and rare genetic disease of combined vascular malformations that primarily occur in the extremities and can involve the pelvic blood vessels. In extremely rare cases, the disease is manifested by endocranial and spinal involvement. The treatment of such patients represents a challenge for neurosurgical centers and requires a multidisciplinary approach. Case report. We present the case of a 46-year-old male patient admitted to the emergency department due to spontaneous subarachnoid hemorrhage (SAH), moderate flaccid paraparesis, and urinary incontinence. The patient was previously diagnosed with PWS, while the genetic evaluation proved the RASA1 gene mutation. Furthermore, he experienced a spontaneous SAH and was hospitalized 26 years ago, while six years ago, he underwent a right nephrectomy due to multiple hilar aneurysms of the right renal artery and its branches. Digital subtraction angiography of the endocranium was performed, which detected no aneurysmal dilatations or arteriovenous malformations (AVM). The magnetic resonance imaging recorded spinal intradural AVM in the vertebral levels between T12 and L3, which completely filled the dural sac. After the conservative treatment, there was a significant improvement in the patient’s neurological and clinical condition. Conclusion. To the best of our knowledge, this is the only case report of a patient with PWS who had a spinal intradural AVM and spontaneous SAH without high-output heart failure and with a history of a previous nephrectomy.https://doiserbia.nb.rs/img/doi/0042-8450/2023/0042-84502300027I.pdfarteriovenous malformationscongenital abnormalitiesdiagnosisgenesmagnetic resonance imagingmutationrasa1 protein, humansubarachnoid hemorrhage
spellingShingle Ilić Jovan
Kostić Aleksandar
Nikolov Vesna
Đorđević Marija
Radisavljević Miša
Jelenković Boban
Stojanović Nikola
Aracki-Trenkić Aleksandra
Unusual case of Parkes-Weber syndrome in a patient with spontaneous subarachnoid hemorrhage
Vojnosanitetski Pregled
arteriovenous malformations
congenital abnormalities
diagnosis
genes
magnetic resonance imaging
mutation
rasa1 protein, human
subarachnoid hemorrhage
title Unusual case of Parkes-Weber syndrome in a patient with spontaneous subarachnoid hemorrhage
title_full Unusual case of Parkes-Weber syndrome in a patient with spontaneous subarachnoid hemorrhage
title_fullStr Unusual case of Parkes-Weber syndrome in a patient with spontaneous subarachnoid hemorrhage
title_full_unstemmed Unusual case of Parkes-Weber syndrome in a patient with spontaneous subarachnoid hemorrhage
title_short Unusual case of Parkes-Weber syndrome in a patient with spontaneous subarachnoid hemorrhage
title_sort unusual case of parkes weber syndrome in a patient with spontaneous subarachnoid hemorrhage
topic arteriovenous malformations
congenital abnormalities
diagnosis
genes
magnetic resonance imaging
mutation
rasa1 protein, human
subarachnoid hemorrhage
url https://doiserbia.nb.rs/img/doi/0042-8450/2023/0042-84502300027I.pdf
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