MyGuide long COVID: An online self-management tool for people with long COVID
Background: Long COVID is a relatively new condition for which patients are asked to employ self-management strategies to manage their symptoms. However, it can be challenging for individuals with long COVID to find reliable and actionable self-management resources. The objective of this project was...
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| Format: | Article |
| Language: | English |
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Elsevier
2025-06-01
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| Series: | Internet Interventions |
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| Online Access: | http://www.sciencedirect.com/science/article/pii/S2214782925000260 |
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| author | Hiten Naik Kyla Pongratz Michelle Malbeuf Sonya Kung Lori Last Asuka Sugiyama Esther Khor Marlee McGuire Adeera Levin Karen C. Tran |
| author_facet | Hiten Naik Kyla Pongratz Michelle Malbeuf Sonya Kung Lori Last Asuka Sugiyama Esther Khor Marlee McGuire Adeera Levin Karen C. Tran |
| author_sort | Hiten Naik |
| collection | DOAJ |
| description | Background: Long COVID is a relatively new condition for which patients are asked to employ self-management strategies to manage their symptoms. However, it can be challenging for individuals with long COVID to find reliable and actionable self-management resources. The objective of this project was to develop an online tool for individuals with long COVID that is patient-centered, accessible, and customizable to meet individual needs. Methods: MyGuide Long COVID (www.longCOVIDguide.ca) was developed in British Columbia (BC), Canada, by a team that included long COVID clinicians and patient partners. Site visitors answer questions about their symptoms, and MyGuide generates a curated set of self-management resources tailored to their needs. Since its launch in August 2023, Google Analytics has been used to monitor website activity. Results: Within the first year, MyGuide had 52,578 total page views and 8570 new users. The most popular method to access MyGuide was by computer (56.3 % of users), and the most represented city was Vancouver, BC (23.5 % of users). The most popular topics were “Post Exertional Malaise” (1339 sessions) and “What is long COVID?” (1257 sessions). Conclusions: An online tool to support chronic disease self-management can be successfully co-developed with patient partners and engagement tracked using web analytics. |
| format | Article |
| id | doaj-art-cd3a4dc81fa34b65ab01901b81dffdcd |
| institution | DOAJ |
| issn | 2214-7829 |
| language | English |
| publishDate | 2025-06-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Internet Interventions |
| spelling | doaj-art-cd3a4dc81fa34b65ab01901b81dffdcd2025-08-20T03:08:37ZengElsevierInternet Interventions2214-78292025-06-014010082510.1016/j.invent.2025.100825MyGuide long COVID: An online self-management tool for people with long COVIDHiten Naik0Kyla Pongratz1Michelle Malbeuf2Sonya Kung3Lori Last4Asuka Sugiyama5Esther Khor6Marlee McGuire7Adeera Levin8Karen C. Tran9Post-COVID-19 Interdisciplinary Clinical Care Network, British Columbia, Canada; Department of Medicine, The University of British Columbia, Vancouver, Canada; Corresponding author at: Post-COVID-19 Interdisciplinary Clinical Care Network, Provincial Health Services Authority, 200-1333 West Broadway, Vancouver, BC V6H 4C1, Canada.Provincial Health Services Authority, British Columbia, CanadaProvidence Health Care, Vancouver, British Columbia, CanadaProvincial Health Services Authority, British Columbia, CanadaPost-COVID-19 Interdisciplinary Clinical Care Network, British Columbia, CanadaPost-COVID-19 Interdisciplinary Clinical Care Network, British Columbia, CanadaPost-COVID-19 Interdisciplinary Clinical Care Network, British Columbia, CanadaProvincial Health Services Authority, British Columbia, CanadaPost-COVID-19 Interdisciplinary Clinical Care Network, British Columbia, Canada; Department of Medicine, The University of British Columbia, Vancouver, CanadaPost-COVID-19 Interdisciplinary Clinical Care Network, British Columbia, Canada; Department of Medicine, The University of British Columbia, Vancouver, CanadaBackground: Long COVID is a relatively new condition for which patients are asked to employ self-management strategies to manage their symptoms. However, it can be challenging for individuals with long COVID to find reliable and actionable self-management resources. The objective of this project was to develop an online tool for individuals with long COVID that is patient-centered, accessible, and customizable to meet individual needs. Methods: MyGuide Long COVID (www.longCOVIDguide.ca) was developed in British Columbia (BC), Canada, by a team that included long COVID clinicians and patient partners. Site visitors answer questions about their symptoms, and MyGuide generates a curated set of self-management resources tailored to their needs. Since its launch in August 2023, Google Analytics has been used to monitor website activity. Results: Within the first year, MyGuide had 52,578 total page views and 8570 new users. The most popular method to access MyGuide was by computer (56.3 % of users), and the most represented city was Vancouver, BC (23.5 % of users). The most popular topics were “Post Exertional Malaise” (1339 sessions) and “What is long COVID?” (1257 sessions). Conclusions: An online tool to support chronic disease self-management can be successfully co-developed with patient partners and engagement tracked using web analytics.http://www.sciencedirect.com/science/article/pii/S2214782925000260SARS-CoV-2Long COVIDPost-acute sequalae of COVID-19Post-COVID-19 conditionDigital healthSelf-management |
| spellingShingle | Hiten Naik Kyla Pongratz Michelle Malbeuf Sonya Kung Lori Last Asuka Sugiyama Esther Khor Marlee McGuire Adeera Levin Karen C. Tran MyGuide long COVID: An online self-management tool for people with long COVID Internet Interventions SARS-CoV-2 Long COVID Post-acute sequalae of COVID-19 Post-COVID-19 condition Digital health Self-management |
| title | MyGuide long COVID: An online self-management tool for people with long COVID |
| title_full | MyGuide long COVID: An online self-management tool for people with long COVID |
| title_fullStr | MyGuide long COVID: An online self-management tool for people with long COVID |
| title_full_unstemmed | MyGuide long COVID: An online self-management tool for people with long COVID |
| title_short | MyGuide long COVID: An online self-management tool for people with long COVID |
| title_sort | myguide long covid an online self management tool for people with long covid |
| topic | SARS-CoV-2 Long COVID Post-acute sequalae of COVID-19 Post-COVID-19 condition Digital health Self-management |
| url | http://www.sciencedirect.com/science/article/pii/S2214782925000260 |
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