Bridging the Gaps in Patient Education for DBS Surgery in Parkinson’s Disease

Introduction. Improvements in quality of life, tremor, and other motor features have been recognized as superior in patients with advanced Parkinson’s disease (PD) treated with deep brain stimulation (DBS) surgery versus best medical therapy. We studied a group of patients with PD after undergoing D...

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Main Authors: Colleen D. Knoop, Robert Kadish, Kathy Hager, Michael C. Park, Paul D. Loprinzi, Kathrin LaFaver
Format: Article
Language:English
Published: Wiley 2017-01-01
Series:Parkinson's Disease
Online Access:http://dx.doi.org/10.1155/2017/9360354
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author Colleen D. Knoop
Robert Kadish
Kathy Hager
Michael C. Park
Paul D. Loprinzi
Kathrin LaFaver
author_facet Colleen D. Knoop
Robert Kadish
Kathy Hager
Michael C. Park
Paul D. Loprinzi
Kathrin LaFaver
author_sort Colleen D. Knoop
collection DOAJ
description Introduction. Improvements in quality of life, tremor, and other motor features have been recognized as superior in patients with advanced Parkinson’s disease (PD) treated with deep brain stimulation (DBS) surgery versus best medical therapy. We studied a group of patients with PD after undergoing DBS surgery in regard to expectations and satisfaction with DBS outcomes to determine gaps in patient education. Methods. This study was a retrospective, single academic center chart review and outcome questionnaire sent to patients with PD who had undergone DBS surgery between 2007 and 2014. Results. All patients surveyed indicated that benefit from DBS surgery met their overall expectations at least partially, but only 46.4% (SE: 9.6%) were in complete agreement. 3.6% (SE: 3.6%) of participants strongly disagreed that preoperative education prepared them adequately for the procedure and 17.9% (SE: 7.4%) only somewhat agreed. Conclusions. Our findings demonstrate that patients’ expectations of DBS surgery in PD were at least partially met. However, there was a considerable percentage of patients who did not feel adequately prepared for the procedure. A structured, multidisciplinary team approach in educating PD patients throughout the different stages of DBS surgery may be helpful in optimizing patients’ experience and satisfaction with surgery outcomes.
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spelling doaj-art-cbb992a484514c0a8e43d86ee92a26c32025-08-20T03:23:37ZengWileyParkinson's Disease2090-80832042-00802017-01-01201710.1155/2017/93603549360354Bridging the Gaps in Patient Education for DBS Surgery in Parkinson’s DiseaseColleen D. Knoop0Robert Kadish1Kathy Hager2Michael C. Park3Paul D. Loprinzi4Kathrin LaFaver5Ochsner Health System, Division of Movement Disorders, 1514 Jefferson Highway, New Orleans, LA 70121, USADepartment of Neurology, University of Louisville, 220 Abraham Flexner Way, Suite 606, Louisville, KY 40202, USABellarmine University, 2001 Newburg Road, Miles Hall 301, Louisville, KY 40205, USADepartment of Neurosurgery and Neurology, University of Minnesota, 420 Delaware Street SE, MMC 96, Minneapolis, MN 55455, USAUniversity of Mississippi, 229 Turner Center, Oxford, MS 38677, USADepartment of Neurology, University of Louisville, 220 Abraham Flexner Way, Suite 606, Louisville, KY 40202, USAIntroduction. Improvements in quality of life, tremor, and other motor features have been recognized as superior in patients with advanced Parkinson’s disease (PD) treated with deep brain stimulation (DBS) surgery versus best medical therapy. We studied a group of patients with PD after undergoing DBS surgery in regard to expectations and satisfaction with DBS outcomes to determine gaps in patient education. Methods. This study was a retrospective, single academic center chart review and outcome questionnaire sent to patients with PD who had undergone DBS surgery between 2007 and 2014. Results. All patients surveyed indicated that benefit from DBS surgery met their overall expectations at least partially, but only 46.4% (SE: 9.6%) were in complete agreement. 3.6% (SE: 3.6%) of participants strongly disagreed that preoperative education prepared them adequately for the procedure and 17.9% (SE: 7.4%) only somewhat agreed. Conclusions. Our findings demonstrate that patients’ expectations of DBS surgery in PD were at least partially met. However, there was a considerable percentage of patients who did not feel adequately prepared for the procedure. A structured, multidisciplinary team approach in educating PD patients throughout the different stages of DBS surgery may be helpful in optimizing patients’ experience and satisfaction with surgery outcomes.http://dx.doi.org/10.1155/2017/9360354
spellingShingle Colleen D. Knoop
Robert Kadish
Kathy Hager
Michael C. Park
Paul D. Loprinzi
Kathrin LaFaver
Bridging the Gaps in Patient Education for DBS Surgery in Parkinson’s Disease
Parkinson's Disease
title Bridging the Gaps in Patient Education for DBS Surgery in Parkinson’s Disease
title_full Bridging the Gaps in Patient Education for DBS Surgery in Parkinson’s Disease
title_fullStr Bridging the Gaps in Patient Education for DBS Surgery in Parkinson’s Disease
title_full_unstemmed Bridging the Gaps in Patient Education for DBS Surgery in Parkinson’s Disease
title_short Bridging the Gaps in Patient Education for DBS Surgery in Parkinson’s Disease
title_sort bridging the gaps in patient education for dbs surgery in parkinson s disease
url http://dx.doi.org/10.1155/2017/9360354
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