ORAI1 defect in a patient with disseminated CMV infection and severe hypotonia

Background. A clinical presentation similar to severe combined immunodeficiency (SCID) with defective T cell activation but normal lymphocyte development occurs due to certain molecule defects including ORAI1- and STIM1. Case. A four-month-old girl sufferd from fever, restlessness, dia...

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Main Authors: Kübra Deveci, Dilek Yalnızoğlu, Deniz Çağdaş, Kader Karlı Oğuz, İlker Ertuğrul, Hayriye Hızarcıoğlu Gülşen, Melike Ocak, Hacer Neslihan Bildik, Saliha Esenboğa, İlhan Tezcan
Format: Article
Language:English
Published: Hacettepe University Institute of Child Health 2023-08-01
Series:The Turkish Journal of Pediatrics
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Online Access:https://turkjpediatr.org/article/view/79
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author Kübra Deveci
Dilek Yalnızoğlu
Deniz Çağdaş
Kader Karlı Oğuz
İlker Ertuğrul
Hayriye Hızarcıoğlu Gülşen
Melike Ocak
Hacer Neslihan Bildik
Saliha Esenboğa
İlhan Tezcan
author_facet Kübra Deveci
Dilek Yalnızoğlu
Deniz Çağdaş
Kader Karlı Oğuz
İlker Ertuğrul
Hayriye Hızarcıoğlu Gülşen
Melike Ocak
Hacer Neslihan Bildik
Saliha Esenboğa
İlhan Tezcan
author_sort Kübra Deveci
collection DOAJ
description Background. A clinical presentation similar to severe combined immunodeficiency (SCID) with defective T cell activation but normal lymphocyte development occurs due to certain molecule defects including ORAI1- and STIM1. Case. A four-month-old girl sufferd from fever, restlessness, diarrhea, and poor weight gain following the neonatal period. There was consanguinity and a positive family history. She had hypotonia and spontaneous opisthotonic posture. Refractory and extensive CMV infections were detected; immunological investigations revealed normal quantitative immunoglobulins and low numbers of CD3+, CD4+, and CD8+ cells. The next generation sequencing analysis revealed a mutation in the ORAI1 gene. Conclusions. The present patient`s history of refractory and widespread CMV infections shows a clinically substantial reduction in resistance against opportunistic microorganisms. This case emphasizes the importance of considering STIM1 and ORAI1 defects in patients with SCID phenotype and neurologic involvement, such as hypotonia.
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institution OA Journals
issn 0041-4301
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language English
publishDate 2023-08-01
publisher Hacettepe University Institute of Child Health
record_format Article
series The Turkish Journal of Pediatrics
spelling doaj-art-cb8b9a4e241b410cb310f9a29511c4ce2025-08-20T02:17:53ZengHacettepe University Institute of Child HealthThe Turkish Journal of Pediatrics0041-43012791-64212023-08-0165410.24953/turkjped.2022.721ORAI1 defect in a patient with disseminated CMV infection and severe hypotoniaKübra Deveci0Dilek Yalnızoğlu1Deniz Çağdaş2Kader Karlı Oğuz3İlker Ertuğrul4Hayriye Hızarcıoğlu Gülşen5Melike Ocak6Hacer Neslihan Bildik7Saliha Esenboğa8İlhan Tezcan9Department of Pediatrics, Hacettepe University Faculty of Medicine, Ankara.Division of Neurology, Department of Pediatrics, Hacettepe University Faculty of Medicine, Ankara, Türkiye.Division of Immunology, Department of Pediatrics, Hacettepe University Faculty of Medicine, Ankara.Department of Radiology, Hacettepe University Faculty of Medicine, Ankara.Division of Cardiology, Department of Pediatrics, Hacettepe University Faculty of Medicine, Ankara.Division of Gastroenterology, Department of Pediatrics, Hacettepe University Faculty of Medicine, Ankara.Division of Immunology, Department of Pediatrics, Hacettepe University Faculty of Medicine, Ankara.Division of Immunology, Department of Pediatrics, Hacettepe University Faculty of Medicine, Ankara.Division of Immunology, Department of Pediatrics, Hacettepe University Faculty of Medicine, Ankara.Division of Immunology, Department of Pediatrics, Hacettepe University Faculty of Medicine, Ankara. Background. A clinical presentation similar to severe combined immunodeficiency (SCID) with defective T cell activation but normal lymphocyte development occurs due to certain molecule defects including ORAI1- and STIM1. Case. A four-month-old girl sufferd from fever, restlessness, diarrhea, and poor weight gain following the neonatal period. There was consanguinity and a positive family history. She had hypotonia and spontaneous opisthotonic posture. Refractory and extensive CMV infections were detected; immunological investigations revealed normal quantitative immunoglobulins and low numbers of CD3+, CD4+, and CD8+ cells. The next generation sequencing analysis revealed a mutation in the ORAI1 gene. Conclusions. The present patient`s history of refractory and widespread CMV infections shows a clinically substantial reduction in resistance against opportunistic microorganisms. This case emphasizes the importance of considering STIM1 and ORAI1 defects in patients with SCID phenotype and neurologic involvement, such as hypotonia. https://turkjpediatr.org/article/view/79CMV infectionORAI1 deficiencyprimary immunodeficiency diseases
spellingShingle Kübra Deveci
Dilek Yalnızoğlu
Deniz Çağdaş
Kader Karlı Oğuz
İlker Ertuğrul
Hayriye Hızarcıoğlu Gülşen
Melike Ocak
Hacer Neslihan Bildik
Saliha Esenboğa
İlhan Tezcan
ORAI1 defect in a patient with disseminated CMV infection and severe hypotonia
The Turkish Journal of Pediatrics
CMV infection
ORAI1 deficiency
primary immunodeficiency diseases
title ORAI1 defect in a patient with disseminated CMV infection and severe hypotonia
title_full ORAI1 defect in a patient with disseminated CMV infection and severe hypotonia
title_fullStr ORAI1 defect in a patient with disseminated CMV infection and severe hypotonia
title_full_unstemmed ORAI1 defect in a patient with disseminated CMV infection and severe hypotonia
title_short ORAI1 defect in a patient with disseminated CMV infection and severe hypotonia
title_sort orai1 defect in a patient with disseminated cmv infection and severe hypotonia
topic CMV infection
ORAI1 deficiency
primary immunodeficiency diseases
url https://turkjpediatr.org/article/view/79
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