Is adjunctive perampanel beneficial for lafora disease?

Backgrund/Aim. Lafora disease (LD) is progressive myoclonus epilepsy, characterized by intractable myoclonus and seizures, inevitable neurological deterioration, brutal cognitive decline and poor prognosis. The treatment still remains purely symptomatic. Recently, two single-case studies and one cas...

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Main Authors: Stevanović Galina, Jović Nebojša, Kecmanović Miljana
Format: Article
Language:English
Published: Ministry of Defence of the Republic of Serbia, University of Defence, Belgrade 2020-01-01
Series:Vojnosanitetski Pregled
Subjects:
Online Access:http://www.doiserbia.nb.rs/img/doi/0042-8450/2020/0042-84502000013S.pdf
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author Stevanović Galina
Jović Nebojša
Kecmanović Miljana
author_facet Stevanović Galina
Jović Nebojša
Kecmanović Miljana
author_sort Stevanović Galina
collection DOAJ
description Backgrund/Aim. Lafora disease (LD) is progressive myoclonus epilepsy, characterized by intractable myoclonus and seizures, inevitable neurological deterioration, brutal cognitive decline and poor prognosis. The treatment still remains purely symptomatic. Recently, two single-case studies and one case series study reported the favourable effects of perampanel in LD. Our study aimed to test the benefits reported in three separate case studies. Methods. We performed an open label, prospective study of 4 patients aged between 22 and 34 years with mutation in NHLRC1 (EPM2B) gene, treated with perampanel (6–8 mg/day) as add-on therapy. Follow-up period comprised 14–26 months. Seizure frequency, myoclonus, functional disability and cognitive performance were analysed. Results. In 3 patients, both, seizures and myoclonus, showed remarkable improvement after the drug introduction (> 50% reduction). No significant effect was seen in one case. The functional and cognitive impairment maintained at the same level, though all patients were at the later stage of the disease. Psychiatric side effects were dose related. Conclusion. Our study supports the rare, previously reported observations that perampanel is beneficial in treating LD patients.
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spelling doaj-art-c93251f7efa14d0abc70b3aa5fd6793a2025-08-20T02:19:34ZengMinistry of Defence of the Republic of Serbia, University of Defence, BelgradeVojnosanitetski Pregled0042-84502406-07202020-01-0177553954410.2298/VSP170416013S0042-84502000013SIs adjunctive perampanel beneficial for lafora disease?Stevanović Galina0Jović Nebojša1Kecmanović Miljana2Clinic for Neurology and Psychiatry for Children and Youth, Belgrade, SerbiaClinic for Neurology and Psychiatry for Children and Youth, Belgrade, SerbiaUniversity of Belgrade, Faculty of Biology, Center for Human Molecular Genetics, Belgrade, SerbiaBackgrund/Aim. Lafora disease (LD) is progressive myoclonus epilepsy, characterized by intractable myoclonus and seizures, inevitable neurological deterioration, brutal cognitive decline and poor prognosis. The treatment still remains purely symptomatic. Recently, two single-case studies and one case series study reported the favourable effects of perampanel in LD. Our study aimed to test the benefits reported in three separate case studies. Methods. We performed an open label, prospective study of 4 patients aged between 22 and 34 years with mutation in NHLRC1 (EPM2B) gene, treated with perampanel (6–8 mg/day) as add-on therapy. Follow-up period comprised 14–26 months. Seizure frequency, myoclonus, functional disability and cognitive performance were analysed. Results. In 3 patients, both, seizures and myoclonus, showed remarkable improvement after the drug introduction (> 50% reduction). No significant effect was seen in one case. The functional and cognitive impairment maintained at the same level, though all patients were at the later stage of the disease. Psychiatric side effects were dose related. Conclusion. Our study supports the rare, previously reported observations that perampanel is beneficial in treating LD patients.http://www.doiserbia.nb.rs/img/doi/0042-8450/2020/0042-84502000013S.pdflafora diseasediagnosisanticolvusantsperampaneltreatment outcome
spellingShingle Stevanović Galina
Jović Nebojša
Kecmanović Miljana
Is adjunctive perampanel beneficial for lafora disease?
Vojnosanitetski Pregled
lafora disease
diagnosis
anticolvusants
perampanel
treatment outcome
title Is adjunctive perampanel beneficial for lafora disease?
title_full Is adjunctive perampanel beneficial for lafora disease?
title_fullStr Is adjunctive perampanel beneficial for lafora disease?
title_full_unstemmed Is adjunctive perampanel beneficial for lafora disease?
title_short Is adjunctive perampanel beneficial for lafora disease?
title_sort is adjunctive perampanel beneficial for lafora disease
topic lafora disease
diagnosis
anticolvusants
perampanel
treatment outcome
url http://www.doiserbia.nb.rs/img/doi/0042-8450/2020/0042-84502000013S.pdf
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