Co-design and prototype development of MedManageSCI: a medication self-management toolkit for adults with spinal cord injury/dysfunction
Abstract Background Medications are among the most common health interventions, with certain populations, such as individuals with spinal cord injury/dysfunction (SCI/D), commonly prescribed multiple medications. Consequently, adults with SCI/D often engage in activities related to medication self-m...
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BMC
2025-04-01
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| Series: | BMC Health Services Research |
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| Online Access: | https://doi.org/10.1186/s12913-025-12705-w |
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| author | Lauren Cadel Rasha El-Kotob Sander L. Hitzig Lisa M. McCarthy Shoshana Hahn-Goldberg Tanya L. Packer Tejal Patel Stephanie R. Cimino Aisha K. Lofters Chester H. Ho Maliha Asif Sara J.T. Guilcher |
| author_facet | Lauren Cadel Rasha El-Kotob Sander L. Hitzig Lisa M. McCarthy Shoshana Hahn-Goldberg Tanya L. Packer Tejal Patel Stephanie R. Cimino Aisha K. Lofters Chester H. Ho Maliha Asif Sara J.T. Guilcher |
| author_sort | Lauren Cadel |
| collection | DOAJ |
| description | Abstract Background Medications are among the most common health interventions, with certain populations, such as individuals with spinal cord injury/dysfunction (SCI/D), commonly prescribed multiple medications. Consequently, adults with SCI/D often engage in activities related to medication self-management, but there are few comprehensive resources for this population. The objective of this study was to co-design the prototype of a toolkit to support medication self-management among adults with SCI/D. Methods We conducted a participatory multi-methods study, using the Good Things Foundation Pathfinder Model as a guide for the co-design process. Participants included adults with SCI/D, caregivers, and healthcare providers. Following the model’s three stages, we: (1) understood and defined the problem by conducting a scoping review, concept mapping study, and working group sessions; (2) created a prototype of the toolkit through working group sessions and website development meetings; and (3) tested the prototype through working group sessions. Results The working group consisted of 19 individuals, including 9 adults with SCI/D, 1 caregiver, and 9 healthcare providers. In Stage 1, we identified the need for a comprehensive medication self-management resource through a scoping review, brainstormed content and delivery methods, and thematized and prioritized the content into eight categories through a concept mapping study. The concept mapping study included 44 participants, including 21 adults with SCI/D, 11 caregivers, and 12 healthcare providers. In Stage 2, feedback on the content mapped onto five categories: first impressions, message and purpose, visual elements, layout and flow, and graphics. The name, MedManageSCI, was selected by the working group. Through an iterative process with the website development company, an online version of the toolkit prototype was created ( www.medmanagesci.ca ). In Stage 3, participants provided recommendations to improve the website’s functionality and navigation. Conclusions The co-design of the MedManageSCI prototype is a significant step toward addressing the medication self-management needs of adults with SCI/D. The implications of this work extend beyond SCI/D, highlighting the importance of tailored digital health resources for populations with complex healthcare needs. Future work is needed to refine the content, assess the feasibility, acceptability, and appropriateness of the toolkit, and examine outcomes related to medication self-management. |
| format | Article |
| id | doaj-art-c925c2a18afe483daf5f2f7f7eae7352 |
| institution | DOAJ |
| issn | 1472-6963 |
| language | English |
| publishDate | 2025-04-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Health Services Research |
| spelling | doaj-art-c925c2a18afe483daf5f2f7f7eae73522025-08-20T03:14:05ZengBMCBMC Health Services Research1472-69632025-04-0125111510.1186/s12913-025-12705-wCo-design and prototype development of MedManageSCI: a medication self-management toolkit for adults with spinal cord injury/dysfunctionLauren Cadel0Rasha El-Kotob1Sander L. Hitzig2Lisa M. McCarthy3Shoshana Hahn-Goldberg4Tanya L. Packer5Tejal Patel6Stephanie R. Cimino7Aisha K. Lofters8Chester H. Ho9Maliha Asif10Sara J.T. Guilcher11Leslie Dan Faculty of Pharmacy, University of TorontoLeslie Dan Faculty of Pharmacy, University of TorontoSt. John’s Rehab Research Program, Sunnybrook Research Institute, Sunnybrook Health Sciences CentreLeslie Dan Faculty of Pharmacy, University of TorontoLeslie Dan Faculty of Pharmacy, University of TorontoSchools of Occupational Therapy and Health Administration, Dalhousie UniversitySchool of Pharmacy, University of WaterlooLawson Research Institute, St. Joseph’s HealthcareDalla Lana School of Public Health, University of TorontoDivision of Physical Medicine & Rehabilitation, Department of Medicine, University of AlbertaLeslie Dan Faculty of Pharmacy, University of TorontoLeslie Dan Faculty of Pharmacy, University of TorontoAbstract Background Medications are among the most common health interventions, with certain populations, such as individuals with spinal cord injury/dysfunction (SCI/D), commonly prescribed multiple medications. Consequently, adults with SCI/D often engage in activities related to medication self-management, but there are few comprehensive resources for this population. The objective of this study was to co-design the prototype of a toolkit to support medication self-management among adults with SCI/D. Methods We conducted a participatory multi-methods study, using the Good Things Foundation Pathfinder Model as a guide for the co-design process. Participants included adults with SCI/D, caregivers, and healthcare providers. Following the model’s three stages, we: (1) understood and defined the problem by conducting a scoping review, concept mapping study, and working group sessions; (2) created a prototype of the toolkit through working group sessions and website development meetings; and (3) tested the prototype through working group sessions. Results The working group consisted of 19 individuals, including 9 adults with SCI/D, 1 caregiver, and 9 healthcare providers. In Stage 1, we identified the need for a comprehensive medication self-management resource through a scoping review, brainstormed content and delivery methods, and thematized and prioritized the content into eight categories through a concept mapping study. The concept mapping study included 44 participants, including 21 adults with SCI/D, 11 caregivers, and 12 healthcare providers. In Stage 2, feedback on the content mapped onto five categories: first impressions, message and purpose, visual elements, layout and flow, and graphics. The name, MedManageSCI, was selected by the working group. Through an iterative process with the website development company, an online version of the toolkit prototype was created ( www.medmanagesci.ca ). In Stage 3, participants provided recommendations to improve the website’s functionality and navigation. Conclusions The co-design of the MedManageSCI prototype is a significant step toward addressing the medication self-management needs of adults with SCI/D. The implications of this work extend beyond SCI/D, highlighting the importance of tailored digital health resources for populations with complex healthcare needs. Future work is needed to refine the content, assess the feasibility, acceptability, and appropriateness of the toolkit, and examine outcomes related to medication self-management.https://doi.org/10.1186/s12913-025-12705-wSpinal cord injurySpinal cord dysfunctionMedication self-managementCo-designToolkitSelf-management |
| spellingShingle | Lauren Cadel Rasha El-Kotob Sander L. Hitzig Lisa M. McCarthy Shoshana Hahn-Goldberg Tanya L. Packer Tejal Patel Stephanie R. Cimino Aisha K. Lofters Chester H. Ho Maliha Asif Sara J.T. Guilcher Co-design and prototype development of MedManageSCI: a medication self-management toolkit for adults with spinal cord injury/dysfunction BMC Health Services Research Spinal cord injury Spinal cord dysfunction Medication self-management Co-design Toolkit Self-management |
| title | Co-design and prototype development of MedManageSCI: a medication self-management toolkit for adults with spinal cord injury/dysfunction |
| title_full | Co-design and prototype development of MedManageSCI: a medication self-management toolkit for adults with spinal cord injury/dysfunction |
| title_fullStr | Co-design and prototype development of MedManageSCI: a medication self-management toolkit for adults with spinal cord injury/dysfunction |
| title_full_unstemmed | Co-design and prototype development of MedManageSCI: a medication self-management toolkit for adults with spinal cord injury/dysfunction |
| title_short | Co-design and prototype development of MedManageSCI: a medication self-management toolkit for adults with spinal cord injury/dysfunction |
| title_sort | co design and prototype development of medmanagesci a medication self management toolkit for adults with spinal cord injury dysfunction |
| topic | Spinal cord injury Spinal cord dysfunction Medication self-management Co-design Toolkit Self-management |
| url | https://doi.org/10.1186/s12913-025-12705-w |
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