Conducting Patient-Oriented Research in Pediatric Populations: A Narrative Review
It has become increasingly common for researchers to partner with patients as members of the research team and collaborate to use their lived experiences to shape research priorities, interventions, dissemination, and more. The patient-oriented research (POR) model has been adopted by both adult and...
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| Format: | Article |
| Language: | English |
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MDPI AG
2024-10-01
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| Series: | Children |
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| Online Access: | https://www.mdpi.com/2227-9067/11/10/1266 |
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| author | Alan P. Cooper Linda Nguyen Oluwapolola Irelewuyi Steven P. Miller |
| author_facet | Alan P. Cooper Linda Nguyen Oluwapolola Irelewuyi Steven P. Miller |
| author_sort | Alan P. Cooper |
| collection | DOAJ |
| description | It has become increasingly common for researchers to partner with patients as members of the research team and collaborate to use their lived experiences to shape research priorities, interventions, dissemination, and more. The patient-oriented research (POR) model has been adopted by both adult and pediatric health researchers. This cultural change to conducting pediatric health research brings with it new methodologies, tools, challenges, and benefits. In this review, we aim to provide guidance on how to conduct POR for pediatric populations using examples from the literature. We describe considerations for engagement before the project begins, for engagement across the research cycle, and for measurement and evaluation. We aim to show that conducting POR is feasible, beneficial, and that many common challenges and barriers can be overcome with preparation and usage of specific tools. |
| format | Article |
| id | doaj-art-c8a8fed8ea174339ad354f848e7efe0c |
| institution | OA Journals |
| issn | 2227-9067 |
| language | English |
| publishDate | 2024-10-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Children |
| spelling | doaj-art-c8a8fed8ea174339ad354f848e7efe0c2025-08-20T02:11:03ZengMDPI AGChildren2227-90672024-10-011110126610.3390/children11101266Conducting Patient-Oriented Research in Pediatric Populations: A Narrative ReviewAlan P. Cooper0Linda Nguyen1Oluwapolola Irelewuyi2Steven P. Miller3Department of Paediatrics, The Hospital for Sick Children, Toronto, ON M5G 1X8, CanadaFaculty of Social Work, University of Calgary, Calgary, AB T2N 1N4, CanadaDepartment of Paediatrics, The Hospital for Sick Children, Toronto, ON M5G 1X8, CanadaDepartment of Paediatrics, The Hospital for Sick Children, Toronto, ON M5G 1X8, CanadaIt has become increasingly common for researchers to partner with patients as members of the research team and collaborate to use their lived experiences to shape research priorities, interventions, dissemination, and more. The patient-oriented research (POR) model has been adopted by both adult and pediatric health researchers. This cultural change to conducting pediatric health research brings with it new methodologies, tools, challenges, and benefits. In this review, we aim to provide guidance on how to conduct POR for pediatric populations using examples from the literature. We describe considerations for engagement before the project begins, for engagement across the research cycle, and for measurement and evaluation. We aim to show that conducting POR is feasible, beneficial, and that many common challenges and barriers can be overcome with preparation and usage of specific tools.https://www.mdpi.com/2227-9067/11/10/1266patient-oriented researchpatient and public involvementresearch engagementpatient-partnerperson with lived experiencediversity and inclusion in research |
| spellingShingle | Alan P. Cooper Linda Nguyen Oluwapolola Irelewuyi Steven P. Miller Conducting Patient-Oriented Research in Pediatric Populations: A Narrative Review Children patient-oriented research patient and public involvement research engagement patient-partner person with lived experience diversity and inclusion in research |
| title | Conducting Patient-Oriented Research in Pediatric Populations: A Narrative Review |
| title_full | Conducting Patient-Oriented Research in Pediatric Populations: A Narrative Review |
| title_fullStr | Conducting Patient-Oriented Research in Pediatric Populations: A Narrative Review |
| title_full_unstemmed | Conducting Patient-Oriented Research in Pediatric Populations: A Narrative Review |
| title_short | Conducting Patient-Oriented Research in Pediatric Populations: A Narrative Review |
| title_sort | conducting patient oriented research in pediatric populations a narrative review |
| topic | patient-oriented research patient and public involvement research engagement patient-partner person with lived experience diversity and inclusion in research |
| url | https://www.mdpi.com/2227-9067/11/10/1266 |
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