Assessment of Quality of Life and Satisfaction Level of Parents of the Thalassemia Major Malnourished Patients
Objective: To assess the quality of life & level of satisfaction among parents of the thalassemia major patients. Study type, settings & duration: This cross-sectional study was conducted at Sandeman Provincial Hospital & Bolan Medical Hospital, Quetta from July to September 2017. M...
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| Main Authors: | , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Health Research Institute (HRI), National Institute of Health (NIH)
2025-04-01
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| Series: | Pakistan Journal of Medical Research |
| Subjects: | |
| Online Access: | https://pjmr.org.pk/index.php/pjmr/article/view/887 |
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| Summary: | Objective: To assess the quality of life & level of satisfaction among parents of the thalassemia major patients.
Study type, settings & duration: This cross-sectional study was conducted at Sandeman Provincial Hospital & Bolan Medical Hospital, Quetta from July to September 2017.
Methodology: A sample size of 100 participants was statistically calculated. Data was congregated by systematic random sampling via pre-designed structured questionnaire comprising of several portions. The satisfaction scale was “5-item Likert-type. Thalassemia major patients and their parents who didn’t have any sort of mental or hearing concerns was our target population, while those who had problems other than mal-nourishment, or having haemoglobinopathies were excluded from the study. Ethical consideration was attained from participants by maintaining confidentiality & Internal Review Board of Health Services Academy prior to the study.
Results: Among the 100 respondents, 35 were females while 65 were males. Eight four percent parents having moderate degree of financial difficulties. About 62% of the parents said that they do not have enough money to fulfill their needs. About 60% of the attendants have adequate means of transport. Financially about 54% were poor and about 46% were in good financial condition. About 36 % of the attendants were not satisfied from the support they got and about 42% of them were less satisfied and about 22% of them were more satisfied from the support.
Conclusion: Parents of thalassemia major patients have financial & transportation difficulties in addition to support they got from the family and friends.
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| ISSN: | 0030-9842 |