Using photovoice to define “community” in substance use disorder research engaging service users, providers, and policymakers
(197 words)The ideals of community-engaged health research are challenging to realize ethically and methodologically, particularly when focused on substance use disorder (SUD), in which the power differentials inherent to stigma marginalize people with lived experience (LE) as full community partici...
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| Format: | Article |
| Language: | English |
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Elsevier
2025-06-01
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| Series: | SSM: Qualitative Research in Health |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2667321525000095 |
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| author | McGladrey Margaret L Marisa Booty Ramona Olvera Peter Balvanz Hilary L. Surratt Shannon Matthews Susannah Stitzer Owusua Yamoah Sylvia Ellison Kevin Campbell Amy Farmer Bethany Gealy Mike Greenwell Felicia Harris Amy Kuntz Sara Szelagowski Alexandrea Shouse Carrie B. Oser |
| author_facet | McGladrey Margaret L Marisa Booty Ramona Olvera Peter Balvanz Hilary L. Surratt Shannon Matthews Susannah Stitzer Owusua Yamoah Sylvia Ellison Kevin Campbell Amy Farmer Bethany Gealy Mike Greenwell Felicia Harris Amy Kuntz Sara Szelagowski Alexandrea Shouse Carrie B. Oser |
| author_sort | McGladrey Margaret L |
| collection | DOAJ |
| description | (197 words)The ideals of community-engaged health research are challenging to realize ethically and methodologically, particularly when focused on substance use disorder (SUD), in which the power differentials inherent to stigma marginalize people with lived experience (LE) as full community participants. This study provides a typology and exploratory data generated through Photovoice to understand relationships among community members with different roles related to LE of SUD (i.e., SUD service providers, service users, and the public) in the context of a large-scale community-engaged opioid overdose reduction intervention. A team of 14 participants and researchers used an adapted thematic analysis method to interpret Photovoice data from 65 total participants in Kentucky, Massachusetts, and Ohio. Photovoice data indicated the influence of stigmatization on perceptions of service users as problems to be solved by service providers without the significant investment of the rest of the community. Service provider burnout is exacerbated by competition for scarce public investments in addressing the dire need for SUD services amid the opioid epidemic. Community-engaged SUD research can be improved by defining the parameters of communities in explicit, participatory, and reflexive ways and recognizing how disinvestment and stigmatization influence relationships among community members occupying different roles in SUD services. |
| format | Article |
| id | doaj-art-c7b8ddcfc6cb40ce9cbe0e71a442d662 |
| institution | Kabale University |
| issn | 2667-3215 |
| language | English |
| publishDate | 2025-06-01 |
| publisher | Elsevier |
| record_format | Article |
| series | SSM: Qualitative Research in Health |
| spelling | doaj-art-c7b8ddcfc6cb40ce9cbe0e71a442d6622025-01-30T05:15:12ZengElsevierSSM: Qualitative Research in Health2667-32152025-06-017100531Using photovoice to define “community” in substance use disorder research engaging service users, providers, and policymakersMcGladrey Margaret L0Marisa Booty1Ramona Olvera2Peter Balvanz3Hilary L. Surratt4Shannon Matthews5Susannah Stitzer6Owusua Yamoah7Sylvia Ellison8Kevin Campbell9Amy Farmer10Bethany Gealy11Mike Greenwell12Felicia Harris13Amy Kuntz14Sara Szelagowski15Alexandrea Shouse16Carrie B. Oser17Department of Health Management and Policy, University of Kentucky College of Public Health, 111 Washington Ave, Suite 104, Lexington, KY, 40508, USA; Corresponding author.Department of Sociology, University of Kentucky, 120 Patterson Dr, Suite 1515, Lexington, KY, 40508, USACenter for the Advancement of Team Science, Analytics, and System Thinking in Health Services and Implementation Science Research (CATALYST), College of Medicine, The Ohio State University, 460 Medical Center Drive, Suite 530, Columbus, OH, 43210, USAGeneral Internal Medicine, Boston Medical Center, 801 Massachusetts Ave 6th Floor, Boston, MA, 02119, USADepartment of Behavioral Science, University of Kentucky College of Medicine, Medical Behavioral Science Building, 109, 1100 Veterans Dr, Lexington, KY, 40508, USAVoices of Hope, 644 N Broadway, Lexington, KY, 40508, USADepartment of Neurology, University of Kentucky College of Medicine, 740 S. Limestone First Floor, Wing C, Room B101 Lexington, KY, 40536, USAMary Ann Swetland Center for Environmental Health, Department of Population and Quantitative Health Sciences, Case Western Reserve University, 11000 Cedar Ave Suite 400, Cleveland, OH, 44106, USACollege of Medicine, The Ohio State University, 460 Medical Center Drive, Suite 530, Columbus, OH, 43210, USAAshland First Church of the Nazarene, 2201 Bath Ave, Ashland, KY, 41101, USACollege of Medicine, The Ohio State University, 460 Medical Center Drive, Suite 530, Columbus, OH, 43210, USATouch Massage, 11456 State Rd, North Royalton, OH, 44133, USAKenton County Detention Center, 3000 Decker Crane Ln, Covington, KY 41017, USACapital Court Authority, 100 E Main St, Frankfort, KY 40601, USACollege of Medicine, The Ohio State University, 460 Medical Center Drive, Suite 530, Columbus, OH, 43210, USAProject White Butterfly, 6408 Memphis Ave, Cleveland, OH, 44144, USACollege of Communication and Information, University of Kentucky, Lucille Little Library, 308, 160 Patterson Dr, Lexington, KY, 40506, USADepartment of Sociology, University of Kentucky, 120 Patterson Dr, Suite 1515, Lexington, KY, 40508, USA(197 words)The ideals of community-engaged health research are challenging to realize ethically and methodologically, particularly when focused on substance use disorder (SUD), in which the power differentials inherent to stigma marginalize people with lived experience (LE) as full community participants. This study provides a typology and exploratory data generated through Photovoice to understand relationships among community members with different roles related to LE of SUD (i.e., SUD service providers, service users, and the public) in the context of a large-scale community-engaged opioid overdose reduction intervention. A team of 14 participants and researchers used an adapted thematic analysis method to interpret Photovoice data from 65 total participants in Kentucky, Massachusetts, and Ohio. Photovoice data indicated the influence of stigmatization on perceptions of service users as problems to be solved by service providers without the significant investment of the rest of the community. Service provider burnout is exacerbated by competition for scarce public investments in addressing the dire need for SUD services amid the opioid epidemic. Community-engaged SUD research can be improved by defining the parameters of communities in explicit, participatory, and reflexive ways and recognizing how disinvestment and stigmatization influence relationships among community members occupying different roles in SUD services.http://www.sciencedirect.com/science/article/pii/S2667321525000095 |
| spellingShingle | McGladrey Margaret L Marisa Booty Ramona Olvera Peter Balvanz Hilary L. Surratt Shannon Matthews Susannah Stitzer Owusua Yamoah Sylvia Ellison Kevin Campbell Amy Farmer Bethany Gealy Mike Greenwell Felicia Harris Amy Kuntz Sara Szelagowski Alexandrea Shouse Carrie B. Oser Using photovoice to define “community” in substance use disorder research engaging service users, providers, and policymakers SSM: Qualitative Research in Health |
| title | Using photovoice to define “community” in substance use disorder research engaging service users, providers, and policymakers |
| title_full | Using photovoice to define “community” in substance use disorder research engaging service users, providers, and policymakers |
| title_fullStr | Using photovoice to define “community” in substance use disorder research engaging service users, providers, and policymakers |
| title_full_unstemmed | Using photovoice to define “community” in substance use disorder research engaging service users, providers, and policymakers |
| title_short | Using photovoice to define “community” in substance use disorder research engaging service users, providers, and policymakers |
| title_sort | using photovoice to define community in substance use disorder research engaging service users providers and policymakers |
| url | http://www.sciencedirect.com/science/article/pii/S2667321525000095 |
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