Maternity Care Providers’ Experiences with Providing Information on Newborn Bloodspot Screening During Pregnancy: A Dutch Survey Study
Newborn bloodspot screening (NBS) aims to detect treatable disorders in newborns to offer early interventions. According to the official Dutch national NBS guidance, parents in the Netherlands should be informed about NBS during pregnancy by maternity care providers (MCPs), providing two leaflets an...
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MDPI AG
2025-01-01
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| Series: | International Journal of Neonatal Screening |
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| Online Access: | https://www.mdpi.com/2409-515X/11/1/5 |
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| author | Jasmijn E. Klapwijk Janneke Gitsels-van der Wal Linda Martin Rendelien K. Verschoof-Puite Ellen Elsinghorst Lidewij Henneman |
| author_facet | Jasmijn E. Klapwijk Janneke Gitsels-van der Wal Linda Martin Rendelien K. Verschoof-Puite Ellen Elsinghorst Lidewij Henneman |
| author_sort | Jasmijn E. Klapwijk |
| collection | DOAJ |
| description | Newborn bloodspot screening (NBS) aims to detect treatable disorders in newborns to offer early interventions. According to the official Dutch national NBS guidance, parents in the Netherlands should be informed about NBS during pregnancy by maternity care providers (MCPs), providing two leaflets and oral information. This study investigated what, how, and when information about NBS is given during pregnancy according to Dutch MCPs. An online questionnaire was completed by 279 MCPs; 237 (84.9%) provided information to parents themselves, although 4.6% of them only did so postnatally, and 240 (86.0%) considered this the task of the MCP. Among the 237 MCPs, information was provided by personal conversation (59.9%) and by giving at least one leaflet (83.1%), while 25.7% only gave leaflets. Being a first pregnancy (45.1%) and parents’ literacy (38.8%) influenced how MCPs provided information. Information was mostly provided at 34–37 weeks gestation (68.8%). Conversations mostly included giving information on when NBS will be performed (97.2%), the purpose of NBS (93.7%), how the test will be performed (92.3%), and participation being voluntary (80.3%). The results suggest that while most Dutch MCPs consider it their task to provide NBS information, its timing, method, and completeness do not always follow the established guidelines. |
| format | Article |
| id | doaj-art-c75894e8f57841b5bcc0f8b69e340b5e |
| institution | OA Journals |
| issn | 2409-515X |
| language | English |
| publishDate | 2025-01-01 |
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| series | International Journal of Neonatal Screening |
| spelling | doaj-art-c75894e8f57841b5bcc0f8b69e340b5e2025-08-20T01:48:46ZengMDPI AGInternational Journal of Neonatal Screening2409-515X2025-01-01111510.3390/ijns11010005Maternity Care Providers’ Experiences with Providing Information on Newborn Bloodspot Screening During Pregnancy: A Dutch Survey StudyJasmijn E. Klapwijk0Janneke Gitsels-van der Wal1Linda Martin2Rendelien K. Verschoof-Puite3Ellen Elsinghorst4Lidewij Henneman5Department of Human Genetics and Amsterdam Reproduction and Development Research Institute, Amsterdam UMC, Vrije Universiteit Amsterdam, 1007 MB Amsterdam, The NetherlandsDepartment of Midwifery Science and Amsterdam Public Health Research Institute, Amsterdam UMC, Vrije Universiteit Amsterdam, 1007 MB Amsterdam, The NetherlandsDepartment of Midwifery Science and Amsterdam Public Health Research Institute, Amsterdam UMC, Vrije Universiteit Amsterdam, 1007 MB Amsterdam, The NetherlandsDepartment for Vaccine Supply and Prevention Programmes, RIVM Dutch National Institute for Public Health and the Environment, 3720 BA Bilthoven, The NetherlandsCentre for Population Screening, RIVM Dutch National Institute for Public Health and Environment, 3720 BA Bilthoven, The NetherlandsDepartment of Human Genetics and Amsterdam Reproduction and Development Research Institute, Amsterdam UMC, Vrije Universiteit Amsterdam, 1007 MB Amsterdam, The NetherlandsNewborn bloodspot screening (NBS) aims to detect treatable disorders in newborns to offer early interventions. According to the official Dutch national NBS guidance, parents in the Netherlands should be informed about NBS during pregnancy by maternity care providers (MCPs), providing two leaflets and oral information. This study investigated what, how, and when information about NBS is given during pregnancy according to Dutch MCPs. An online questionnaire was completed by 279 MCPs; 237 (84.9%) provided information to parents themselves, although 4.6% of them only did so postnatally, and 240 (86.0%) considered this the task of the MCP. Among the 237 MCPs, information was provided by personal conversation (59.9%) and by giving at least one leaflet (83.1%), while 25.7% only gave leaflets. Being a first pregnancy (45.1%) and parents’ literacy (38.8%) influenced how MCPs provided information. Information was mostly provided at 34–37 weeks gestation (68.8%). Conversations mostly included giving information on when NBS will be performed (97.2%), the purpose of NBS (93.7%), how the test will be performed (92.3%), and participation being voluntary (80.3%). The results suggest that while most Dutch MCPs consider it their task to provide NBS information, its timing, method, and completeness do not always follow the established guidelines.https://www.mdpi.com/2409-515X/11/1/5neonatal screeningquestionnaireattitudespregnancyguidancematernity |
| spellingShingle | Jasmijn E. Klapwijk Janneke Gitsels-van der Wal Linda Martin Rendelien K. Verschoof-Puite Ellen Elsinghorst Lidewij Henneman Maternity Care Providers’ Experiences with Providing Information on Newborn Bloodspot Screening During Pregnancy: A Dutch Survey Study International Journal of Neonatal Screening neonatal screening questionnaire attitudes pregnancy guidance maternity |
| title | Maternity Care Providers’ Experiences with Providing Information on Newborn Bloodspot Screening During Pregnancy: A Dutch Survey Study |
| title_full | Maternity Care Providers’ Experiences with Providing Information on Newborn Bloodspot Screening During Pregnancy: A Dutch Survey Study |
| title_fullStr | Maternity Care Providers’ Experiences with Providing Information on Newborn Bloodspot Screening During Pregnancy: A Dutch Survey Study |
| title_full_unstemmed | Maternity Care Providers’ Experiences with Providing Information on Newborn Bloodspot Screening During Pregnancy: A Dutch Survey Study |
| title_short | Maternity Care Providers’ Experiences with Providing Information on Newborn Bloodspot Screening During Pregnancy: A Dutch Survey Study |
| title_sort | maternity care providers experiences with providing information on newborn bloodspot screening during pregnancy a dutch survey study |
| topic | neonatal screening questionnaire attitudes pregnancy guidance maternity |
| url | https://www.mdpi.com/2409-515X/11/1/5 |
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